Reducing Prednisone with Actemra

Posted , 16 users are following.

First, let me say how easy it is to reduce prednisone using Actemra instead of methotrexate. I have reduced from 20 mg to 10 in three weeks without fatigue or pain.  Previously, using methotrexate  and the dead slow method, it took me 6 months to reduce from 20 mg to 10. I was bumped back up from 10 to 20 because of possible GCA. My doctor wanted me to increase to 60 mg, but I just couldn't do it given the fact that it took me 6 months to get to 10 mg.  

The drawbacks are that it's very expensive.  My primary insurance covers most of it, but it has a $750. monthly co-pay, which fortunately my secondary insurance covers. And secondly, it is a shot.  Originally, I thought this was going to be awful, but it's so easy and it doesn't hurt a bit.  I do not like needles, but doing it myself gives me a sense of control which is actually quite affirming.  The first one is the scariest, after that it's a breeze.

I know that reducing from 10 mg to 0 is going to be more difficult, but I'll keep you posted.

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  • Posted

    An update on my Actemra experience. I'm down to 5.5 mg. Prednisone. The best news is that I'm now eligible for surgery to reconnect my colon. The surgeon wouldn't talk to me until I got under 7. Inflammation has been in the lower range of normal, and while many of my employees have been sick, I'm good so far.

    • Posted

      Susan, I'm so happy for you.  I hope the surgery goes well.  Best of luck.

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