Posted , 5 users are following.
19 months on from triple prolapse laparoscopic surgery, many many uti's, doctor now suggesting removal of mesh ( called bandelettes here in France) is there anyone who has had this procedure?
0 likes, 15 replies
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ED2018 frances78506
Posted
Hi Frances - this is very sad. I do not have specific experience - but here in the states, there is a featured physician group that specializes in this type of thing (mesh removal) and they have also appeared on national television due to their skills in removing mesh. Many other US docs refer to them due to their level of skill according to what I have read and seen on TV. Their name is Miklos and Moore - they have offices in Atlanta (recently moved to Alpharetta, GA/US), Beverly Hills, CA/US and now also Dubai. I learned a LOT from their website. Unfortunately, I didn’t know about them BEFORE my surgery...otherwise I would likely have not allowed my physician to use the TOT sling as part of my A&P repair 28 days ago. I am very scared as I have experienced some significant groin pain that travels down my inner thighs (relates to obturator muscles - what I now know is a risk for this sgy). I hope my case will turn out to be one that they describe as transient pain and not permanent. I wish you the best as you move forward - just please make sure you find someone who is considered an expert in removal as they say that is very important. Kind Regards.
frances78506 ED2018
Posted
pamela1937 frances78506
Posted
No but I'm interested to hear this, I had the same procedure last October and have had continual UTI's too. I asked my doctor if she thought it was the operation that was causing them and she said she didn't think so and just prescribed antibiotics, three don't work for me now and I am getting fed up of it all, maybe I should ask to see my consultant next time I get one and ask if it is the mesh. I hope all goes well for you with the removal.
frances78506 pamela1937
Posted
My uti's always seem to be after sex, which is frustrating for me and my husband.
I have been taking D-mannose daily and when I felt the infection start upped the dose to 3 a day. Worked like a miracle for a few days. Urine test did not show any ecoli infection. So looks like it did what it is supposed to do, but think the D-mannose has irritated my intestines. Anyway next option is to see the surgeon and see what he has to say. Don't really want to be on antibiotics for ever! Worried about mesh removal and further complications too.
As
welshgirl67 frances78506
Posted
Frances can I ask are you post menopause? If you have vaginal dryness this can cause uti as the skin in vagina is so thin. I use yess lubrication it's all organic and pure x
welshgirl67 frances78506
Posted
I'm so sorry to hear your having so much pain with this mesh.
Here in the UK only a handful can use mesh as women have had awful symptoms of permanent nerve damage and end up in a wheelchair.. I personally would not allow this stuff in my body full stop. Please get referred hun to a specialist who can remove this awful stuff with skill and professionalism. I pray that you heal well and find strength to get this sorted. Do you research and sending you sincere hugs😘😘
peta46390 welshgirl67
Posted
How your post op check go??
Peta
frances78506 welshgirl67
Posted
Thank you. Don't know if removing mesh might cause more problems. Will know more when I speak to the surgeon.
welshgirl67 frances78506
Posted
You will need a specialist surgeon who has extensive expertise in removal. This is why a lot of these surgeries have problem because the consultants haven't got the experience.. I'm not saying your don't but in uk only a handful can use this in ops. I think it's best to remove it than deal with the awful effects this has in the body.have you researched mesh erosion hun. It's when the mesh poles through the vagina. X
welshgirl67
Posted
I pray that you have a speedy recovery and these awful uti infections stop.
I do know a lady that had mesh and suffered if I after her op.. If I am correct it was because the mesh wasn't placed correctly.. She had it removed and all was well.🙏🙏🙏 xx
welshgirl67 frances78506
Posted
I'm not sure about that hun but all you can do is get as much info as you can before your appointment.. Some ladies on here have had mesh and have been great.. Some consultant will use it others won't because of the risks..
My professor won't touch it because of the risks involved. I personally don't like the stuff and will not have it inside my body.. I am thinking of you... I was thinking the d mannose can be taken every 3 hours till symptoms goxx
welshgirl67 peta46390
Posted
My consultant was very happy with the outcome and told me surgery was a success.
No prolapse.. I guess we have had lots off work and need to get used to the new us.. It will never be like it was before childbirth so have to be patient. How are you doing?xx
peta46390 frances78506
Posted
I have had latest mesh in pelvic reconstruction 8 weeks ago. This is third time recon however mesh in last two. First time I understand mesh was dissolvable. This time not same mesh.
I am early days but have not had any problems so far.
I can understand the strong opinions about mesh on this forum in view of what has been found to be serious issues. I am in no way defending mesh but in my case there was nothing else to choose from and I had waited since 2001 for some advancement. I have spent 37 years with my damaged pelvic area ruling every thing I did and couldn’t do.
Frances, I haven’t had the UTIs and I can understand how despairing you must be feeling. I am wondering if it is UTIs alone that is the problem whether a urologist (female preferably) would be the best referral to explore this further, well before going down the removal of mesh journey. Removal may put you at risk of other optional problems related to surgery.
Keep persisting as it affects you and your quality of life it is only you that will need to have the persistence to go out there and get the best outcome for yourself.
Best wishes to you
frances78506 peta46390
Posted
Thank you Peta, I have to make an appointment to see the surgeon who did the op. Be assured I won't have anything done to exacerbate the situation. I just want to be rid of the infections
sena23279 frances78506
Posted
Hi Frances. I had a similar problem before I ever gave birth and developed this hell of a prolapse problem. I suffered like crazy and it was brought on always by sex. Finally, we did the test for some STD bacteria and took a big course of antibiotics (penicilin) both me and the husband. Only then I stopped having problem. If your prolapse surgery was successful, be happy that u don't have prolapse/pain/discomfort and forget about sex. I lost all sex drive after developing a painful prolaps due to horrible birth. Good luck