Posted , 6 users are following.
Past year I have had eye issues. First of all i do not wear glasses contacts. I had great vision until a year ago. My eyes started getting red first is was one eye my right. Started with being red foreign object sensitive to light blurry vision pain then as time went I was prescribed every kind of drop for eyes oral and topical. I have been to several specialists even Wilmer Eye in Maryland. Amniotic membrane a total of 5 on right eye puncta plugs. Blood work. Biopsy of my mouth for auto immune. Help. Im at wits end. I'm afraid I'm going to go blind in both eyes it flares up every couple of months and when it does it worse than the time before
0 likes, 54 replies
rocky31676 peaches2015
Posted
peaches2015 rocky31676
Posted
rocky31676 peaches2015
Posted
peaches2015 rocky31676
Posted
No. None. I have no clue I even changed my make up. But no luck. Very very frustrated it's fixing to flare up again and I will have to take steroids just so i can stand it. I do not like putting anything in my body that's not natural
margaret22116 peaches2015
Posted
Hi. That just sounds awful and yes does sound auto immune. Why a biopsy of your mouth? Don't get that. Were they looking for Sjrogren's?
I have an auto immune disease and had one episode of uveitus thankfully not repeated.
Did they give you steroid eye drops and are you seeing anyone in relation to this? I would suggest a good rheumatologist might be able to help you.
peaches2015 margaret22116
Posted
margaret22116 peaches2015
Posted
peaches2015 margaret22116
Posted
I go in 2 weeks to see rheumatoid Dr. Hopefully good news. I'm very frustrated
margaret22116 peaches2015
Posted
peaches2015 margaret22116
Posted
margaret22116 peaches2015
Posted
peaches2015 margaret22116
Posted
Yes. Unfortunately they don't work.
margaret22116
Posted
margaret22116 peaches2015
Posted
peaches2015 margaret22116
Posted
peaches2015
Posted
margaret22116 peaches2015
Posted
Novotears won't work for inflammation. You need steroid eye drops which you put in your eyes once an hour and gradually reduce the dose over a week. Did you have that?
peaches2015 margaret22116
Posted
margaret22116 peaches2015
Posted
peaches2015 margaret22116
Posted
margaret22116
Posted
Yes I read your earlier comment. Can you see the theumatologist sooner. Not saying that to worry you at all just think you'll feel better when you see someone else x
peaches2015 margaret22116
Posted
margaret22116 peaches2015
Posted
rocky31676 peaches2015
Posted
peaches2015 rocky31676
Posted
It was. It caused me to get corneal ulcer in my right eye. I have been to 2 specialists opthmalogists they have no idea why it's happening.
margaret22116 rocky31676
Posted
Yes that is true but inflammation in the eyes is an emergency. You can lose your vision if it isn't treated. I assume peaches was prescribed them by a specialist.
peaches2015 margaret22116
Posted
margaret22116 peaches2015
Posted
I know you must be worried. I just believe there will be an answer once you see the rheumatologist. There are other meds which can get your inflammation under control they are just the kind of meds a specialist needs to prescribe and monitor. Just try not to get too stressed as it won't help.
Peaches if I were you I would contact the Vasculitis Foundation in the US tell them about what's happening to you and ask their advice. They are really well informed and understand about inflammation in the eyes. They will advuse you what to do.
margaret22116 peaches2015
Posted
peaches2015 margaret22116
Posted
peaches2015 margaret22116
Posted
Yes ma'am I did. From all steroid drops
margaret22116 peaches2015
Posted
peaches2015 margaret22116
Posted
Yes. When it happens very painful. It hurts so bad. It' seems every flare up its getting worse and the duration is lasting longer
margaret22116
Posted
You don't get canker sores in your mouth ir anything?
peaches2015 margaret22116
Posted
margaret22116 peaches2015
Posted
peaches2015 margaret22116
Posted
margaret22116 peaches2015
Posted
peaches2015 margaret22116
Posted
margaret22116 peaches2015
Posted
Sure Peaches. I have Behcet's syndrome. Very similar to Sjogren's but with the added joy of ulceration.
There are so many auto immune diseases out there which people never know about until they or a loved one gets it
Happy to say I am currently in remission x
peaches2015 margaret22116
Posted
margaret22116 peaches2015
Posted
rocky31676 peaches2015
Posted
Vasculitis usually dont strike only in the eyes.
It will have skin, joint and abdominal sysmptoms, besides dry mouth.
peaches2015 rocky31676
Posted
Rocky. Please forgive me if I have a misspelled word I am having a flare up it just started. Yes it is only in my eyes. Nothing else. I'm very upset with this. The rheumatoid Dr can't get me in for 2 weeks so thats another 2,weeks I have to suffer. Im going to get a script of medrol oral. To take. Its a temporary fix but I have too.
margaret22116 rocky31676
Posted
rocky31676 margaret22116
Posted
There is also disorder affecting where the skin is inflammed.
The eye disorder when it gets inflammed is called infective conjuctivitis or allergic conjuctivitis.
rocky31676 peaches2015
Posted
margaret22116 rocky31676
Posted
rocky31676 margaret22116
Posted
Infectious - caused by known ocular and systemic pathogens.
Infiltrative - secondary to invasive neoplastic processes (sometimes referred to as masquerade syndromes). Intraocular lymphoma may present as a chronic uveitis in older patients. Intraocular tumours may also occasionally present with posterior uveitis.
Trauma - a common cause of anterior uveitis. Sympathetic ophthalmia (sometimes referred to as sympathetic ophthalmitis) is a rare form of bilateral panuveitis in response to trauma or surgery to one of the eyes. See also separate Sympathetic Ophthalmia article.
Iatrogenic - caused by surgery, inadvertent trauma, or medication (eg, rifabutin, cidofovir).
Inherited - secondary to metabolic or dystrophic disease.
Ischaemic - caused by impaired circulation.
Idiopathic - when evaluation has failed to find an underlying cause. Most uveitis, particularly anterior uveitis, is idiopathic.
Immunosuppression causes a particular risk of infection-related uveitis.
margaret22116 rocky31676
Posted
rocky31676 margaret22116
Posted
Did they explain why it was vasculitis?
I read that you had behcets ( a variable vessel vasculitis) in your previous message...
margaret22116 rocky31676
Posted
Yes that's why...because I was already at that point undergoing diagnostic tests for Behcet's which is, as you will know, a form of vasculitis. The uveitis presented with other prominent features of disease activity. I was quite unwell at that time. I have never had a reoccurence of it because I have been treated continually for Behcet's since then.
jane75220 peaches2015
Posted
Have u got an eye hospital locally?
Join this discussion or start a new one?
New discussion Reply