Residual BPPV continues...

I say you should  go to the specialists like gillien said.  I will tell you that I had that symptom and they gave me eye exercises to do to help get control of my eye movements, but I was diagnosed with Vestibular neuritis, not bppv, and meclizine did nothing for me at all.  I can't say that the exercises did any good either, because it has been over a year now and it might be that just waiting for time to heal it is what has made some difference.  

FYI: The eye exercises were looking at a printed letter, about 1 inch tall, that was on a white post card size piece of paper ( white paper black letter for good contrast)  at about 5 feet away and keeping my eyes focused upon that letter I was to turn my head left and right for 3 minutes at a time, several times a day, keeping the letter in focus.  Slowly at first and then faster until I found the limit of my ability to keep it focused.  Then up and down same thing.  Then a smaller letter, about 1/2 inch tall on same size paper, this time only about 2 feet or arms length away from my eyes and focus on the small letter then switch to the large one 5 feet away, moving the smaller one up closer little by little until it gets about 6 inches from my face.  This is supposed to go on for about 3 munutes several times a day.  Then I was to walk looking at things far away to the left then to the right and far ahead and up close.  

There is a relationship between equilibrium or balance, that is used to keep your eyes focused upon something while you move on by such as walking.  If the inner ear gets damaged or the nerve that brings that information to your brain gets damaged it can cause you to lose sight of the object that you are trying to follow as you move about, and that causes the feeling that you do not have good balance.  It can be as little as a feeling of uneasyness all the way up to full blown vertigo depending upon how couurpt the information is.

I have felt for quite a long time now that since I was given a clean bill after MRI and CAT SCAN that even though they say I did not suffer a stroke, the learning process is very similar to that of a stroke victim.  I feel like I  have to relearn how to do things just like a stroke victim, by doing things over and over and over somehow causing my brain to relearn the signals that got ruined by the nuritis.

Well, I hope you feel better about the possibilities if not the actual disease and hope I have helped.

Ben

Sounds about par for the course. I had a revisit when I hit my head. Funnily, my husband got vertigo too so it happens in old age apparently. 

The crystals move around, then settle, can unsettle and it takes a while to settle.

I do nothing now, don't go to doctor, just wait it out. Husband's reduced over time as well. Ain't old age grand?

I would like to report my story for others that are suffering.

9 weeks ago: 2 days of symptoms.. Felt kind of sick and had an odd feeling behind my eyes while driving to a big birthday party. Kind of felt sick on and off all night; sweating a little more than usual, no fever, stomach felt off.

6 weeks ago: 2 days of symptoms.. Felt the same feeling come back, but it was a little more prominent

4 weeks ago: ongoing symptoms.. I felt like I was crashing multiple times per day. I continued "powering through" as much as I could, but wanted to faint a few times per day. Between wanna-be fainting episodes, I felt nauseous and off in undescribable ways. I went to my GP and he said I appeard to have a virus as I was "kind of inflamed in my throat, sinus, inner ears." He prescribed no meds. I had no fever and didn't feel sick in the standard ways.

3 weeks ago: no change in symptoms. I was tested for diabetes, thyroid, stroke (angiogram), syphillus (just in case!) and a few other STD's, CBC, detailed white blood cell, urinalysis, etc.. all tests were negative.

2 weeks ago: went to an ENT. He tested me for BPPV (looking for nastygmus) and saw one slight rotational nastygmus that I didn't notice. He said "If you look in the textbooks or the internet, BPPV presents as acute vertigo (spinning). But the reality is, in my experience, patients often feel 'off' and can't figure out why. I am 75% sure that I saw a rotational nastygmus, so I want to treat you for that based on the fact that your hearing tests and CT scan was normal. We will do an MRI if needed at some point if the symptoms don't resolve."

2 days ago: I have been feeling slightly better. As my brain has gotten used to my symptoms, I have felt sick less often. This has allowed me to truly feel the issue: I am swaying in my head back and forth and sometimes feel like i'm being pulled to the left. I followed up with the ENT and redid my hearing test. It came back with the same results and I have no hearing loss. He described that this doesn't "rule out" acoustic neuroma, but it strongly suggests I don't have something serious. He gave me some rehab exersizes. I will say this doctor paid a lot of attention to me and answered a ton of questions, so I trust his expertise and diagnosis (although, it is hard to make sense of it sometimes). He also described that BPPV can throw your vertebral senses "out of whack" even when the crystals have been moved back into their natural place. This, he said, causes some ongoing balance issues that will be resolved quicker with rehab.

I can say that I am feeling better very slowly.. I don't notice improvement by the day. But starting 6 or 7 days ago, this feeling is less severe. It is still there, but its more manageable.. I am able to concentrate a bit more and get out and about.. Although, I was slightly disoriented today.. But, it wasn't as bad as it used to be.