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Recurring episodes with no diagnosis

Posted , 5 users are following.

ana50786
ana50786

I have been getting these for over a year now and therefore no diagnosis. Had thyroid tests, celiac, liver, diabetes, the lot, all came back fine. 

Here is how it goes:

Feeling like smth spikes in my system all of a sudden

Cold and start shaking for a bit

Some palpitations

Running mind, lots of images if I close my eyes

Dizziness and cold behind the ears

Grumbling bowels

General uneasiness, feeling unwell

Happens around periods mainly or when I am physically or mentally tired more than usual.

Sometimes at night, wakes me from deep sleep and keeps me awake; I never have insomnia otherwise.

Lasts about 30 mins as an episode, but can come twice or three times in a day when it happens and am not quite myself the day after as well especially if it wakes me at night. 

Anyone experiencing this and got an idea what it may be causing it?

I have thousands of anxiety/panic, but it all feels too organic and flesh based and comes out of the blue even when I haven’t got a worry in the world (i.e on holiday).

2 likes, 7 replies

7 Replies

  • hope4cure
    hope4cure ana50786

    Posted

    Keep searching for answers. Sometimes it's frustrating while waiting for diagnosis. Hopefully in time it will all be a good diagnosis and treatment thru to a healthy life.

     

  • lyn1951
    lyn1951 ana50786

    Posted

    Thought I would tell you my story, I have been suffering with severe arthritis for years, followed the Dr's instructions, took their drugs, and nothing worked, tested me for everything incl celiac, all came back negative, even rheumatoid arthiritis.

    A few months ago decided I was going to try by myself eliminating various food from my diet, started with bread, I do like a slice of toast for breakfast, and within a few hours felt as if I was not in as much pain, well this is good, no bread then, difficult when you have eaten bread your entire life.

    Told specialist the next time I visited that I was feeling a little better, never told her about the bread, she said your bloods are as good as I have seen them in 10 years, whatever you are doing, keep it up.

    Again just the last few weeks have had another blood test and my bloods again are lower, not as much inflammation in system, even GP is amazed, he has also said keep doing whatever it is its working, I admitted to him, that I had cut out bread, he shook his head and said it should not be making any difference but in your case it is, lets just go with it, stay away from bread, I agree with you it is working.

    Is it worth trying an elimination diet, yes, completely eliminate anything with wheat in it, other items to try maybe potato, and tomato's, they are both closly related.

    I really noticed the first  difference within say 4 hours, I was just in not as much pain in my joints, but please eat healthy otherwise.

    • ana50786
      ana50786 lyn1951

      Posted

      Hello Lyn,

      Thank you for sharing your story. I have a balanced diet, veg and meat, some bread, but not a lot and am quite active, drink very little alcohol and get good sleep. I don't think I can change my diet much more, but have considered looking into cutting more gluten. My symptoms are very hard to put a finger on as there is no pain or nausea and they are episodic rather than chronic. 

      I appreciate your advice greatly. Good health to you!

  • Beverley_01
    Beverley_01 ana50786

    Posted

    Hi ana,

    How is your diet? As Lyn says, sometimes simple changes can help. I'm guessing they have tested you for b12 and iron deficiency?

    I have something called positional cardiac arrhythmia which gives some palpitations and sometimes a rush will happen in my system. It won't show up on ECG as it's not a heart defect as such. It's nothing to worry about but it did used to scare me. Also, it just happens-like you on holiday, resting or with activity. I've had it 30 years now and am used to it and manage it ok.

    The stomach grumbling and cold behind ears etc I think could be linked to the fight/flight/freeze response. As you sense the change your body automatically gets ready to do something. It's an automatic response and we all have a slightly different response. You could check it out online.

    It is hard when there's no diagnosis of something that is concerning to you. I know it's easier said than done but try not to worry about it. I have something else called laberynthtitis that is linked to balance and I got from an ear infection. That has woken me at night and the effect is how it feels when you're on a rollercoaster. Waking up grabbing the bedsheets and feeling terrified is an awful experience but, there is nothing life threatening about it and nothing I can take to stop it. I've not had it in quite a while but again, the fight/flight/freeze kicks in and I feel dizzy and sick and shakey. I know in my case I at least have a word to describe my issue.

    Hope that helps

    Beverley

    • ana50786
      ana50786 Beverley_01

      Posted

      Hello Beverley,

      I have a balanced diet, veg and meat, some bread, but not a lot and am quite active, drink very little alcohol and get good sleep. They did all the blood tests for any deficiencies/vitamins/blood count and all looks normal.

      It's very interesting and helpful what you are telling me about positional cardiac arrhythmia however. I would not exclude the possibility at all. I know I have a mild arrhythmia since teenage-hood, but the extra beat is regulated if I exercise and heart rate increases, so was told it is not a threat. I have a referral to get a 24h strip in a couple of weeks to get this looked at again after so many years, which I am happy to go for. I also get pain in my ribs and around the sternum, something called costochondritis, again benign, but annoying. I am quite slender and my rib cage is quite small and go to massage therapy for my shoulders and upper back muscle tension, so what you are saying could make perfect sense.

      You say it does not come up on ECG, how did you get diagnosed?

      Also, the dizziness and shaking I have considered to be an effect of the episode where I can feel it happening again and I do probably get anxious and upset that it is, plus if it wakes me from my sleep at night I feel disoriented and annoyed anyway (I love my sleep). So again, your "flight/fight/freeze" response theory makes sense. 

      Thank you so much for your input! Good health to you!

    • Beverley_01
      Beverley_01 ana50786

      Posted

      Hi again ana,

      Yes that is interesting re the arrhythmia. Mine is, i was told, due to my heart being smaller than the cavity around it and this can lead to it being moved slightly and this triggers palpitations. Thus, an ECG doesn't show this as I can't make it happen. However, a 24 hour strip may help detect what is going on for you.

      Oh what a pain for you -Costochocondritis isn't pleasant either! a friend had this and it impacts on your life even though it is benign.

      Hope you get some relief soon and the results of the strip are helpful.

      Beverley

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