Repatha or similar medication

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After taking (various) statins and bearing the consequences for about 5 -6 years, I stopped about 18 months ago.  My cholesterol shot up to 8.5 despite exercise, diet, etc.  My doctor insisted I see a specialist (again) who literally told me off when I questioned the validity of the argument that cholesterol is bad.  He said that he is willing to give me Repatha and I sheepshly and confused accepted. I am so tired and scared to be told that, as I have a diagnosed with hardening of the left arthery, my chance of stroke/heart attack is very high.  Does anyone have feedback about this new medication?  I do not want to waste NHS money (repatha is sooo expensive) .  I've read that side effects are flu like symptoms>  Do they decrease after sometime?  I suffer from peripheral neuropathy -possibly caused by statins?- and am managing ok-ish by myself without meds. Has anyone using Repatha or similar had neurological difficulties?  Please, help.  Thank you

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  • Posted

    Hi Regina, I've experienced similar problems with statins so I was terrified when my doctor wanted me to try this Repatha.  After I read some patient reviews, I could not take the Repatha. I'm trying very hard to reduce my numbers through diet and exercise. 

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    • Posted

      Regina, hit send button to soon.  Another patient stated "...been taking Repatha twice a month for 9 months and have developed severe neuropathy in both hands...and muscles in both arms are weakening, I will no longer be using it and can only hope to regain use of my hands back close to normal."

      Another Comment:

      Her 83-yr old mother " had two strokes and was taking Welchol to lower her cholesterol. It was not working so the doctor prescribed Repatha, calling it the new miracle drug. She took 3 doses, two weeks apart and then developed severe neuropathy. She said it felt like the blood was boiling in her hands and feet...it is very painful and dibilitating. The doctor could only surmise that her cholesterol went down to quickly, causing her body to crash. He still thought the Repatha was her best defense against high cholesterol so he told her take it once a month." ...took " the last shot on April 3rd and now she is in so much pain she can barely walk or use her hands. We think she may have permanent damage."

        

      The repatha worked in some cases but side effects are painful for many people.

      I feel like I'm caught  between a rock and a hard place. ...not able to take statins to lower my cholesterol. If I take the statins, it affects my ability to function.  Right now at least, I'm not suffering muscle aches, joint pain, lethargy, etc. I can swim, walk, ride my bike and feel present.  

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