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Recurrent relapse

Posted , 5 users are following.

Lucylockett
Lucylockett

I am struggling to control my relapse.

I am getting very dishearted as I have a few good days get back to some kind of reality then to relapse all over again

0 likes, 3 replies

3 Replies

  • Guest
    Guest Lucylockett

    Posted

    Do you know if your symptoms are related to a viral infection? I’ve been dealing with this for four months now and suspect a viral infection but have not been diagnosed. How long have you been dealing with this? And what are your symptoms?
  • joe98530
    joe98530 Lucylockett

    Posted

    Sacha, I know how you feel(I think). I live in some altered reality where I believe I just haven’t found the cure yet. It’s all that keeps me going...keep believing and trying. If I live in my real reality it’s hoplessness, pain and depression. You are not alone. 
  • wknight
    wknight Lucylockett

    Posted

    Welcome to the world of boom and bust. I suffered this for years until I started to listen to my GP who kept telling me how to fix it and the answer is very simple. When you feel good, limit how much you do. You are doing too much so the body needs time to recover, hence the boom and bust cycle. Simply control your enthusiasm to do too much on the good days and once you learn the formula you will have more good days than bad. 

    I describe it as learning to run a marathon you don't run 26 miles straight off. First you do a mile, then 3 etc and work up to it. With CF its the same. Using this approach its taken me almost 3 years but I can now cycle 50 miles.

    Best of luck 

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