Returning TN
Posted , 5 users are following.
I guess I've been having TN fir some months prior to getting it confirmed. Doctor put me on Tegeretol 2 x 100mg a day which took the pain away immediately, increasing to 2x 400gr a day as I was experiencing "breakthrough pain". This went well and the pain disappeared. Then it was suggested to reduce the meds and I had got down to 1 tablet every other day. Then, it came back! Tried the increasing the Tegretol (with Drs advise) but it ain't shifting! Now my face is slightly swollen and I feel as if I've had an injection from dentistry in my gum. Pretty fed up. Any info would be most grateful. Sue.
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Valkyrie sue11869
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has your doctor suggested a Neurologist visit to you at all? Also there are other meds available besides Tegretol that your doctor might try. Everyone is different so Tegretol is not the be all and end all. I am amazed that you managed to get down to even 1 Tegretol a day actually. I wish i could.
I know what you mean about the swollen face feeling. I get that too.
sue11869
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Because I guess I was doing so well on the intial round of Tegretol it was recommended I reduced it until eventually I would be off them. But my goodness, talk about come back with a vengeance?! It's very depressing or is that me?
Does yours come and go? Sue.
Valkyrie sue11869
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sue11869
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Valkyrie sue11869
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sue11869 Valkyrie
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They can do what ever they want to me as long as I'm not conscious! I've read about some of the procedures and they are pretty gross. But I guess if it takes the pain away. Hope your scan goes well. Off to take my tablets now lol!
sue11869
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paula76255 sue11869
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sue11869
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paula76255 sue11869
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sue11869
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paula76255 sue11869
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laurel3865 sue11869
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sue11869
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Pain really has been coming and going in waves. Inside of my cheek feels swollen and sore and so weird it's worse at night, what's that all about?! Frozen pack of peas help. I would consider any further treatment to get rid of this pain. If I thought I would have to live with this forever it doesn't bare thinking. And, it can happen to anyone anytime. Thanks for infor on MVD and I hope your getting better each day, and at least without pain!
Valkyrie sue11869
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