reduction steriods feel ill
Posted , 12 users are following.
Hi all,
I am still very new to pmr, and could do with some advise.
This week is my second attempt to reduce steroids from 15mg to 12.5, four days I , I feel like I have been hit by a truck, tearful and shaking.
Will this pass? and will it take long.
Still in denial, so hate this.
Would appreciate any thoughts.
Julia
0 likes, 52 replies
Anniecurd julia85224
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julia85224 Anniecurd
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Thank you for your speedy reply.
Dr said I could only go back to 15 for one week, then I must start reducing to 12.5mg, and can't go back up again.
Easy for him to say.
EileenH julia85224
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julia85224 EileenH
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Thank you for you're reply.
The plan according to my rheumy (can't spell today either) was 15, 12.5 for two weeks, then 10 for six weeks, and reduce by 1 mg every six weeks.
Seems a very long road at the moment.
Tomorrow has got to better, these non- days I call them when I achieve nothing at all, are physically debilitating and mentally devastating, as I am sure we all feel at sometime.
Hope are well
Julia
EileenH julia85224
Posted
You are resting appropriately aren't you? The pred only manages the inflammation which is what causes the pain and stiffness. It doesn't touch the underlying autoimmune disorder, the fatigue and the intolerance to acute exercise is due to that. There you have to learn to pace yourself
https://patient.info/forums/discuss/pacing-in-chronic-illness-some-useful-links-that-explain-it-and-how-to-do-it-516000
and that will help you NOT to overdo it to the stage you feel ill and take days to recover. Overdoing it is even enough to trigger a flare in some people. It's a common complaint with all autoimmune disorders - ask anyone with rheumaoid arthritis! By overdoing it I probably mean the things you have done happily for years - like travelling, baby sitting, rushing to everyone's aid when they have a crisis. You now have a "new normal" and it will pay you to work out what it is and stick to it - because when you abuse PMR it bites back.
Anhaga julia85224
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julia85224 Anhaga
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Thank you for reassuring words.
Enforced slow down is something I have never considered, a little naive, thought I would work past 65, not 62 and feel un- employable and totally useless.
I know you are right, this condition does seem to be life changing, not dealing with it very well, this feeble woman I am today is so not me.
julia85224 EileenH
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It's this new normal can't seem to cope with, must sound like a real negative person.
So positive normally, adjusting to any condition is one thing, the slow road to recovery is something I am struggling with.
EileenH julia85224
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They probably do - and sit back and enjoy having an excuse not to do things!!! Mind you - I have no shame about not doing housework, I never did enjoy it!
Anhaga julia85224
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Anhaga EileenH
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julia85224 EileenH
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You're words and support are of great comfort to me.
I hate house work too.
Takecare
julia85224 Anhaga
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You sound like me, the week of steroids I decorated the kitchen, and sorted things out.
Dug out boarders three weeks ago and that was it, have become a " blob" since then who does black ink colouring books.
So need to be better and soon.
Takecare
EileenH julia85224
Posted
No - that isn't the attitude you need to cultivate. To be honest - what you did "on steroids" is probably what has caused half the trouble (at least, probably most of it). We warn everyone who arrives here before pred - DON'T dive in and do everything you haven't been able to do for weeks because it will bite back. And it has hasn't it?
One lady on another forum decided at one point - after fighting hard to do everything she wanted - she was going to be a "Precious Princess" - and the difference to her quality of life was astounding. She got off pred - for several months before it came back. This time round she has a totally different attitude, takes the dose of pred that keeps her able to do things and avoids the things she knows will cause trouble.
It's about acceptance - that isn't "giving in", it is being realistic and graceful about it all. And once you get there you will be much happier.
julia85224 EileenH
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Graceful, Hmn will try harder tomorrow.
Just want me back, I guess it will be a more paced, sedate me, don't like it.
But I may become happier in the long run.
Thanks again.
Anhaga julia85224
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Silver49 Anhaga
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Anhaga Silver49
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Silver49 Anhaga
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Anhaga Silver49
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