Regular recurring bouts of benign Ventricular Ectopics

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I have been having the above VE's for about 3 years.Had all the investigations etc and been seen by 2 cardiologists.  Result = no treatment necessary (apart from beta blockers  and other pills for high blood pressure) The ectopics are very frequent (Bigeminy, trigeminy)and I feel so awful,almost ill whilst having them. I have been keeping a diary of  when they happen. NOW.....I have them over a period of about a month THEN they disappear completely,THEN they start up again for about another 4 weeks. It HAS to be about body chemistry  ??? I do wish the cardiologists would explain. Its HELL whilst happening but I'm grateful when it stops.

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  • Posted

    Hi Linda I am 55 year old woman had these off and on since age 19 but last April back with a vengence every other beat was ectopic and had to stop workin g in November due to severity so now cant walk climb stairs and confined to the settee 24/7 been seeing a cardiologist for 35 years had an ablation 17 years ago but no sucess, recently seen an electrophysiologist who said I had RVOT had an ablation 3 months ago with some improvement but procedure was stopped as I was in a lot of discomfort I now go back in on Monday for a repeat ablation under a general which I am worried about I have tried all kinds of medication and magnesium supplements and diets nothing has worked for me so this is a last resort, I will let you know how I get on but I couldnt live with this disability, has anyone had sucess with an ablation under a general anaesetic?
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    • Posted

      I had an ablation a couple of weeks ago, I informed the Cardiologist that I preferred the sensation of my leg hanging off when I had has a motorcycle accident than said ablation that took an hour and a half. Not sure I could ever go through that again so do let us know how it goes under general anaesetic.

      Whilst I was enduring the horrible affair I was thinking, "one day they will find a way to do this with the parient uncountious and people will look back with horror on how its done today". I had no idea a couple of weeks ago that it could be done under General, I thought the patient had to be fully concious in order to stress the heart to the extent they can see it at its worst.

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    • Posted

      All the best with your ablation!  It will be fine under a general anaesthetic.  I have had one and that should be the only way to do them as mine took 4 hours.  Wonderful and didn't know a thing!  I am hopeful yours will be successful.  Mine was for atrial fibrillation.  The electrophysiologists are brilliant,

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    • Posted

      Hi Ingrid. I have never had ablation as the cardiologist never recommended it. Hope you have more success. When the ectopics are in full flow I feel horrible but how can you explain to friends? I just want to lie down and keep away from everyone. They think you are a hypochondriac  !!
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  • Posted

    Dear Linda

    Sorry to hear about your ectopics.

    I have been having irregular heartbeat for 5 years and only just recently it's been given a name bigeminy discovered by an ambulance crew I called in an emergency because my rate had gone down to low thirties per minute and irregular so some of the gaps felt like forever.

    Cardiologist thought treating with beta blockers a good idea but they slow my heart down even more.

    I feel unwell all the time had to give up full time work and dont know what to do.

    Although we are told not to worry about them its hard not to. I'm told they are not life threatening but they are certainly life debilitating.

    Good luck with any treatment you may get in the future.

    Gap

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    • Posted

      Hullo Gap,

                     You are SO right...these frequent ectopics are debilitating.Tho the Drs say they are not life threatening I feel they MUST be as I feel so ill and breathless with them. They are wearing me down. At least I am retired but it must be awful to be off sick from work and not know if you will ever get back.

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  • Posted

    I have them constantly too on and off for days at a time.  I feel it is gut related but cant' quite find the answer.  My cardiologist said gut and heart are directly related and he has a lot of patients with the same problem.  Apart from trialling different foods to eliminate troublesome foods I am at a loss too.  Dairy foods have been a huge factor and it is lots better since stopping those.  Perhaps this will help you. All the best.

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    • Posted

      Dear Annie,

                        I think we are all different. For years I have suffered with bouts of anxiety and have taken pills for these.  I am of the mind that the background of anxiety is causing the ectopics. Yes, its the same nerve that serves the stomach and the heart. Oh for a cure.

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