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Recurrent fevers

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Beenthruit
Beenthruit

Fourteen years ago I had a bullseye rash on my lower right leg. We had been to a local animal park in the UK with our grandchildren and walked among long grass. As Lyme is not common in UK and I never saw the tick, I did not make the connection. The bullseye spread until it covered most of the front of my lower right leg. I treated it with antiseptic cream and the rash faded although I got a tingling sensation for months afterwards.

Roll on about 14 years and last July I experienced 2 bouts of raised temperature, feeling so cold I shook, armpit pain, joint aches and headache. I felt like Id caught flu. As i was recovering from gallbladder cancer, I saw my GP who arranged a CT scan and blood tests. Both came back negative. Since then, i have had another ten episodes in ten months. They occur irregularly- can have two in a week but have gone ten weeks. They last 4-8 hours.

We are currently socially distancing due to coronavirus and did not wish to bother my GP, so I googled the possible cause and was surprised to see Lyme disease come up. Most information is not UK based, so I am having difficulty finding information about whether my recurrent fever could be Lyme related so long afterwards. Just wondering if anyone has experienced similar?

0 likes, 2 replies

2 Replies

  • dizbopper
    dizbopper Beenthruit

    Posted

    Hi, sorry to hear of your experience. I'm also UK based. I was bitten by a tick, and was prescribed antibiotics but still became ill about 18 months later. From what I've read there is no set pattern of symptoms: it depends on the makeup of the individual and also upon what nasties the tick was carrying (can be other co-infections as well as Lyme, such as bartonella ). Unfortunately, even with a diagnosis, it's not an easy fix, as you may have read - repeated courses of antibiotics certainly didn't help in my case. You mentioned not wanting to bother your GP - mine was lovely, but despite being in a Lyme hotspot (Hampshire) she had little experience in dealing with/treating it. After one neurologist suggested I'd just have to adjust my life to fit my symptoms (fatigue, joint pain, headaches, memory loss etc.) I tried anti-microbial herbs which made a massive and difference to my health. I gave them a go as I had nothing to lose, and was really glad I did. Unfortunately I can't link resources or things that helped me or my comment won't pass moderation, but I would recommend doing as much research as you can. Sorry if that was a bit of a ramble - saw your post in my junk folder and was sad no-one had replied, so I wanted to say something. Good luck and hope you manage to get some answers/feel better soon.

    • LymeDude
      LymeDude dizbopper

      Posted

      check out ILADS.org. good information and does offer European specialists. Not many options and I dont think they accept insurance.

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