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Thought I'd share my story. I'm a 36 yr old mum in the uk sick of this horrid curse of an illness/condition.
I have recurrent infections of tissue/deeper layers in the skin it seems. Drs say it's cellulitis but some say it doesn't look like classic cellulitis.
So what happens since 2011?multiple times including hospital admission and sometimes not in milder bouts
I get a sharp pain in my groin either right or left(turns out my enlarging groin lymph node)
I then become achey and fevery. Temp can peak 39-40 and rise and fall. Tend to have a little lower blood pressure too
A pink blotchy colour develops over my thigh inside/outer and round hip and buttock. It can get a little redder like a warm tender sunburn... or a little spottier but it develops fast like over a few hours. It's hot to touch.
As I've had this so many times maybe 15 in all? I have had many tests, ct,ultrasound,many blood tests,checks on my immune response,my response to vaccine,echocardiogram,hematology,immunology investigations and nothing really found!
Once a blood culture showed a streptococcus b in my blood as the cause of infection
I got several scans to check my spleen as that was enlarged but it did get smaller
I'm told I can have lower blood counts tho in range inc wbc,platelet,lymphocyte but still considered normal and not screaming out any issue there really. But these tests are done when I'm ill so I'm guessing they might look a little crappier? Normally they're not bad
I have had 3 c sections in the past last one being Aug '11 and I fell ill like this Dec '11.
I might have a slight venous deficiency as I have small varicose in my feet/legs but I'm not sure. I don't have lymphoedema.
I'm not overweight, live a healthy lifestyle..
I wonder if the repeated cause/same pattern and regular infected area is down to an internal source rather than external, I don't really get bitten or show any skin breaks. I wonder if it's my immune system but I don't suffer with any other type of infection.
Could I have bad lymphatic function even tho my legs look slim and never puffy. I heard repeated cellulitis just makes you more suspectible? Is that because of damage it leaves behind?
I'm just getting over another bout. This one came about as I forgot to reorder my preventative prophlayxis prescription of low dose pencillin V til a bit late and thought I could survive one weekend without! Obviously I can't.
So now I'm on for 10 days
Fluxocillin 500mg 2tab 3x day
Amoxicillin 500mg 2tab 3x day
They're already churning my stomach 😩
This is after a brief stay over night having two IV shots of fluxocillin and showing good improvement. I don't feel ill now and rash nearly gone bar a pink patch size of an orange.
I'm otherwise healthy and active!!! The last time I got this was 18months ago so thought I was doing ok, I guess I might not forget my low dose Antibiotics again.
I live in uk and wonder who else is like me??? I feel like a mystery and rarity which is quite depressing!!! Thanks for reading me 😊
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