Relief from homemade cream

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I have had LS for 6 years now. For the first 5 yrs I was using a variety of steroid creams, with some success. However last year I noticed that some areas of skin were becoming very fragile so made the decision to stop the steroid creams & explore some 'alternative' approaches. After trying different lotions & potions I have found something that works really well for me and wanted to share. I make up a cream using 1 cup coconut oil, 1/4 cup Shea butter, 1/4 cup beeswax. Melt these in a glass bowl over hot water. Once they have melted add 1tbs of zinc oxide powder, 15 drops lavender, 8 drops lemongrass, 5 drops tea tree, 3 drops geranium, 3 drops patchouli, 3 drops chamomile & whisk till mixed well. I use this daily. I also use Epsom salt baths if having a 'flare up'. Since using this my condition is bearable without the use of steroids.

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12 Replies

  • Posted

    I believe it is important to follow medical advice because the possibility of cancer can follow LS if not treated. I think steroid is the best treatment. I think you should discuss with a specialist in LS about your condition and future treatment.
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    • Posted

      Thanks Mary, I agree. I have finally got my GP to refer me to a specialist & am awaiting the appointment. I will of course continue to seek medical examinations to check changes. I just wanted to share something that has helped me get some relief & might help someone else.

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  • Posted

    Thanks for posting, its interesting to see what solves it for other people.    I personally think the steroid ointments probably do more harm than good, so am happy not to use them unless absolutely necessary.      

     Xx 

     

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    • Posted

      Me too, I will of course use them if the need arises but at this time I am happy to keep trying alternatives.
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  • Posted

    So good of you to find a personal solution to keep LS in check.  I too experienced that the steroid cream can be used to a certain extend, but not forever.  Since my baking soda, borax, coconut oil treatment I haven't used the steroid ointment much.  Only on rare occasions did I need just a very small amount to keep things under control.

    ?Question:  Do you also follow a certain diet?  (Mine is: no added sugar, no alcohol, no caffeine, no gluten and limited dairy.  Homecooked meals from fresh products.)

    ?And yes:  Of course regular check ups with my doctor.  Who says: keep doing what you're doing.  So far so good.

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    • Posted

      I know I should address my diet, I could do with losing weight😐 The one thing I have noticed that does affect my LS is red wine. But I also suspect that sugar is also another trigger for me, but I am a sad addict!!

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    • Posted

      Hi I've just joined the group. I'm await my diagnosis and

      have just had a biopsy. I was given steroid cream by the doctor

      But it made my skin works r. I'm inter in your natural solution. How

      Do you make it? E.g. what's the ratio?

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  • Posted

    Hi , I'm still trying to figure out what's going on - really didn't know any thing was wrong since sex has been part of my life for several years and I didn't exhibit severe symptoms until a few months ago - only go to Gyn doc once a year - since he never mentioned the possibility of this condition I thought it was normal process. So made an emergency appt to see a doc after discovering bloody blister and sever itching- he looked said u have LS - nothing u can do about - here is some cream - see ya !!!! ?? My question today is " why are we applying the steroid ointment?" I started applying the ointment to the blisters and itchy spots only - thought ok fixed. Then next couple of appt I was told to rub small amount to certain areas - I guess the idea was to prevent scarring and shrinkage of tissue to maintain flexibility of tissue for urination and defecation. What about " if it hurts don't do it" - is the steroid necessary if u keep the skin moist ? I have seen remarkable changes from the prednisone- inflammation gone.

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    • Posted

      Should have said haven't had sex for several years it was too painful- doctor prescribed estreace cream - spell ck - sorry

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    • Posted

      I kind have had the same response from my doctor all those years ago since then it's just been cream after cream. The go hasn't even been interested in checking it's progress. This led to me exploring alternatives & insisting on a referral to get checked by a specialist. Whilst I can keep this under control with other methods I will avoid steroid creams. Everyone has to find their own way but I think it's good to share what works for us it may help someone else. The last gp I saw was a woman and she said if she developed it she would try to control with alternative therapies rather than steroids

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  • Posted

    Wow how did you come up with this concoction? The only thing I feel we're getting a flare-up is itching and it's hardly ever. Or I will feel like I'm cut down there

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    • Posted

      A little research on the different properties of the ingredients. The base of coconut oil, beeswax, shea butter & zinc oxide is what I have used previously to make nappy rash cream for my grandchildren. I just used different essential oils. The good thing about the home made cream is you can use it as often as you like

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