Remission periods
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Hi all, I have a question for anyone who can help me - another one or two lol.
does anyone go through periods of remission? It is crazy but yesterday I did not have my dizziness. I still have nerve tingling at the base of my skull and in my right shoulder blade. It is always there. I am worried that I have a repetitive strain problem in my neck. Otherwise why do I feel so good today but other days I feel terrible. I am so scared of having surgery and it not being the cause. I am having a cine MRI tonight so maybe that will confirm things for me if my csf is blocked or restricted. Helen, I am still stressing! Has anyone's symptoms worsened re dizziness and pressure in public places? Thanks guys for your support and input
0 likes, 13 replies
b2wc97455 alana17881
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alana17881 b2wc97455
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Linleel alana17881
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hayleybell alana17881
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Then my symptoms would come back with a vengeance! Eventually my symptoms would last longer & I would have shorter periods of being free of symptoms. But, in saying that, everyone is different.
it is tough making the decision to have the surgery, be sure you are well informed.
good luck to you
alana17881 hayleybell
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hayleybell alana17881
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I am much better since my op & so glad I had it done, despite all the worry.
Do you have a syrinx?
alana17881 hayleybell
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hayleybell alana17881
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neck & shoulder pain is very common for Chiari patients. My pain was all in my head, eyes & I balance difficulties, (until a tanker Lorry drove into the back of my car when I was on my way to my pre-op appointment!!)
That messed my neck & shoulder up!
alana17881 hayleybell
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hayleybell alana17881
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As the years went by my symptoms would come & go. I was put on different meds which caused there own bunch of problems.
I was told I had migraine & tension headaches.
Then my 'pressure' headaches started.....
They would come in a kind of wave type pain, much like a contraction. Reaching a maximum intensity. I would hold my head as the pain was terrible. I would get dizzy too and have to hold onto something for fear of falling over. The more of these I had the worse they got.
Bending down, standing up and laughing were the worst for me. But also coughing, sneezing etc, in the end even yawning would cause them.
I would also also have a constant standard type headache too at times. Then, I would have calm symptom-free time, bliss, then, they would return! Horrid.
All gone now though, feeling very fortunate!
Does that sound similar for you? Everyone seems different to a certain extent.
alana17881 hayleybell
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hayleybell alana17881
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loopytindraws alana17881
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I was diagnosed last year after a serious fall when I broke both arms, I took 2 MR scans but I was diagnosed with an Arnold Chiari Maformation type 2.
I had nystagmus, balance probems, tinitus and msel spasms, not too many head aches thank god. I had forum magnum decompression surgery last june which helped a lot. Many of my syptoms were reduced and I made a good recovery I was abe to go back to work after 5 months.
Since Christmas my symptoms have started to come back and I am now also having neck and head pain bugger. I am not sure about remission but I definatley have good and bad days. On a bad day I am very dizzy and ubalanced but on a good day I feel good and my symptoms are very slight.
Hope this helps.
I am waiting to heaar from my surgeon to see if this is normal or whether I need firther treatment. My guess is that I will just have to learn how to live with it and hope it does not get much worse.
Liz