1. Community
  2. Genito-urinary/Kidney
  3. Kidney Problems

Renal pain

Posted , 3 users are following.

lisa52101
lisa52101

Hi everyone,

In late December I had a kidney infection, cutting a long story short I had an ultrasound which showed a stone.since then I have had continual pain, had a ct scan, an cystoscopy and tonight I ended up in the emergency room with the pain. This meant that I finally got all the results from all tests post ultrasound only to be told I don't have a stone or infection or for that matter anything but a possible fat deposit in the kidney. 

I have a number of other health conditions including EDS and fibromyalgia and now I've been told that the fibromyalgia could be causing the continued pain. If that's the case then I could having this for ever or it could stop tomorrow. Has anyone experienced any or all of this before. Please help I feel like I'm losing my mind and the idea of living with this long term is incredibly depressing to me right now. Thanks for any help.

0 likes, 7 replies

7 Replies

  • amanda33492
    amanda33492 lisa52101

    Posted

    Hi Lisa... I'm sorry for your Agony ... I've been there myself. Can you give more description to your Pain? Is it Heavy - Stabbing - Feel like something is Swollen inside your Ribs?

    Is it on One Side?

    Do you have any other issues that may not seem related? *like Pain in your Middle Back (center of your Spine to be exact) - Bra Underwrite suddenly feels like it's Destroying your Ribs? Straps digging into your shoulder? Shoulder feels almost dislocated?

    I'm asking because your initial diagnosis of stones and the sudden onset of unrelenting Pain is how my own story began.

    • amanda33492
      amanda33492

      Posted

      Sorry that should say "UNDERWIRE" 😑
    • lisa52101
      lisa52101 amanda33492

      Posted

      Hi Amanda, 

      thanks for your reply. The position of the pain is front through to back and if you could draw a semi circle from under my ribs down to just above my pelvi/hip bone. It's only on my right side and began with very classic infection type pain. During treatment for the kidney infection I was woken in the night with the most excruciating waves of pain. It was so bad I couldn't even shout loud enough for my husband. I can only compare it to having labour contractions but in my side. This is when I was then sent for a ultrasound scan and I was told I probably passed a stone but there was one just at the base of my kidney and the top of the tube that leads to the bladder. I was also told there was some deformity where the stone was sitting. This is how I understood things to be until the pain kicked up again yesterday, there have been periods whereby the pain has settled a little so that it feels like a really bad toothache in my side. I've always been prone to uti's and kidney infections through my life, I'm 47, so I know what renal pain is like and I would have staked my life that this was another.

      To be told today that there's now nothing there now and I may have to live with it I felt like a fraud but so depressed that I have no identifiable reason that could mean controlling this level of pain. Do you mind telling me what happened with you? 

      Thanks again xx

    • amanda33492
      amanda33492 lisa52101

      Posted

      1st of all I am in the States so my Choice of Words may not be the same... 😉

      I Will Save you some time (from reading my 7 Year Hellish Nightmare more than once lol) ... Search GOOGLE for - "FINALLY A DIAGNOSIS" it is an Epilepsy Blog but This post is All Kidney and IT SAVED MY LIFE! 😂 And Read All of the Blog + Comments ... If You do not feel like it was written about you I would be Shocked!

      Let me know if you have trouble finding it or what you think once you are done 😉

      PRAYERS We Can Get You Fixed QUICKLY!

  • amanda33492
    amanda33492 lisa52101

    Posted

    Sorry ... Search "Nephroptosis Finally a Diagnosis"

    Without "Nephroptosis" the search is Overwhelming lol

    • lisa52101
      lisa52101 amanda33492

      Posted

      Haha, I did wonder. Finally a diagnosis was quite an open subject. If you don't mind I will check it out tomorrow, it's 2.30am here in the UK and it's been a long day. 

      I really appreciate the help 😊

  • cici_RN
    cici_RN lisa52101

    Posted

    There is much evidence that an embedded stone, supposedly not moving can cause pain. Majority of doctors do not believe this. I have passed and caught over 70 stones and have had probably a 100 removed. Not alll of my stones were seen on the x-rays or scans. With my embedded stones, some cause me chronic pain and even though not passing through there is belief they shift slightly in the kidney causing pain. Search for a MD who specializes in kidney stones. Dont give up the fight!!
Back to top

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.