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I had MVD surgery two years ago for my TN and have been blissfully pain free up until around three weeks ago, when I suddenly got a series of awful return attacks. The main difference this time is that I got woken up at night by searing attacks, which didn't happen two years ago (previously I only got attacks when awake - talking, eating etc.
The attacks have stopped again, so I don't know whether to pursue an appointment with my neurologist (I have MS) and neurosurgeon with a view to getting another MRI scan to see whether there is a fresh vascular compression, or to wait and see now what happens. It takes time to get an appointment here in the UK, so should I set the ball rolling now, in case the pain comes back with a vengeance? Anyone had a similar experience?
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