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Results of MRI and neurologist visit

Posted , 2 users are following.

Valkyrie
Valkyrie

Hi everyone,

I have just had my visit to the neurologist with the results of my MRI.

Apparently I have hemispheric lesions, one measuring 8mm (the one on the side i have TM on ) and one on the other side in the same place measuring 5mm.

They are benign but growing and i can only assume that as the smaller one gets bigger it will also produce pain. I have now been referred to a Neurosurgeon for evaluation. I dont know whether to feel releived that they have found a reason for the TN or scared. Apparently they grow slowly but can cause other problems being near the brainstem so i think my choices may be limited to either radiation (maybe) or surgery. I have been told the mortality rate is 2.1%. I await my appointment with the surgeon...I gather that the surgery is done behind the ear. Anyone had this kind of surgery?

 

0 likes, 6 replies

6 Replies

  • christine_56055
    christine_56055 Valkyrie

    Posted

    Hi, glad they have found out what is causing your TM. I don't have any ideas as to what will happen though.

    my TM is caused by a nerve in the brain that gets touched by something that vibrants against it. I still don't really understand it.

    anyway I hope you get sorted soon. Take care xx

    • Valkyrie
      Valkyrie christine_56055

      Posted

      Oh, my mum had that!. It was a blood vessel that vibrates against the nerve. They operated behind her ear and put a teflon patch between them. it was very successful.
  • christine_56055
    christine_56055 Valkyrie

    Posted

    Yes that's it. What a shame you and your mum both suffering from TN. I hadent  heard of it untill I got the pain myself. Then I found out a friend was suffering at the same time as me. I also heard of people having their teeth pulled out because of it. I was lucky my dentist knew my teeth were fine.
  • Guest
    Guest Valkyrie

    Posted

    Hi

    You may have seen my posting about my recent experience with nerve surgery. The results were bad for me because the surgeon was unable to identify the cause and had to cut the nerve. In your case they have identified it therefore the surgery hopefully will involve inserting a teflon patch as described by Christine 56055. I had that surgery 20 years ago and it was a complete success. Just be very careful and discuss all aspects of the operation with your surgeon including the after effects.

  • christine_56055
    christine_56055 Valkyrie

    Posted

    Sorry about your surgery, I'm not being offered any as they said it would be given in rare cases if the medication didn't work. 
    • Valkyrie
      Valkyrie christine_56055

      Posted

      i was initially told that too but i asked for an MRI and they agreed. lucky i did because the lesions i have would have just kept growing with the medication masking their presence. Eventually they would have caused other problems as they got bigger because of their nearness to the brain stem. Being bigger may have made them inoperable if they had gotten themselves in between other things. i feel very lucky to even know the cause really
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