Posted , 3 users are following.
Hopefully someone can help or provide suggestions how to beat this skin disease...Many thanks for reading this
* It all started in 2010, on my back with small white dots that turned red and then turned bigger brown with scales. They are NOT itchy (had read it is normally itchy). Saw my first dermatologist in 2010. He did not perform a biopsy, and said it looks like eczema. He prescribed CLOBEX (clobetasol propionate) lotion 0.05%. I used this steroid lotion for 1 week. All the red dots went away. However two weeks after they returned, with even more dots over an expanding area. I continued using the same steroid treatment, even though it was bad for me. I used the lotion for one week, then stopped.
I have never had a big patch like everyone else. They are always small dots but there were thousands of them... After 2-3 years of using CLOBEX, my insurance decided to not cover this medication. The price in the US is now $1200.00! How can this small bottle of steroid lotion cost as much as a diamond ring!
* I can't afford to buy this lotion anymore. I went back to see the same doctor. He gave me other steroid lotions but they didn't help since I didn't know that CLOBEX is the strongest one in the US market. Nothing less stronger can help my skin now. He sent me to do food allergy tests and skin patch tests. I am not allergic to anything. I actually tried to stop eating meat for 3 months. It didn't help. I stopped eating gluten for another 3 months. It didn't help. I tried Aveeno eczema lotion, Cetaphil body wash, organic shampoos and Dove soap, Gold Bond lotion, Calamine lotion with Zinc Oxide, Eucerin sensitive skin lotion, 100% organic baby detergents, Coconut oil, oatmeal bath, salt bath, etc. None of these treatments helped.
* All I have learned is that the red dots are related to stress, body being over-heated, fever, hot flush and PMS (it always started to flare up before my period started).
* I decided to change a doctor. My second dermatologist told me the same, that this looked like eczema. He suggested I soak myself in bleached water (YES, put a cup of bleach in the bath tub and soak in it for 15 mins). I tried. It didn't help. He also prescribed another steroid cream which didn't help.
* I decided to change to another doctor. This third doctor did a biopsy on my back. The pathology result came back. She said it is "subacute eczema". She prescribed me another steroid lotion, which didn't work.
* I decided to give up and use the generic version of Clobex, which is still very expensive (about $550.00).
In 2014, my stress level reached a new peak and I had bad flare-ups of these red dots everywhere on my back and my chest. It had never expanded to the chest before, and this only increased my stress. As I mentioned, once these dots found a new location, they will then always show up there during a recurrence. 70% of my body was now covered with dots. My doctor prescribed me a steroid pack (pills) to take for 1 week. I took them all for 1 week and all dots went away. My body was clear! Unfortunately, 1.5 weeks after I stopped the steroid pills, I had the worst breakout everywhere over more than 80% of my body.
* I went to see a new dermatologist. She did another biopsy. She said it is not eczema. It might have been incorrectly diagnosed. The pathology result came back and said it is PITYRIASIS ROSEA. This word is new to me. My doctor said she wants to try narrow band UVB ray. Now I am waiting for my first appointment
* While waiting, I tried to expose my skin (where the red dots are) in the sun for 30 mins in the morning for 1.5 week. However it has not improved and looks exactly the same.
Does anyone have the same symptom as me. I am running out of hope, but will try the UVB ray treatment and update.
Note: strange things are sweating and humid weather helped make my skin better..
0 likes, 4 replies