REM Disorder\Night Terrors

Hi

I am looking for advice on how other people live with REM disorder without taking a bucket load of drugs

Brief History of my sleep issues

Having been diagnosed with Sleep Apnea, RLS and REM disorder back in 2013 I am yet to find anything useful that manages the latter.

I use a CPAP machine to keep the Sleep Apnea under control.

I've had at least four Polysomnography studies over the years however because you are hooked up to various devices it is very difficult to sleep and hence provide valuable information. In fact I have found them a complete waste of time.

I've been to see various experts over the years and the only apparent treatment for REM disorder is to be prescribed various drugs which only seem to make the issue worse and you wake up with a hangover every day. This makes functioning the next day problematic to say the least. Some of the drugs I have tried to date include pregabalin, bupropion, temazepam, zopiclone, mirtazapine, oxycodone......

Where I am now

I've had to move into the spare room because my wife became too scared by my regular attacks. In fact she was too scared to go to sleep.

Night terrors continue to plague my life which means restful sleep is very hard to come by and once awake I've come to the conclusion that why do I want to go back to sleep and have another nightmare.

The nightmares are generally me having to fend off attacks from people unknown, where I kick and punch until I've hit something which brings the attacks to an end. I often scream, shout, swear and have occasionally fallen out of bed.

Has anyone else experienced the above, know what the triggers are and how do they live with this?

Thanks

0 likes, 0 replies