reverse stoma

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Hi just wondering if anyone has had a reversal from diverticulitis. I have a stoma bag and am able to get a reversal but have heard it sometimes is worse than the colostomy bag. Any feedback will be much appreciated. Thanks Mary

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27 Replies

  • Posted

    Hi Mary

    interested to hear answers to your question, as I go in for my colonectomy 24th Feb have been told I will have a temporary stoma, though not sure how temporarysad

    OK about the colonectomy, but not looking forward to the stoma. Have you found it relatively easy to live with?

    Scouse

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    • Posted

      Hi scouwegian

      I've had my temporary stoma since June last year. All I can say about it is hard to get used to at the beginning in time it gets easier. The stoma itself doesn't hurt because it has no nerve endings but be careful when washing not to rub so hard or it will bleed but honestly I've coped really well looking after the skin around it. This will be all explained to you by your stoma nurse. The only other thing is when you go out just make sure there's toilets if you need them. I get drainable bags I find these easier. Also it's unpredictable when your bag fills up anytime during the day to during the night. But in all honesty I found it easy to cope with after a while. The only other thing is when you empty it can be a bit potent smell so make sure the bathroom window is open or sprays. I hope this helps if you need any more info about it please let me know as your not alone. Mary

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  • Posted

    Hey Mary. I have had a reversal. It is true that it is a little more difficult but I have fared well. I had issues to begin with but I will be a year out in April from the reversal and can eat anything I like. However I still get diarrhea with some things but nothing an antidiarrheal med won't take care of. Its really up to you and what you are willing to go through to get back close to normal. No more flares to deal with. No ostomy supplies to buy and no stoma to care for. I still make sure I know where the bathfoom is for my own peace of mind. LOL

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    • Posted

      Hi Lucy

      Thanku for letting me know yea I'm going to go for it and just see how it goes 😊 I know it can give you diarrhoea and have done a lot of research into it but as you say it's trying to get a semi normal life back. I don't mind the stoma but yes it restricts your lifestyle and can be a pain in the arse 😂. I'm waiting for my appointment now as everything is healthy with the stump and all good for the reversal. I have asked for keyhole surgery as I was opened up originally and don't really want that again. Thank you for your response it helps to talk with someone who has had it done 😊

      Mary

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    • Posted

      Please keep me abreast of your success and if you need to talk im here. I named my stoma and treated it like a new child. Made it a little easier to deal with.
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    • Posted

      I have decided when I get my ileostomy to name it "Mike" as that is the name of the ex-husband of my Mrs, and he is also a little "sh1tbag"frown Hopefully that I will soon get rid of permanently ( the ileostmy that is)

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    • Posted

      Ah bless you yea I'm quite attached to mine tbh sounds silly lol yea I will Def keep you informed of the opp I'm just waiting for the letter for it its s great help talking to someone who has been through it I appreciate it very much.

      Mary 😊

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  • Posted

    Mines name was the "little a$$hole". Fit him great. He was always running off at the mouth...er...butt. LOL

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