Reducing betahistine dosage

Good grief you are working? I had to give up work. Trying to get disability. I can imagine trying to work. You are a trooper

Hi  I am on 16mg three times a day, started on this dosage when first diagnosed in Nov 2014, havent reduced.   no alchohol, little cafeine, low sodium.  I deal with fullness, when I have,  by using beconase, this was not something I took advice on but seems to work for me. vestibular retraining exercise works for me.   Betahistines seems to work well for me.  

Do you use water peels Apo Hydro daily against fullness in ear?  You have to train yourself not to turn quickly. Same as, when you are going to shopping do not check products ups and down, only in row by row. If tinnitus making problems to your, white music or to some music that your like can help. Please, keep us posted about lowing dosage .. 

I'm on 16mg three times a day. Seems to be keeping me well mostly. Provided I remember to take them

I had several bad attacks, the first in June 2014. Initially I was given Stemetil and Buccastem but this only treated the symptoms. After second attack got referral to ENT consultant who started me on 16 mg tds betahistine. At that stage my tinnitus and hearing loss in L ear was pretty bad. I was referred on to an Aural Physiologist whom I saw in Nov 2014. The tinnitus and hearing loss had diminished significantly but I had 3 further attacks of severe vertigo with vommitting before I saw the AP (and the last attack was not aborted by Stemetil/Buccastem!) so he immediately tripled my dose to 48mg tds Betahistine. On review in late March 2015 there had been no further improvement in the tinnitus and hearing loss but I had remained fit otherwise with no more vertigo&vommitting. So I was advised that once I had been free of trouble for a clear 6 months I should come off betahistine gradually (with the caveat that if symptoms started to return I should go back to 48mg tds or even more if necessary) and am pleased to say I managed this without problems and have remained in remission since. So yes it was succesful - but I remain vigilant and always have the necessary drugs with me in case it returns!

Hope this helps.

Finally got brave enough to reduce my betahistine from 48mg x 3 times per day down to nothing by reducing 16mg per week. Over july, aug, first week sept 2016. Tinnitus got bad when i was down to nothing and I had a dizziness episode one evening that put me to bed for 3-4 hrs. Reminded me what it was like! Have gone back up to 16mg x 3 times per day with no further dizziness. Will stay at this level awhile and see how it goes.  I googled 'is betahistine available in USA' and a website article came up where someone says betahistine is available in USA if you have a prescription. Might be worth investigating. Sometimes difficult to know what things work with MD as with aural fullness and tinnitus you don't feel normal anymore. Hardly surprising it is difficult to set up tests for betahistine. Even sitting in a quiet room you have a noise in one of your ears. In noisy group situations I sometimes lose concentration and drift off and it becomes hard to focus. One of the reasons i like running is you are on your own and even in a group run you have such a great feeling of everyone being fit and healthy without having to concentrate on talking to people. A surprising bonus is my 16yr old son has started doing the runs with me. Not the training. Just the organised runs!! Although to be fair he couldn't run as slow as i do!! I think i saw on the UK MD website some MD people were doing a marathon and that inspired me. To do 10 or 12km. Will leave marathons for others.  Good luck and remember with MD it is about what works for you and there is no one simple solution.