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Relondrate Infusions causing thickening to rib bone

Posted , 6 users are following.

elizabeth85938
elizabeth85938

A quick recap to those who may remember me from a few years back (2015) when I first was diagnosed with Osteoporosis. I was on HRT until I was 60, am now 69. My lower vertebra had fractured and this caused a collapse (lost 3" in height) and the associated pain and sciatica. I was unable to take Fosomax etc. orally and cannot take Calcium Vit D3 because it causes diarrhea. I did change my diet to a Calcium rich one and took Vit K2. Because of other health issues I have struggled to do any weight bearing exercise and other recommended things suggested to me here. I have never been told my T scores as my Rheumatologist says in my case they are meaningless to me. He insisted that I try yearly Relondrate Infusions and played down any side effects except a flu like feeling for a few days afterwards. I had the first one end September 2017 and a further one November 2018. I had Breast Cancer diagnosed April in 2017 and had a left mastectomy but was too unwell to undergo Chemotherapy. Soon after this I started to suffer severe digestive issues, had a Flexible Sigmoidoscopy which found several Diverticula but this was not the cause of my constant diarrhea, gas, bloating and pain. So I was put on the FODMAP diet, after which a complete exclusion diet etc I ended up with very few foods that I could tolerate. No veggies at all, only grapes and oranges; potatoes, white rice and bread and very lean protein I was ok with. I am also lactose intolerant but use Arla Lactofree milk and cheese.. I have lost 42lbs in weight since October 2018. Now with very little fibre in my diet I suffer severe constipation. I am seeing a Dietitian about this end of February.

My question is this: Have any members of this Forum had a problem with digestive issues and bone thickening whilst on Relondrate Infusions? Under my Mastectomy scar, I recently felt my rib bone was thickening and knarly. I reported this to my Oncologist last week and now have an urgent bone CT Scan tomorrow. Obviously a secondary Cancer is possible (lack of Chemo) but it has occurred to me that the Infusions may be causing this. I would be most grateful to hear from any member who has been on Relondrate Infusions who may have developed either or both digestive problems or bone thickening. Thank you.

1 like, 4 replies

4 Replies

  • amkoffee
    amkoffee elizabeth85938

    Posted

    I think you're symptoms sound like gastritis . there are many things that can cause gastritis. But some typical things that are hard to consume is dairy, fried foods are killer for most people, raw vegetables are difficult for the stomach to handle any kind of bean for instance hummus, I was really bummed about the hummus. there are many others but they are actually something you're going to have to figure out for your body. you might want to request an endoscope. with that they can determine not only gastritis but also ulcers too.. I take 4 milligrams of Zofran for my nausea. cancer patients that are taking chemo take 8mg of this. I hope you get this figured out. Please keep us posted.

  • naomi95418
    naomi95418 elizabeth85938

    Posted

    Hi Elizabeth,

    Sorry to hear about you issues.

    Was their any reason you came off HRT at 60?

    I'm on HRT for osteoporosis, and apparantly it will be a life long thing I have to do. I use the HRT gel, and also the male hormone testosterone. I did have to increase the squirts of gel I use and had to have a mirena coil fitted to give me progesterone as I didn't want a hysterectomy unless I needed it.

    The HRT has helped my bone density so thought you would like to know

    Sorry it doesn't answer your question

    Best wishes

    Naomi

    • elizabeth85938
      elizabeth85938 naomi95418

      Posted

      Hi Naomi

      I was forced off HRT, literally. My female GP refused to write any more scripts for me and put a flag on my records saying NOT TO BE GIVEN. I had a hysterectomy aged 34, went through the Menopause at 38/40, was put on HRT and blossomed. Then taken off at 60, went through the menopause again - gee, thanks! Now on Anastrazole after Breast Cancer to strip my body of all oestrogen so am now going through the menopause for a 3rd time. The day and night sweats are horrendous. Stay on it as long as you can and live a happy life!

      Thanks for replying though,

      Liz

  • naomi95418
    naomi95418 elizabeth85938

    Posted

    Hi Liz

    Thanks so much for your reply

    MY GP's were shocked the specialist had put me on HRT as it was the time in 2010 when NICE had said women shouldn't be on it. However Nice have changed their minds.

    I'm sure all drugs have side effects but it was a gynaecologist I went to see who was the vice president of the Osteoporosis Society, who put me on it. He was on loose women, saying all women should be on HRT.

    I do wish you well, and so sorry I can't be more helpful

    Best wishes

    Naomi

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