Relationship with partner
Posted , 12 users are following.
I know its personnel thing but how do you all manage or continue to have a sexual relationship with this condition. Been with my husband over 35 years always had a great sex life. Gradually became quite rare over last year as LS has progressed. Hes great and very understanding. Its being quite uncomfortable that you cant then feeling great a few days but rather not as your worried it will flare again. I think im possibly going thru the motions of menopause too as my libido is zero, night sweats etc Seeing GP next week but dont know where to start! Any advise please
0 likes, 48 replies
frankie68 Su02
Posted
Hi su02, you are not alone ! I am struggling with this issue too. I was diagnosed a year ago and although my symptons don't seem as bad as others from reading the posts on the forum it has changed my life and outlook. I am bumbling along with the programme of dermovate and moisturiser after a consultation at vulval clinic. I go back in October and they may do biopsy. Regards sex life, well its pretty non existant at the moment. I have never had a high sexdrive however have always enjoyed it when we do! My husband is very understanding over this and I do make sure he has pleasure when he needs it! We don't have penetrive sex and havent for a long time, before the L S anyway. Oral for me has been much more satisfying but there is the problem! So much cream being applied all the time it just makes me feel awkward about it and takes the spontaneity out of it. Its getting me down and the thought that there is no end to it is so depressing. I'm approaching my 70th birthday and I feel any good life is slipping away. Sorry to sound so defeated! I am very lucky I have a great husband.
It has been good to write all this down !
Su02 frankie68
Posted
Bless you frankie. We are lucky to have such unerstanding husbands. But yes it does seem a constant grind keeping it all together indeed at times. Im 54 will just have to try other things haha!
jackie15098 Su02
Posted
I was diagnosed with this three months ago. It was hell. Once you are treated with medication things should start to feel better. Is your gynecologist giving you the cream to put on every day?
Su02 jackie15098
Posted
I was diagnosed last August initially course of four months every day for one month, every other day one month then twice a week. I had a re check in Feb all seemed much better but last few months cants seem to manage it constantly. I do jave an open app which i can instigate within 12 months so i may do that. I think im starting to go thru menopause so i assume that may be contributing
Su02
Posted
Thankyou Karen. Glad to hear its going well as can for you. what supplements do you take? Ive been taking D3, magnesium.
jackie15098 Su02
Posted
Have the doctor give you the clob ointment, not the cream
Su02 jackie15098
Posted
Yes i have the ointment BETHAMETHASONE VALERATE 0.1%
Debbz1989 Su02
Posted
You use Bethamethasone Valerate on your lady parts? I have that ointment for my eczema... but the doctor gave me Clob to put on my vulva/anal area, etc..
karen23320 Su02
Posted
HI SU02- As per auto immune protocol by NB I take:
Daily:
Prebiotic
Vit D3 5,000ui
Vit K2 100mcg
Vit A 10,000 iu
Boron 3 mg
Selenium 200mcg
vitamin c 3000 mg
Tumeric 450 mg
Monolaurin 600 mg ( I'm prone to MONO, had it 3x)
Zinc 50 mg
Glutamine 500 mg
Vitamin B12 1000 mcg
Apple cider tabs 600 mg
Omega-3 450 mg
D- Mannose 600mg
Grapefruit seed 125 mg
Aloe vera juice 4 oz
Multi vitamin - Ultra formula
2 per day
Nighttime:
Magnesium 800mg
Calcium 1000 mg
I eat very little sugar, limit my whole grains to 1x per day and use coconut milk in my coffee. I eat dairy 1-2 x a week.
Su02 Debbz1989
Posted
In all respect that what i was given and all i know! I see clob what is it?
Su02 karen23320
Posted
THANKS KAREN
karen23320 Su02
Posted
CLOB is short for CLOBETOSOL, a steroid that is 8,000x more potent than hydrocortisone. It is what is usually prescribed in USA for LS.
frankie68 karen23320
Posted
Karen you are very dedicated if you take all of those suppliments. Have they made a big diffrence? I don't think I would be contentious enough to stick to it.
Good for you if it works
Debbz1989 Su02
Posted
Hi Su - I was just curious because I hadn't heard of anyone using that or LS yet. 😃 The "clob" is Clobetasol Propionate... it's a steroid cream or ointment. It's what my doctor prescribed - and what I've heard a lot of people are prescribed when they have LS.
Su02 Debbz1989
Posted
HI debbz im in the UK it is a steroid what i use. As far as im aware clob isnt offered here but someone may big to differ? Would be interested to know
Su02 Debbz1989
Posted
Also from what ive read betnovate is very mild only 0.1%
jackie15098 Su02
Posted
We Could not survive with out that cream having LS.
kris02809 karen23320
Posted
Do you feel like the supplements help keep you from having flare ups? Ive been slowly adding some in. Haven't been doing it long enough to tell if they are helping yet. I'm also working on my diet now as well ( cutting the sugar and watching my gluten intake) its not be as easy as I would like. My husband doesnt get that I need to change my eating habits and wants to eat like we always have before I was diagnosed. Thanks for posting what all you take.
karen23320 kris02809
Posted
KRIS- I definetely feel like the supplements help, I have not had a flare- up in 8 months, my skin is healed, I have no pain, no itch, and I will not let up on what I am doing to keep it at bay.
karen23320 frankie68
Posted
frankie- I am dedicated to taking them and changing my diet. I have not had any symptoms in 8 months, no further deterioration and I want to keep it that way!