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Reducing carbimazole female side effects

Posted , 2 users are following.

kellie69692
kellie69692

Hi all!

I am having a nightmare with my specialist and GP's. no one seems to know what on earth is going on and now all have gone radio silent on me!

I was told at an appointment 8 weeks ago completely out of the blue that it would be best for me to have my thyroid removed?! Seems drastic when I've only been on carbimazole since last September!

Since being on it I have suffered the most insane anxiety attacks. Now I cannot for sure say they are the cause as since a child I have been an anxiety sufferer on and off. But these attacks are debilitating!

I am also miserable! I'm usually one of those very annoying peppy people who's always bouncing off the walls (possibly because I had an overactive thyroid! Ha!) now I'm miserable, health obsessed, moody, shattered, and boring!!!

I've noticed over time a lack of interest in anything I used to love! For example working out! I used to work out before work and after! Now I want to cry at the thought! It's just too much effort! As is washing my hair some weeks (I do of course!)

I have a foggy head which I see is quite common and constipation which again is something I've had on/off through life but I'm sure has increased.

After the removal discussion I had to go for a scan. 6 weeks ago!!!! Along with bloods. Does anyone want to give me the results of these?? Absolutely not it seems!! I'm still in the dark!

I went I my GP at breaking point literally! Feeling like my life has gone from amazing to unbearable (I am dramatic apologies!) and she said if anything my thyroid now appeared to be under active but as she's not a specialist would not like to formally comment or advise!

I've called my specialist 3 times in 6 weeks, was told by his secretary my scan was on his desk 2 weeks ago and I'd hear soon. Still nothing!

So (sorry I am getting to the point!) I decided to try for myself reducing my carbimazole from 20mg to 10mg. Which is possibly too big a jump?

Well anyway since starting the meds I have at times forgotten to take a dose here and there (rarely) but every time I have I have started spotting?? Does this happen to anyone else?

So when this happens I panic that I'm doing damage and go back to 20mg, feel like crap, feel determined to reduce whilst waiting for advice, get spotting, panic and take 20mg again!

I have googled this side effect to death and can find no one else mentioning this??

I am having separate tests for this btw in case it isn't related but I know from missed doses it definitely seems to tie in!

Each time I have forgotten a dose do you know how I realise?? I suddenly feel great!! And can think clearly!

I have had a lot happen in the last year,y home was broken into while I was here! (Day time!) threat of redundancy at work, marital issues etc so I am aware my increased anxiety could be this.

But I'm sure it's these pills also!

I'm now considering reducing to 15mg instead of straight down to 10mg to see? As the Gp was convinced I'm at the underactive end of the scale now! But I'm scared to come off it! Which is why I never wanted to start it in the first place sad

When I reduce any palpitation or dizzy spell or spotting I convince myself is the reduction in meds so I panic and take my 2nd pill and never try to ride it out.

Any advice greatly appreciated! Sympathy also wink

I'm so unhappy sad and just want answers or opinions from anyone who has had a similar experience.

I have a GP appointment with one that does understand thyroids next Friday and will chase for scan results again in the week but really feel upset I have to!

0 likes, 2 replies

2 Replies

  • truecolors
    truecolors kellie69692

    Posted

    Hi Kellie, your condition seems serious! Perhaps you should seek opinion / consultation via another specialist. Also, I think you need to stick to the dosage as per your doctor's recommendation. I usually go for monthly checks on my thyroid levels and only reduce / increase dosage based on the actual results. It's strange that your doctors are keeping you in the dark on your results. If possible, you should switch to a more reliable and responsible doctor. sad

    Please don't lose hope and try your best to keep yourself happy! Anxiety and depression are aweful symptoms from thyroid problems. You can find ways to reduce them by starting with regular or daly light exercises like even just a 15-min stroll each day. Just try to start somewhere and do things you enjoy so you can worry less. 

    All the best to you and I hope you get more updates on Friday. Take care!!!

    • kellie69692
      kellie69692 truecolors

      Posted

      Thank you! I started back in the gym yesterday so hope I can keep it up! My new job long hours has affected things also on that front.

      I have changed drs sad it's like they don't know so they're just writing me off almost!

      I only considered reducing the dose as the dr that did see me said if anything my thyroid is now on the underactive end instead of over (which I was orIginally)

      I don't think they realise how stressful it is and 6 weeks for a scan result is ridiculous sad I told them how bad I was feeling sad

      I've never had depression until carbimazole and I'm sure my mum and husband are sick to death of hearing me complain about it all!x

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