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Research for M.S. ( Relevance to T.N??)

Posted , 4 users are following.

gill32586
gill32586

Has anyone heard anything about the new research into stem cells for M.S. As I understand it bone marrow is taken from the patient. They are then given chemotherapy to reduce the immune system which gives nerves a chance to regenerate. The bone marrow is then replaced. I may have some of these facts wrong as I heard it only briefly on T.V. I know some patients with M.S are prone to T.N. and I wondered if any of this might be of relevance to those of us with the disease.  Gill

0 likes, 7 replies

7 Replies

  • chris78446
    chris78446 gill32586

    Posted

    a friend of mine has MS and TN
    • gill32586
      gill32586 chris78446

      Posted

      Hi Chris, I met a lady (during research into pain in T.N. ) who also had T.N and M.S. . And we think er're unlucky!

  • army183
    army183 gill32586

    Posted

    Embryonic stem cells won’t remove the pesky branch of the cerebellar artery which is wrapping around and/or compressing the root of the Trigeminal nerve - which is the cause of what’s generally known as “typical” TN type 1. Not sure what these cells might do to other parts of the nerve sheath and in other TN-related syndromes, but it seems unlikely to encourage restricted myelin regeneration. But - you never know! We might be surprised, I’ll have a hunt around the Med literature........and report back. 

    Cheers

    Big D 

    • gill32586
      gill32586 army183

      Posted

      Hi There,

      Thanks so much for your reply.  From what you and my neurologist both say, I have  ' Typical Type ! '.,  so not a lot of hope in my case. I also understood that the sheath of my nerve was damaged by the compression between the nerve and artery, so what you're saying makes a lot of sense in my case. Please do carry on your research. Any port in the storm gives us hope and ' hope springs eternal.....'.

        Thanks again, Gill

  • Atlantan
    Atlantan gill32586

    Posted

    This reminded me of something I came across recently.  There's a company (Regenexx) that uses stem cells and blood growth factors in the treatment of various conditions, including nerve repair.

    Such a treatment could one day be used to help repair facial nerves.  It wouldn't address the root cause if there's nerve compression, but regular treatment could keep the nerve moderately healthy.

    Moderator comment: I have removed the link(s) directing to site(s) unsuitable for inclusion in the forums. If users want this information please use the Private Message service to request the details.

    • gill32586
      gill32586 Atlantan

      Posted

      Hello There,

      Many thanks for response

      .Your comments agree with what I understand from another contributor to this site. It does seem that this treatment would not help those with nerve compression. Another disappointed then.We can only hope that eventually medical research can find a solution for those of us who suffer from this dreadful condition.

    • army183
      army183 gill32586

      Posted

      A quick point - there’s no support for  repeated stem cell treatment or “regular” use would have any positive effects in the several neuro conditions tested do far. In fact there could be contraindications. Best approach, as always, is to follow the path of evidence-based medicine. 

      Good luck everyone 

      Keep safe

      Big D 

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