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Removal of thyroid. Anybody here who actually feels good after?

Posted , 3 users are following.

ulrike76569
ulrike76569

Hi everybody. I will have my thyroid removed due to nodules that push my trachea to the side. Big issues with swallowing and breathing. 8 read a lot about horrible issues post surgery. Is there anybody who had a good experience after surgery? Somebody who's replacement hormones actually work and make them feel better? I have so many issues lately with almost all the symptoms (palpatation, sweating, anxiety, fatigue, pain, ..) and now I'm afraid to have other issues after surgery that are even worse. I'm slightly hyper (TSH .2, t3 and t3 normal). Any positive reports?

0 likes, 16 replies

16 Replies

  • kat0
    kat0 ulrike76569

    Posted

    hi there, I had my thyroid removed a year ago and my end said it takes a year for your body to climateise. I would agree with that statement. In terms of breathing/swallowing I haven't had any issues with swallowing but I've felt out of breath slot. However I am also not very physically fit (something I need to work on) and therefore I see that if you feel unwell still there may be other factors aside from thyroid removal at play. I've found that somedays I dwell on the whole medical issue more than I should yet most of the time I don't dwell on it an just take action if I feel more tired or anxious by eating a healthier diet or getting more sleep. My only advise is to be patient and adjust your lifestyle to suit your new body as it were. On a medical note if you don't feel well adjust your medication with permission from your doctor and maybe question if there's anything else at play such as depression or anxiety disorder. Idk the weather has been insane which can affect our moods for better or worse regardless of a thyroid condition. It's all about mindset sometimes I hoped this helped 😊

    • ulrike76569
      ulrike76569 kat0

      Posted

      Thanks for your input Kat. I guess it is a lot about the mindset. But if you suddenly have a lot of depression and you never had that before the surgery, it is pretty likely that is has to do with the hormones that are lacking. And as much as I heard it is not to control. Even if you are a real happy puppy. It can be very discouraging to hear how long it can take to get back to your old self.
    • kat0
      kat0 ulrike76569

      Posted

      Thank you for replying to my comment. It was the doctor that told me that it would take a year however after surgery it has been reported that you can be on a bit of a high for a while until your body Plato's out to a neutral mood I suppose. If the thyroxine is working you should be feeling okay and therefore if you are feeling down it may be due to other factors. However if you are feeling slightly hyper or hypo then you may be feeling anxious or down because elf that. From my personal experience I had a bad experience after my surgery that wasn't related to the thyroid stuff so I do believe that it distracted me from being hypersensative to how I felt or didn't feel after surgery.

      One aspect that I would say has taken a year to settle is my metabolism for example. In terms of mood that fluctuated but again I moved cities, started a stressful degree, worried about money and had a bad experience that wasn't related to thyroid stuff after my surgery so basically a lot changed in a short period of time. Sorry I'm rambling,ill summarise below and give you some tips that may help.

      .1. It may take your body a year to adjust but that may affect everyone differently.

      2. You could track your mood and spot any patterns. If you are noticing you are feeling stuck or depressed go to the doctor with the evidence,

      3. Take up a new hobbie or some distraction. It can be easy to dwell on the fact that you're taking medication every since day.

      4. This may sound cheesy or patronising so please don't take this the wrong way. But just be grateful that you got the surgery and you are alive.

      5. You will overcome any struggles you may be feeling and it does get better.

      -hugs-

    • kat0
      kat0 ulrike76569

      Posted

      I just reread my reply and half of it doesn't make sense 🙄 but I just thought you could go to the depression section of this website if you are depressed. I should also add I may sound like a positive ray of sunshine but I have too been depressed so I can relate that it absolute is soul sucking and different to get out of that type of mindset. I would say little steps to where you want to be will help. I am still struggling with the thyroid stuff as well but more on the aspect of weight. So basically. its a journey x

    • ulrike76569
      ulrike76569 kat0

      Posted

      Thanks for the explanation. I will have my surgery in a few weeks. I am hyper now. So far no diagnoses of Graves or any auto immune disease. Maybe this has something to do with how you recover too. I wasn't hypo, maybe I will not get too hypo after (LOL). We will see... I tried to get some answers before surgery and I will definitely be thankful for not being chocked 24/7 anymore. I guess I have to wait and see...

