1. Community
  2. Women's health
  3. Lichen Sclerosus

Reversing clitoral fusion/shrinkage

Posted , 22 users are following.

Thedramalama
Thedramalama

I have recently been diagnosed with Lichen Sclerosus. My biggest issue currently is the fact that my clitoris has apparently vanished! I can still feel it deep down but it seems as though it has been buried under pale skin with a very thin line showing a faint join (no webbing). Both my GP and consultant are very apathetic about this (I bet they wouldnt be if it was their wife!!!). My GP even suggested that Clobetasol would probably 'sort it out'. My questions are:

Can Clobetasol actually fix my clitoris issue? His theory was that the steroid would thin the skin here and eventually re-reveal my lost clitoris - is this even possible?? It sounds dubious.

I have read about testosterone/estrogen creams being able to restore vulval tissue - is this the same for LS patients? Would I gain any benefit?

Are there any methods for me to manipulate the skin to gradually pull it apart?

Is surgery an option and if so how painful is it? Both my consultant and GP seem totally against any surgical intervention which frustrates me greatly. Is there any private clinics in the uk that i could refer myself to for this?

Thanks all

1 like, 45 replies

45 Replies

Prev
  • Jenniflower68
    Jenniflower68 Thedramalama

    Posted

    Hi there,

    I am 43 and struggling with this awful disease also! Misdiagnosed for years and now I the architecture of my vagina has cemetery flattened out and my clitoris is slowing fusing and disappearing. I read post about borax to help with that? I use clobatesol, have been getting Mona Lisa light therapy every six weeks, but and beginning menopause, so I feel like my condition has actually worsened. My doctor said surgery would actually worsen the condition...what have others experience been and what is the surgery called?? I am so afraid that my marriage will suffer because of this. I feel so disgusting and frustrated. I am only 53....I cannot believe there isn't a better treatment for this. I am venting, sorry to ne a downer...just having a rough time of it right now.

  • lucy72097
    lucy72097 Thedramalama

    Posted

    hi

    im going to see the doctor in bath mentioned here tomorrow as my clitoris has disappeared under hood i think or fused to labia minora, im not sure which.

    im really worried as GP wont give me clobetasol cream until ive seen gynae even though i saw gynae 2 years agao with suspected LS byt he sent ke away saying i just needed to use estrogen cream more.

    im so angry this has happened to me and really want the operation to reverse the damage

    Does anyone have any advice for me please?

    many thanks

  • patricia06256
    patricia06256 Thedramalama

    Posted

    you can self refer to a vulval clinic. I know of ones in warwick, oxford and birmingham. THere are probably others

Back to top
Prev

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.