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Hi i was diagnosed in 1995 with crohns at the age of 17, was very unwell for a few years to the extent of having to give up A levels and dropping to 6 stone. I had surgery in 1999 to remove about a third of my colon, was on meds for several years. I have gone on to have 3 children the eldest being 16 and i have mainly been flare free for over 12 years......i do obviously have the odd day when my tummy isnt right and i am on the loo alot and my bowel movements are never solid. I havnt taken any meds in about 8-9 years. BUT i do wonder if i am in remission of sorts?? does anyone else have a similar story?? its always there wondering if its going to come back with a vengeance, I feel extremely lucky to not have the flares i always imagined i would have all my life.......

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    Hello Kataly 

    My Crohn's story is not like yours at all as I have only been diagnosed just under 2 years. However, since I started taking my medication I have been in remission. I also have the odd day when I am unwell but I would be too scared to come off of my medication. 

    Maybe it would be worth having a mild medication like i am (salofalk - mesalazine) which just helps to make me feel less stressed as I feel it helps me feel okay. 

    I would say you are in remission as if you aren't you know about it! When I was not in remission I was in bed straight for 2 months and lost over a stone in 2 weeks! 


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    Hi, I was diagnosed with ulcerative colitis 5 years ago and I was very bad with it.I spent 6 months in bed and lost over half my body weight.  My consultant put me on steriods and Pentasa.  Didn't keep me on the steriods for too long but put me azathioprine and Pentasa.  Was on the azathioprine for 4 years and have just left that off in January.  I was so frightened in case I suffered again, but touch wood its now June and I have remained good.  I have my rough days but I just check on what I have eaten and also I am staying away from stress which I think are two main factors of the illness.  I am still on Pentasa but compared to what I was on I feel I am doing well.  I would suggest not to sit and worry and enjoy your freedom.  If its going to come back it will and then just deal with it when it happens.  STAY POSITIVE !!!!  Good luck.
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    Hi Kataly   I had surgery for Crohn's 31+ years ago, a big shock at the time especially as I was told I'd probably need surgery again.  I had very little option then regarding medication as I am allergic to Sulfasalazine.

    I worked hard at getting myself healthy, I made my own yogurt each day for nearly a year.  Long before pro-biotics were even thought of.  To the surprise of my consutant at the time, my weight bounced back plus more. I am still on the loo quite often, that will never change.  I have B12 injections every three months but I no longer see a consultant.  I'm very careful to avoid any foods that upset me and if we're away from home I really freak out if I think kitchens aren't clean (that includes posh hotels, hubby disowns me).

    I do worry about the Crohn's flaring, but I'm pain free, my health isn't too bad, I've brought up my family and worked full time.  I've recently become very anxious in case my luck is running out because I've had all sorts of niggling things wrong health-wise, but fingers-crossed I seem to be settling again.

    I so hope you continue as you're going, I know if medication had been on offer all those years ago I would have taken it, but looking back the only thing it would have given me was a little bit of peace of mind.


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    Do you make your own bread? Silly question, I know, bakeries no longer soak their flour for 2 days and leave the dough to rise for 1. There is something called phytate in the shell of grain (bran) and seeds. It is poisonous to insects and irritates the lining of human 's stomach. If it is not broken down through the soaking of grain and beans or processed flour (phytate reduced by 50%), then letting the dough rise 1 full day ( up to 50% more reduced), otherwise the phytate attracts and binds to all other minerals and vitamins and is eliminated through stool. Your body is not getting the nutrients it needs to begin with. With less intestine to absorb nutrients anyways this is extremely detrimental to your health. Step 1: make your own bread using ancient technique to prepare grain to make bread. Red meat is important to a diet, BUT, you can have only once a month. It must be ground and only a small amount. 1/2 a hamburger every other week. Fish is your new friend. Fish, fish, fish. When you get used to soaking your grain/flour you can then make your own pasta. You should see a difference and at the end of two weeks it will be huge. Soak your rice (Basmatie) overnight too. If you cannot possibly make your own bread start with commercial sourdough bread. It isn't cheap but at least you can eat a tuna fish sandwich without any bloating. Good luck.
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