  • Anxietyasf
    Anxietyasf ulrike76569

    Posted

    Hey hope all is well.. I was wondering if you could share your symptoms with me? I’m heading to the ENT this week an my anxiety is through the roof haven’t been able to sleep because I’m so worried.. anyways I hope you feel better soon.. any updates? I’m experiencing sore throat symptoms along with some other things just to be clear Lol 
    • ulrike76569
      ulrike76569 Anxietyasf

      Posted

      Hi, my levels are only slight off. But I still had a lot of symptoms that send me to the ER 2 times before I was treated right. I had anxiety, heart palpitations, sweats, dizziness, I felt like I'm going to die. On top of it I started to feel like I'm being choked. I have a soar throat and I'm hoarse. I also have a lot of diarrhea and stomach pain. My skin was very itchy too. The second time in the ER the doc noticed that my trachea is being pushed to the side. He ordered a CT and the found a big mass on my thyroid that reaches down to the esophagus. What hopefully explains my gastro symptoms. I had an ultrasound at a Endocrinologist and a biopsy. The big mass is benign, Yay! My PCP prescribed me a beta blocker to take when my heart starts racing and the Endocrinologist prescribed methimazole. After only a few days most of the symptoms disappeared. I take the beta blocker only if my heart rate goes to 90 or up. The meth I take daily. I still have the choking, hoarseness and sometimes soarness, I will have the thyroid removed after September 12th when I have the initial visit with the surgeon. I also have some gastro problems. But the anxiety, sweats, dizziness and fogginess is almost gone with the methimazole.

    • ulrike76569
      ulrike76569

      Posted

      Oh, I forgot that I had Anxiety problems almost my whole life. And I think I had a slightly hyper thyroid my whole life too. Nobody ever made a connection. But now I know better.
  • Anxietyasf
    Anxietyasf ulrike76569

    Posted

    I’ve had all these exams An they’re all coming back “normal” 🤷🏽???So I visited with my doctor today An he says “can’t be cancer it would have showed in your many blood samples you’ve given” but I’m still so worried, he gave me anxiety & sleep aid pills because this is driving me crazy the feeling of something in the throat is keeping me up at night! I’m wondering if it could be my thyroid but would I feel like this? Hmmm.. not sure as I’ve had blood work an test done I feel like they would have mentioned that.. an then comes the worry of “then what could it be” I hope these pills keep me out of this funk until I can be seen by a specialist which isn’t for a long while ..seems like forever 3 weeks away.. I’m hoping they find nothing of course but at the same time I’m very curious to know what this “feeling” is.. 

    • ulrike76569
      ulrike76569 Anxietyasf

      Posted

      Well, with me it was nodules. But they are benign. I want that feeling to be gone asap. And for me it feels too like forever until the surgery.

      When I made the appointment with the Endocrinologist it was too over 2 weeks and I asked my PCP if he could do anything. He than called the Endocrinologist and I was rescheduled for the next day.

    • Anxietyasf
      Anxietyasf ulrike76569

      Posted

      Would they have still gone with the option of surgery if they weren’t benign just curious An that is fantastic news that they are not! Really happy for you! Happy you at least no the cause An are getting things looked at an taken care of .. 
    • Anxietyasf
      Anxietyasf

      Posted

      Fanstastic news that they ARE benign.. sorry, mistake .
    • ulrike76569
      ulrike76569 Anxietyasf

      Posted

      Anxiety, if it would have been malignant they would have approached it differently. But in both cases it needs to be removed because of the large nodules that push on my trachea. Unfortunately I have nodules on both sides. This is why the Endocrinologist recommend complete removal.
  • missy65351
    missy65351 ulrike76569

    Posted

    Sorry but no. There’s not a day that goes by that I don’t wish I still had my thyroid. It’s been 20 years of health and hormone hell ever since they removed it. See if you can’t keep it. 
    • ulrike76569
      ulrike76569 missy65351

      Posted

      Sorry to hear that Missy. What kind of symptoms do you have? And what replacement are you taking?
    • Anxietyasf
      Anxietyasf missy65351

      Posted

      Wow I’m sorry to hear that missy 😔 an thank you for your response ulrike.. good luck to you guys both.. 

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