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WE ASKED PATIENTS TO PARTICIPATE IN THIS RESEARCH PROJECT: ‘YOUR EARS’
May 2017 we asked you to take part in the above research:
April 2018, only 155 have taken part in this study and the target is 500.
We need the 500 so we are well short of the target.
Preliminary findings show that there is a connection but we cannot take it forward without your input.
I know that only patients who live in the UK can take part…….so it is down to us and it costs you nothing except your time.
I am appealing to all of you to help yourself and people in the future who will develop GCA and PMR.
Researchers all over the world are looking for cause, cure and better diagnostic procedures.
Will you help or am I asking too much?
RESEARCH: GCA & PMR.
We need YOU………...
The Research & Development section of Queen Elizabeth Hospital Gateshead NHS Foundation Trust is to continue research following the result of the basic survey which we did last year on ‘Your Ears’
In late May we met with Dr Kelly and Susan Pugmire. They advised us that the NHS would now undertake qualitative research. We had donated £1000 start-up costs. All future costs will now be paid by the NHS.
They need at the very least 500 people with GCA , GCA&PMR and PMR. It would be amazing if we could get more patients to participate.
YOU now need to contact the Queen Elizabeth Hospital Research and Development in one of the following ways:
Subject heading: Research: GCA&PMR.
Postal Address: Sister Sue Pugmire
Queen Elizabeth Hospital
Rheumatology Unit/Jubilee Hospital
Plus your postal address.
Once your initial enquiry has been received research documentation will be sent to you and if via the postal service a prepaid envelope will be supplied for you to return the completed documentation.
Mavis R Smith
PMR&GCA uk North East Support
Charity Reg No: 1138409.
This study is now complete and published. The results can be seen here: https://healthunlocked.com/pmrgcauk/posts/141578649/your-ears-research-result-8th-cranial-nerve-involvement.
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