REZUM--HAVE YOU HAD THIS DONE???????
Posted , 385 users are following.
I had a nice conversation today with the President of the "Urology Times". He was telling me that there is a "New Procedure" that has been approved called the "REZUM SYSTEM". The company that makes the system is called "NXThera, Inc". You can google them up and lots of stuff comes up. I called them for a referral and they gave me a Doctor in Minnepolis that has done it over 50 times now. I called his nurse and she said he would call me back and answer my questions on monday. As you guys probably know Doctors are not very good at returning calls but we'll see what happens. Iam not very good at explaining how the procedure works but basically they take the device and put it up the uretha and vaporize the prostate cells which kills them. It works with high pressure "steam" that at a certain degree will kill the prostate tissue. My question for you guys is there anybody out there that has had it done to them and how are you getting along and are there "side effects", etc etc?????
35 likes, 5645 replies
michael38709 ChuckP
Posted
4 months into this and I still have pain when I urinate, I would never recommend this procedure to anyone. Biggest mistake I ever made!
TKM michael38709
Posted
Michael,
Who did your Rezum and where was it done ? Do you know how many Rezum they have done before yours ?
What size was your prostate, and did you have an enlarged median lobe ? How many steam injections did you get ?
thomas37368
Hisgirl777 ChuckP
Posted
My senior Dad had this done last Wednesday. They did the local and also gave him an anti-anxiety. He went home with a foley cath for five days. His doctor is at a major city university hospital and I believe one of two doctors in our city who do the procedure.
he said the procedure itself was a bit painful. After he came home, he was not experiencing any discomfort. The foley cath was a mess though and the main tube was so long it had to be affixed down on his leg which prevented him from emptying it himself (he's not too 'bendy') It was removed at day five. he isn't able to pee on his own yet, and is straight cathing, which he was doing about 2-3 times a day anyway. Still no pain or spasms or discomfort. He has been and is still taking tamsulosin and finesteride.
I'm concerned, after reading all of yall's experiences, about what the next couple of weeks look like for him. If I had read through all of this, I doubt I would have wanted him to do it. Hopefully, he can regain his ability to pee on his own and only use the cath for fully emptying while there is still some swelling.
TKM Hisgirl777
Posted
Hisgirl,
How old is your dad ? It sounds like every thing is normal and expected so far. Recovery from Rezum is one of the longest and most difficult recoveries, but the procedure leaves the urethra intact while removing tissue close to the urethra thus releaving pressure and allowing him to urinate more easily, once the swelling is down and healing is done. The chances of incontinence or erectial disfunction are very low because they stay away from the nerve bundles controlling those functions. I have not had the procedure done myself, but from reading here it looks like break even is at about 4 weeks and improvement starts at about 6 weeks and keeps improving out to 6 months. If he had bladder damage due to BPH that may take longer to improve. Don't expect improvement too soon or you will be dissapointed.
When you say he is "straight cathing" I assume you mean he is using individual intermittent catheters. This is a big plus for him. because he does not have to rely totally on foley catheters.
Good luck,
Thomas
raygar13 Hisgirl777
Posted
had mine a year ago, foley 3.5 days. no bleeding after no pain either. at 14 days urination picked up as most of the initial swelling is down. went off flomax against uro instructions. steady improvement over next couple months, with most noticeable between 2 and 3 months. improvement out to 8 or 9 months. ipss 22 to 8. no leaking, urgency under control. so much better. as soon as he can go on his own he should be home free. watch for painful urination...infection. healing is gradual as the body absorbs the dead cells and frees up urination. this is the best technology and he should be fine
oldbuzzard Hisgirl777
Posted
Most men can start peeing on their own after 1-3 weeks. I took me almost 4 to pee at all and 6 until I was better than before the procedure. The good news is that I got a good result and slower healers don't seem to end up any worse than quicker ones. But your Dad is just about at the first point where anyone can void on their own.
Also, when he starts going on his own, he could have several weeks of bleeding and some urgency. Both are normal and should go away.
russ_777 TKM
Posted
thomas, I've seen several times where people have said that Rezum leaves your urethra intact.Maybe it does in some cases but how could we explain the bleeding and passing of clots during recovery if the urethra is completely intact? I understand there are puncture wounds where the steam was injected, but those are extremely small punctures. Just curious to understand the process.
TKM russ_777
Posted
Russ,
I'm not sure but the puncture wounds in the urethra probably take several days to a week to heal, and bleed during that time causing blood clots. How does semen get from inside the prostate, into the urethra, to be passed out ? The urethra must be porous in the area of the prostate. So if semen can pass out, blood and blood clots could also pass out. This is a good question for a urologist.
Thomas
steven05114 TKM
Posted
Thomas,
.
" How does semen get from inside the prostate, into the urethra, to be passed out ?"
.
Google "verumontanum". When I discussed Rezum with the urologist who later did it, she said that she stays away from the verumontanum. That is to prevent RE.
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Along with bloody pee which lasted until 4 weeks out, I had some episodes of shedding dead tissue which lasted a day or 2 and continued until about 10 weeks out.
.
Steve
Rkraft ChuckP
Posted
I was referred to the Resume urologist and it was found my prostate was 133 ml. The doctor said the FDA only approved it to 80 ml, but he would still do it. I asked what the down side was and he said it might not be as effective and we needed to make sure the insurance company would approve it.
