Reumatoid arthritis

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Hello! So, I was diagnosed with RA (left hip and knee) when I was 10 (I'm 20 now). It took few years before doctors set the diagnose. I was on an agressive therapy throughout most of my high school and my condicion was under control (the pain never fully dissappeared but it was okay). but.. the pain got worse again, idk if it's just me panicking but I sometimes get really depressed. I'm scared of the future, I mean, if I'm in such pain now how will I feel in 20 years?

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  • Posted

    So sorry Robin but keep your head up... RA is fickle. In the future you could be in remission. I don't think there is any way to tell you what lies ahead. But good luck to you & prayers for you.

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  • Posted

    Hi Robyn,  I am 74 and was just diagnosed,  I dont like the pain in the morning , mostly, but at my age it is the only ailment I have ever had, I can not cry about anything when I read your story.       But Robyn I reckon you have time on your side for good medicines and specialists to help you,  I think there is a cure in your future, probably not in mine.    You have taken a great step in joining this group,  you will discover a lot of helpful caring people who will guide you through this.  Hang in there and keep writing , we will keep replying with support and whatever information we can.
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  • Posted

    Hello royn37,

    That's a good question, and i am so sad to here you where diagnosed so young, i was diagnosed 2 years ago at the age of 53 and thought it was just an old age thing, how wrong i was.

    I am now on Roactemera (self inject) & prednisanol which has it under control but i still have moderate pain attacks and stiffness all day every day.

    I had it very aggressive an i was in a wheel chair for the first 2 months of my diagnoses. And like you i am also very worried about my future as i have been told it will not get any better and will get worse as i get older. The only family i have is my mother who is 76 and a heart transplant patiant of 23 years, and she also has her problems, so you can under stand how i feel about my future.

    You are still young so you never know a new drug maybe available for us all and improve our lives. Maybe you might be one of the lucky ones whereby you wake up one day it it might have gone ...it has been known.

    But all i can offer you is keep strong and healthy my friend and take each day as a gift as i do....Andy

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    • Posted

      Andy, are you out of the wheelchair now? You had it very bad, you're the first person I have heard that was in a wheelchair just after being diagnosed. ((hugs))

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    • Posted

      Hi river22, yes i had it so aggressive i had to be lifted to the bathroom , could not walk as i had all my joints effected, it came on so quickly within a week of diagnoses i was in a wheelchair for about 2 months untill the medication started to take effect, I was on high dosage of Methetraxate, Prednisalone and Hydrochloriquin and hand fulls of Paracetamol. I am a lot more mobile now, but i still use my chair if i am going to be out for a good period of time where i would have to do a lot of walking. i can only stand for about 5-10 minutes before i start to get pain in my feet ,knees, and lower back. The biggest problem i have is not being the person i once was, i used to livein a great part of Portugal, i cycled around 300 miles a week, gym 4 times a week, and hold down a full time job as 2# chef in a Thai restaurant. And now i only go out for hospital or doctors appointments and shopping, I also have had Pulmanary embolisms in both lung, and Pnuemonia last year, which is a common problem with RA....infections. but i concidor my self as being lucky to have a good Rhumy team at the QE here in Birmingham, and they do the best they can offer.   So every day to me is a gift and i still have a wicked and sick sense of humour....thanks for the hugs.
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  • Posted

    You didnt say what meds you are on, but it may be time to change meds. What does your rheumatologist say?
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  • Posted

    Robyn, things will get better! Every RA person's middle name is Hope. Always have hope! Like the others say, they could come up with something to help. They are researching and coming up with different things all the time. One interesting research that I've read about is stem cell research. So keep your chin up!

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