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Return of TN pain, 2 years post MVD

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Sasha8101
Sasha8101

Hi all,

I had MVD surgery two years ago for my TN and have been blissfully pain free up until around three weeks ago, when I suddenly got a series of awful return attacks. The main difference this time is that I got woken up at night by searing attacks, which didn't happen two years ago (previously I only got attacks when awake - talking, eating etc.

The attacks have stopped again, so I don't know whether to pursue an appointment with my neurologist (I have MS) and neurosurgeon with a view to getting another MRI scan to see whether there is a fresh vascular compression, or to wait and see now what happens. It takes time to get an appointment here in the UK, so should I set the ball rolling now, in case the pain comes back with a vengeance? Anyone had a similar experience?

Sasha

0 likes, 6 replies

6 Replies

  • cary14293
    cary14293 Sasha8101

    Posted

    i myself wont have the MVD surgery because sadly the TN does come back. Many people like yourself get relief maybe for years and then out of nowhere it starts up. i am so very sorry you are going through this again. I would highly reccomend you get an appointment with your doctor. I live in the United States BTW.. how long does it take to see a doctor in the UK?

    • Sasha8101
      Sasha8101 cary14293

      Posted

      Thanks for your reply. I decided to get the ball rolling in case the pain returns, so put a call in to my doctor/GP. It can take a few months to be seen if you're not private, here in the UK.

      Best wishes

      Sasha

    • cary14293
      cary14293 Sasha8101

      Posted

      best wishes and will keep you in my prayers. Wow that is so sad it takes that long to be seen.

  • lee12629
    lee12629 Sasha8101

    Posted

    my friend had the surgery,she is doing wonderful. It might not ever come back,as with all things not all outcomes are the same,depending on surgeon etc. Good luck.

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