I had the Resume procedure done September 27. The first 6 weeks went much as expected and I was able to go several hours without peeing. Then at about 2 months, I started to dribble. I went to my urologist who put me on Oxybutynin and suggested I see a physiotherapist. It continued to slowly get worse to where by January 15 I needed to pee every 15-20 minutes after drinking a bottle of water and a half hour is now about my average time between pees. I went back to the Resume urologist who performed the procedure for a cystoscopy and he did not find any blockage, so said to see a physiotherapist and added mirabegron 50 mg to my daily drugs. My primary urologist says nobody will work on it for at least 6 - 8 months after the first procedure. My abdomen has never quit aching. They also put me on a couple of antibiotics.
Along with not being able to work, I also can sleep since I need to pee every half hour, so they have me on LORazepam, Lunesta, and Flexoral so I can get some sleep, but even then I only get 1 - 2 hours at a time before waking. Between all the drugs, peeing every half hour, and the no sleep I can't think straight, so can't work. At least the excruciating pain I had a month ago when peeing has subsided. I have an appointment with another urologist the end of March to do a cystoscopy and ultrasound. It has now been almost 5 months since the resume procedure and it has become an unbelievable nightmare.
2019Guy Rkraft
Posted
Rkraft: Damn. I'm so sorry to read this! I feel terrible for you. I know we're all different, and wonder how much of this was due to the size of your prostate.
I have experience with getting only intermittent bouts of sleep so can sympathize. I know how it makes you feel like a zombie during the day. I hope the situation improves over time.
Good thoughts your way.
David
davidaami Rkraft
Posted
So RKraft you don't have a urinary tract infection?
Have they checked your kidneys for an infection?
If it's not an infection you might have to determine if something in your diet is irritating your bladder, like coffee or something else.
patrick45945 Rkraft
Posted
So sorry to hear of your nightmare following the Rezum procedure and hope things improve for you soon! It's experiences like yours that keep me on my CIC routine, hoping to escape a nightmare like yours. I have an app that alerts me when to pee, and I sleep through the night with the exception of a 4am alert to pee and then return for another 4 hours of undisturbed sleep. Bottom line, I get 8 hours every night and have become habituated to the CIC routine.
No, CIC is not for all of us, but is a viable option for those who wish to avoid intrusive surgeries with little chance of success and undesirable irreversible side effects.
Patrick
oldbuzzard Rkraft
Posted
I think you have some sort of infection - UTI, bladder or possibly kidney. I recommend having it checked.
bill1095 Rkraft
Posted
RKraft
I had Rezum on Sept. 28, 2019. My prostate was at 60ml. I have had a pretty difficult recovery, but not as bad as you report. I'm really sorry to hear about the difficulty you are experiencing. It sounds pretty crappy! I have found some help and hope from people here and I hope you can also. The pain for me began to subside after about 5 weeks and I've had mostly steady recovery from then. My urgency and frequency have greatly reduced. I usually get up about twice a night now and don't have to have a bottle in the car for emergencies. It's nice to have further range and also to have a normal stream again.I don't think I would choose Rezum again due to how much pain and difficulty I went through. I also have retro ejaculation, even though earlier in my recovery I didn't. I still have some pain in my groin sometimes and also have a slight pain just prior to ejaculation, that can cause a sort of coitis interruptus, but mostly my orgasms are normal, other than the retro. I guess we are still healing and so there may be continued improvements. I was scheduled for a Urolift just prior to choosing the Rezum, but I think I'd choose the Urolift if I could do it again. I think the Rezum people are under-reporting the negatives of this procedure.Sending you the very best wishes and hope for some improvements for you quickly! Bill G.
raygar13 bill1095
Posted
all the tissue that was killed when steam turned to water happened instantly. If you didnt have retro after the procedure it seems odd that now you do. my urologist (female) said you can clearly see the ejaculatory duct and she stayed away from it. 15 injection, no blood, no pain, procedure was uncomfortable but not painful, no retro. I too had a pain during ejaculation that has subsided in the last couple of months. procedure 1 year ago. with a 150 prostate, I couldnt be happier with the results. improvement out to 9 months. not perfect but way better
russ_777 raygar13
Posted
raygar13, I suspect what she meant was she could see the verumontanum. That's what the ducts feed into from the posterior side of the prostate. It's very prominent through a scope. What can happen is the path that the ducts take from where the seminal vesicles enter the prostate to the verumontanum can be damaged by aggressive TURPs, enucleations, and I suppose by Rezum if the central zone is injected near the veru, even if the verumontanum is left intact. You can't see the ducts themselves, even on ultrasound, just where they enter the urethra at the verumontanum. It seems to me that as long as the urologist doesn't inject into the central zone (at 6 o'clock) much lower than the bladder neck then it should be a non-issue.
One possible explanation for the delayed RE some guys are experiencing is if the injections create too big of a void, even if the ducts and veru are not damaged, when the prostate contracts during orgasm it can't close down on the semen that's "in the chamber" enough to force it out the penis, and it just sits there. Since the death of the tissue affected by an injection doesn't cause an immediate mass collapse of the lobes (the body's lymphatic system has to do that over time), that could explain the delayed onset of RE.
steven05114 russ_777
Posted
Russ,
.
This makes sense for delayed RE.
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Steve