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Hi guys, for the last 5 years or so I've been having shingles/ herpes zoster outbreaks on my upper buttock of my left hand side approx every 3months sometimes more. I want to list my symptoms to be sure it is Shingles to be honest. Ive been in and out of NHS (UK) hospitals getting tested and prescribed Acyclovir 800mg which I used to take daily but found my outbreaks got worse when taken! It reccurs in the same area every time and has now causing some quite obvious scarring; I'm black British (Caribbean) so the scarring is darker not paler in my case. When i have an outbreak my left leg feels weak, as though somebody has a damp flannel lightly dragging across the surface of my skin with a burning/aching sensation under the skin in my joints and a very painful left groin. Sometimes the outbreak is smaller and easy to manage but this time (on day 2 of my current outbreak) the rash is rather large and my left groin gland is very swollen and painful. The rash is extremley itchy non stop and mildly burns when scratched or rubbed. Over the years my left leg feels as though I'm having more burning sensations and dull localised aches more often, is this PHN I don't know?! For the last 2 months ive had a dull ache in the left side of my groin that comes in short waves daily, the sensation of a weak ankle keeps happening but in my left shin and thigh and sometimes my left arm and wrist. The fatigue is sometimes very manageable but often very dominant (like this time!) I can sleep for hours and still feel tired, my body feels like lead and my left side aches, getting dizzy spells when standing up and moving around, occasionally short for breath too. Literally feels like waking up in the middle of the night and trying to run a marathon, that feeling of heaviness! Sometimes I'm very irritable and snappy and other times my mood is fine. My diet could be better so i take vitanin D, B12, Multivits, Biotin 1000mcg, ferobolin and vit C to help. I don't think it's related to shingles but I can't tolerate too much Gluten or dairy, my stomach bloats very quickly and I become constipated quite often so my diet suffers as I avoid meals and prefer snacks in fear of painful bloating (I will make changes on my diet!) this is probably un-related but I thought I may as well list it. I rarely get headaches which ive read people getting and I sleep for about 6 to 7 hours a night, I'm am quite active and exercise for about 4_5 hours per week on average. I've been to various Dr's and Hospitals but to no avail apart from Acyclovir which I found makes my outbreaks worse as I said, is there anybody who has found any holistic or alternative therapies thar work for them, preferably in the UK? Could anyone inform me if the sensations and weaknesses I feel in my left side is PHN by any chance, I'm so keen to get this out of my system but I doubt it's possible! Any help or tips are welcome people
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