Reporting in !
Posted , 6 users are following.
Hi Everyone, It`s been ages since I visited the site. Been too wrapped up in worrying about my son (terminal liver cancer) and my husband who`s just had palliative radiotherapy for his prostate cancer.
I think in my last post I was complaining of itching all over- well I still am - since July. After seeing a neurologist and having an injection in the occipital nerve, I decided that since he didn`t think my PMR was complicated by temporal arteritis I`d take a chance and come off the steroids in case they were causing the itch. Well I can`t say I`m without pain but it`s manageable.
Saw a Dermatologist privately who asked no questions, looked at my waistline, drew the blunt end of a biro across it and wrote me out a prescription for tabs. I was in for less than 3 minutes. Saw him again after 5 weeks-no improvement- double up the tabs and see him in 6 weeks! Apart from the fact that it`s over an hour`s drive to him and the cost of the consultations- he has no interest in finding the cause.
So I`m off to a homeopath next !! Hope you are all improving, Shebob X
0 likes, 17 replies
Lizzie_Ellen
Posted
Lovely to hear from you, but sad to hear of all your troubles. Before I had PMR I suffered dreadful itching, just all over, as though I had bugs crawling round under my skin (urrgggh, makes me itch remembering it). I'm a strictly 'chemical' girl. Give me a tablet of any description for any ailment and I'm happy. I had no time for 'alternative' stuff. However, after a similar visit to yours to a dermatologist (at considerable expense, money that would have been better spent on new shoes and handbag!) I decided to try an acupuncturist. I was determined that it wouldn't work, laid on her table with a frown of 'Huh, its all mumbo jumbo' but I have to admit that after 3 sessions the itching finally subsided. It started up again about 7 months later and this time I had just 1 session. Have you ever tried it? Doesn't work for everyone, just wanted to share my experience.
Take care.
Lizzie Ellen
Guest
Posted
are you taking antihistamines? i find i cannot cope without them, they keep me sane. margaret e.
shebob
Posted
Lizzie Ellen thanks for your input. I may try acupuncture as the homeopathic tabs aren`t working.
M Edwards yes I`m on an antihistamine. I`ve had loratedine, cetirizine, neoclarytin, hydroxyzine and the latest prescribed by the dermatologist- Rupatadine, supposed to be the latest thing. None of them help. I`m convinced it`s my gallbladder, there`s sludge in it according to an ultrasound scan . But they don`t do anything about it till you explode.
Lizzie Ellen the depressing thing is no-one takes this dreadful constant itching seriously though according to some forums people have committed suicide over it. Feel abit like that myself after yet another sleepless scratching night !! Now to find an acupuncturist.
Shebob :oops:
Lizzie_Ellen
Posted
Best Wishes
Lizzie Ellen
Green_Granny
Posted
My skin is terribly thin and dry at the moment - I'm not sure whether that's PMR or the steroids but it certainly would make itchiness far worse I'm sure. I use lots of body butter but again I think one has to be quite sure it's a good one. Tried one from the pound shop and it was rubbish.
A lot of white stuff coming down at the moment, just had a big online food order so feeling rather smug! But quite a lot of online presents I've ordered seem to be stuck in a snow drift somewhere...... :snowball: :snowball:
Keep warm everybody - I'm wearing two of everything, probably be three by tomorrow, Pam
Mrs_G
Posted
We first had one fitted nearly 30 years ago after moving somewhere where the water was really hard I never use any perfumed products Unperfumed soap ,shower cream deoderent( only Boots seem to do it now ) Fairy Liquid and Fairy washing liquid After I shower I always use moisture lotion When my skin feels really dry I use Elizabeth Arden body lotion but about £23 a tube ( unless I get it on ebay ) !!
I am so sorry I cant be any real help and with all the other stressful problems you have you must be at the end of your tether or is it the stress causing it I used to get mild exema always at the back of my neck when I was stressed but eventually grew out of it Your Dermatologist sounds a disgrace !!
I really hope you get relief soon
Mrs G
EileenH
Posted
hope it goes away soon,
EileenH
mrs_k
Posted
typing one handed, fell over.
Some of our people have found that washing the dye off the enteric coated stopped both the itching and the upset.
And, yes its true, one male in a support group had a dreadful problem and it was all done to a change in 'maker'. Mind it took weeks to solve as nobody believed it. But along came a Lead Pharmacist in the hospital and bingo.
EileenH
Posted
I fully appreciate the concept of different coloured pills for different drugs for ease of recognition - but the crap they include in them as colouring and stuffing is unbelievable! Some of the colourings are the sort that are associated with hyperactivity in kids - now would that help the PMR stiffness, I wonder?
Enjoy Christmas - have you got your second lot of snow? It snowed here today - rather more than expected I suspect - and the rest of Italy has also had a visitation! We'll see what it is like tomorrow,
EileenH
shebob
Posted
You`re all a great bunch of friends Shebob :lol:
mrs_k
Posted
I hesitated to say this but perhaps it can help, the Harrogate one helped a friend when he came to the end of his tether.
Google the British Society of Allergy and Clinical Immunology.
Then you can choose a clinic near you.
I cannot tell you how much they charge, but I do know the Harrogate one worked for him. I gathered that they tested for everything known thing in one go - but if I remember rightly it took about two weeks. But as my memory is a bit vague on it - you could check it all out.
Lizzie_Ellen
Posted
Lizzie xx
shebob
Posted
The only problem is that the clinic says you must be referred by your doctor. Not much chance of that- she says she hasn`t a magic wand- and only agreed to refer me to this specialist privately, who`s charging a lot for three minutes of his time.
We`ve got six inches of snow outside, perhaps I should go and roll in that , though Lizzie Ellen thinks I should wait till it`s warmer !! Shebob :lol:
Guest
Posted
You poor soul, You have my sympathies. Urticaria is hell.I had it for 10 months last year.Finally a friend of a friend told me about Cider Vinegar. You have to use the best cider Vinegar.
You take two Tablespoons in about 8 fluid ounces of Hot Water, add one heaped teaspoon of Manuka Honey, and one heaped Teaspoon of Black Molasses. Drink it after you have had your main meal of the day. (so it doesn't upset your stomach).
I was so desperate I would have tried anything to get rid of the itch. Well, after four days I realised I was more comfortable, and over the next month it gradually disapeared. I cant tell you what a relief it was.
It may not work for everyone, but it is worth a try.
Good Luck
Brenda.
shebob
Posted