reverse stoma
Posted , 3 users are following.
Hi just wondering if anyone has had a reversal from diverticulitis. I have a stoma bag and am able to get a reversal but have heard it sometimes is worse than the colostomy bag. Any feedback will be much appreciated. Thanks Mary
1 like, 27 replies
Scouwegian mary0612
Posted
Hi Mary
interested to hear answers to your question, as I go in for my colonectomy 24th Feb have been told I will have a temporary stoma, though not sure how temporary
OK about the colonectomy, but not looking forward to the stoma. Have you found it relatively easy to live with?
Scouse
mary0612 Scouwegian
Posted
Hi scouwegian
I've had my temporary stoma since June last year. All I can say about it is hard to get used to at the beginning in time it gets easier. The stoma itself doesn't hurt because it has no nerve endings but be careful when washing not to rub so hard or it will bleed but honestly I've coped really well looking after the skin around it. This will be all explained to you by your stoma nurse. The only other thing is when you go out just make sure there's toilets if you need them. I get drainable bags I find these easier. Also it's unpredictable when your bag fills up anytime during the day to during the night. But in all honesty I found it easy to cope with after a while. The only other thing is when you empty it can be a bit potent smell so make sure the bathroom window is open or sprays. I hope this helps if you need any more info about it please let me know as your not alone. Mary
Scouwegian mary0612
Posted
Mary, thanks. Have pm'd you
Scouse
mary0612 Scouwegian
Posted
I've replied to you 😊lol if you still need to talk don't hesitate to ask no problem
Mary 😊
mary0612
Posted
Mary ☺
LucyB53 mary0612
Posted
Hey Mary. I have had a reversal. It is true that it is a little more difficult but I have fared well. I had issues to begin with but I will be a year out in April from the reversal and can eat anything I like. However I still get diarrhea with some things but nothing an antidiarrheal med won't take care of. Its really up to you and what you are willing to go through to get back close to normal. No more flares to deal with. No ostomy supplies to buy and no stoma to care for. I still make sure I know where the bathfoom is for my own peace of mind. LOL
mary0612 LucyB53
Posted
Hi Lucy
Thanku for letting me know yea I'm going to go for it and just see how it goes 😊 I know it can give you diarrhoea and have done a lot of research into it but as you say it's trying to get a semi normal life back. I don't mind the stoma but yes it restricts your lifestyle and can be a pain in the arse 😂. I'm waiting for my appointment now as everything is healthy with the stump and all good for the reversal. I have asked for keyhole surgery as I was opened up originally and don't really want that again. Thank you for your response it helps to talk with someone who has had it done 😊
Mary
LucyB53 mary0612
Posted
Scouwegian LucyB53
Posted
I have decided when I get my ileostomy to name it "Mike" as that is the name of the ex-husband of my Mrs, and he is also a little "sh1tbag"
Hopefully that I will soon get rid of permanently ( the ileostmy that is)
mary0612 LucyB53
Posted
Ah bless you yea I'm quite attached to mine tbh sounds silly lol yea I will Def keep you informed of the opp I'm just waiting for the letter for it its s great help talking to someone who has been through it I appreciate it very much.
Mary 😊
LucyB53 mary0612
Posted
Mines name was the "little a$$hole". Fit him great. He was always running off at the mouth...er...butt. LOL
mary0612 LucyB53
Posted
Lol I've named mine my dogs name Oscar cause I'm always picking up his poo in a bag 😂
LucyB53 mary0612
Posted
Scouwegian mary0612
Posted
Humour has to be the best way to handle this crappy illness and its affects
Helps being a Scouser and having a family that will find humour in it
Scouwegian LucyB53
Posted
You always give me a chuckle Lucy
mary0612 LucyB53
Posted
Lol yeah I had an instance when I was in bed woke up as it felt big I thought I'd let the air out 😬 oops wasn't air 😂 so yea everywhere was up cleaning shower but learnt from that one 😀 check first to see if it's full of air or 😷 lol
mary0612 Scouwegian
Posted
Oh Def humerus you gotta laugh or you will cry 😂 it's something we have to live with so make the most of it tbh 😊 and being positively head strong to cope 😊 x
Scouwegian mary0612
Posted
OMG ......Mrs will make me sleep in the garage just to be safe and sure
No way will she risk the bed sheets lol
mary0612 Scouwegian
Posted
Oh lol just don't do what I did 😂 make sure you get to the toilet 😁lol you learn by experience in the end 😆
Scouwegian mary0612
Posted
I will have to get a latex onesie for bedtime
mary0612 Scouwegian
Posted
😂😁😃😄 try getting that off when you need the toilet 😲😱😵😨lol
Scouwegian mary0612
Posted
never thought of that
I am so dumb at times lol
LucyB53 Scouwegian
Posted
You guys are so funny. I asked my daughter to make me boiled eggs soon after getting home from having the "little ah" surgery. When I sat up in the bed there was this horrible smell. I thought the bag had leaked. I was trying to get up so I could clean tbe mess up. It was the boiled eggs. We both laughed till the eggs were cold. Scouse you will have your moments but just find the humor in it. It will make enough pleasant memories that the bad ones will fade away.
Scouwegian LucyB53
Posted
just put me off boiled eggs

LucyB53 Scouwegian
Posted
😅😅😅 It did me for a while but I still love them. Besides they are very good for diarrhea. Also easy to digest. I can't wait to hear some of your stories.
Scouwegian LucyB53
Posted
Mrs wants to wax my tummy b4 op ready for the stoma
I'm scared
LucyB53 Scouwegian
Posted
O..U..C..H..!!!!! 😅😅 You are a better man than me. 😅😅 I never thought about that as being a woman I don't have any stomach hair. D..O..U..B..L..E.....O..U..C..H!!!!!