retinopathy of prematurity

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sorry if this is a long one....

My now 16 year old daughter was born at 26 weeks (3 months early) she was diagnosed with retinopathy in both eyes and at 3 months old had laser eye surgery.

From the age of 2 she has worn glasses and we did the patches for many years.

we have always been aware that she had very little sight in her left eye but you really would never know as her right eye compensates and she just gets on with it.

Her left lense has aways been super thick and we have it shaved down...well today we went to her eye appointment (new optician) who was lovely may i add but he completley threw me buy saying "i wouldnt bothered correcting the left eye anymore" its not doing anything. Im thinking are you crazy thats the one that need correcting the most.

Apparently its making no difference to her binocculour vision although my daughter says if she covers her right eye (the good eye) with glasses she sees more detail but its still blurry without glasses its just blurry.

so my question is do we go with what the optician advised or do i seek a second opinion.

she wants to start driving lessons in october when she turns 17 and im thinking it would be better to still correct the bad eye even if it does only help a tiny bit....

sorry for my long ramble i hope this makes sense

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2 Replies

  • Posted

    I just posted here for the first time, and looked at this thread.

    I would suggest a second opinion.

    I have no left eye, and I had a doctor once look in it with his light and then he turned around and told my mother that "everything looks great."

    She said "In his left eye?' and he said "Yep. It's great."

    and she said "Well it's a prosthetic" so he said "I better look again." and she was like "Yeah, probably."

    So yeah, second opinion if you're not comfortable with what you heard. Always trust your instincts.

  • Posted

    I'm thinking you are in UK?Did you see an optician or ophthalmologist?If it was an optician then ask your GP to refer your daughter to an ophthalmologist for a second opinion.

    When your daughter applies for her provisional licence she will have to declare her sight problem and she will have to undergo a sight test specifically for driving. Dont worry.......I have known several people blind in one eye from birth who sail through this. As you say, her binocular vision has learned to compensate.

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