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Relief from Allodynia: is there a solution ?

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jimbourg8
jimbourg8

I've been suffering from allodynia for 7 years now. It seems to be a kind of neuropathic pain.  There seems to be no non-drug solution. My neurologist told me that "it is just something in the Brain" and there is no treatment except for medications.  He said I had RLS, but my personal perception of this is that he is incorrect.  My perception is that it is : Allodynia (extreme sensitivity to light touch)  The main symptom is a burning  pain-like feeling on my pressure points i.e. elbows, hands, calves, and buttocks (while sitting in a chair quietly. ) As soon as I lift up or change position from resting on those pressure points....the burning sensation is gone.  These are the symptoms of allodynia....extreme sensitivity to very light touch....it's an almost painful sensation.... I had been on gabapentin for 4 years with minimal relief.  The side effects were much worse than the allodynia it's self !  I would be enormously surprised if anybody out there has experienced relief in any way (besides meds)......this condition is apparently permanent and I guess I just have to live with it. 

0 likes, 3 replies

3 Replies

  • pippa58442
    pippa58442 jimbourg8

    Posted

    You are far better coming off gabapentin and trying to learn to live with the pain since side effects were worse than your symptoms.  I have neuropathy due to injuries and I refused low dose antidepressants because I felt medication side effects would be worse than the neuralgia.  My pain comes and goes and I have decided to accept my flare ups.
    • marie33
      marie33 pippa58442

      Posted

      Pippa did you ever try gabapentin or Lyrica? I also have small fiber neuropathy but so far they are saying its idiopathic (unknown cause). Its been seven years. I get every neuropathic symptom out there except for numbness.  I take 250 mgs of lyrica but i do not feel it helps with my pain, I want to try and go off lyrica but I have been taking it for 4 years and know it wont be easy!  I often wonder if I can live with the pain without the meds. Does your pain actually go? what type of neuropathy do you suffer with?
    • pippa58442
      pippa58442 marie33

      Posted

      I decided not try any medication because I feel that the side effects would make my symptoms worse. My neuropathy comes and goes particularly during cold, damp weather but hot weather clears it up. It started after a fall on my elbow and a badly done blood test.  The neuropathy in both arms used to be constant. My doctor simply told me I have nerve pain. 

      The initial days and months of the pain were tough to deal with, but once I started to get pain remissions, I started to learn to live with it. If your meds don't help with the pain, you probably would be better to come off them and try and live with it. is no point in taking meds that don't benefit you. 

      I am a writer and I have a great social life and this is far more important than my pain.  I think having lots of distractions from it really helps.

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