REZUM--HAVE YOU HAD THIS DONE???????

Ken very happy for your out come.  Keep it up  Ken   

Great NEWS KEN !  

I'm similar patient as you . Prostate  50 cc  but with extremely  big  median lobe - 18 mm  long , acting like  "Pressure Valve" . Self cath. too for  1 year already . Feeling this valve at the end of cath. procedure like big blockage .   Can you pass me contact to  your Dr.  for consultation ?  REZUM  seems to be the best solution for me , too.  So you didnt use Foley catheter after procedure ? And  you just continued with self cath. ?  Thanks a lot , Stan

So happy it worked well for you!

We have treated hundreds of men, and the vast majority have great success after healing.

All the best

Stan,

       Yes, your situation does sound very similar. My urologist for the Rezum procedure was Dr. Kevin McVary at SIU Urology in Springfield Illinois. I was fortunate that he was the closest Rezum provider to me because he was one of the lead urologists for the double blind study 3 years ago, and is very good. However, I'm quite sure that you would also do very well with someone who is closer to you. 

       Again, my recommendations are to insist on a general sedative for the procedure and insist on NOT getting a Foley afterwards. Those two things, in my personal experience, and from reading about many of the experiences of others, remove two of the worst parts about the procedure, and allow it to be as simple of a procedure as possible. Since you have been self-cathing, you are a step ahead.

You'll probably need to self cath for a week or two, until the swelling goes down. But you will know when the flow tells you that you don't need them.

Best of luck to you. 

Hi Stan, I am curious. What are your major symptoms, with a medium prostate size and a large median lobe ? Is hesitancy (difficulty in starting the flow) a problem ? Thanks. Hank

My husband had the Rezume therapy without an anesthetic.  A stroke victim at 79, he was given Valium and Hydrocodone an hour before the procedure.  My husband as never taken pain meds in his life.  He walked into the office of the urologist and was wheeled out 30 minutes later, unable to walk and suffering dementia.  After a trip to ER, a hospital stay, and now in rehab for a few weeks, I would recommend that another patient like my husband have the procedure done with anesthesia.  Perhaps it would have been more gentler to the body.  After 2 weeks of having a catheter, the Foley will be removed Feb. 21st.  I know the urologist 2 days after the procedure wanted to put a stent in the prostate.  I suppose he still might want to do this, but my husband and I are both scared to death of another procedure.  Help!!

Joanna

It's probably the Spanner stent which is a minimally invasive procedure and is temporary and sometimes used instead of a Foley.  If he can void properly when the Foley is removed, then he won't need anything. If he can't void properly, they can either put the Foley back in or teach your husband how to self catherize himself. The Spanner stent would be a third possibility.

Jim

As to your husband's dementia post surgery. This is a well known syndrome in the elderly caused either by trauma and/or anesthesia. Point being that anesthesia may not be protective in this regard but might even aggravate the situation. Tough decisions as we get older!

Jim

Jim, I don't know if he could self-catherize himself, due to the stroke and his lack of his left hand.  I guess we'll know more on Wed.  Thank you.

Self catherization is the most common method of voiding in the SCI (spinal chord injury) community so lack of dexterity can be overcome with practice and/or help devices. That said, since it will hopefully only be temporary, then reinserting the Foley if he can' void by himself sounds like the best bet, assuming he is tolerating the Foley. Hopefully he will be able to void when the Foley is removed so this all will become academic.

Jim

First, get a different doctor immediately.

Second, get a lawyer and sue. This should not have happened.

Neal

While a second (third?) opinion is never a bad idea, it's very difficult to ascertain on an anonymous forum the exact pathway of care.

It's certainly not the right answer to "get a lawyer and sue" as the next step, prior to having your actual care evaluated in person by a professional.

I don't think that procedure was right for a man at 79 and a stroke.  I hope he get's better.  Ken 

I also appreciate the comments from Neal and Jersey Urology.  Joel was transported from the rehab facility to the urologist's office, for a totally wasted visit.  I thought and so did rehab that he was going to remove the catheter and observe if Joel could properly pee.  Oh no, the urologist just wanted to "see" Joel, but the catheter would remain another week. Six hours before the visit, the rehab nurse will remove the catheter.  Joel is to drink lots of liquids.  I told the urologist that I could have told him over the phone how Joel was doing!  He didn't appreciate that.  So guys, stay tuned for next week's update!

Joanna, wife

Ken, I couldn't agree with your more.  In hindsight we never would have done this, though I don't know what the alternatives are.  I just hope that next week when the catheter comes out, Joel does well.

Joanna

What you said to Jim.  I think that whole thing was a waste of time and that put a lot of stress on him and you.  Only time will tel.  I will put him on my prayer list  Take it easy and just make him comfortable  Ken 

Sounds like they're not going with the temporary stent idea you mentioned earlier, which makes sense given everything. How is he tolerating the Foley? If not, you might want to see if he has the dexterity to self cath. If he doesn't, ask about a suprapubic catheter. It's a minor procedure where they insert a temporary tube through his lower abdomen that let's him void without any tubes in his urethra. If this doctor won't accommodate you on the suprapubic, then I would get a second opinion. In fact, I'd probably get a second opinion anyway at this point.

Jim

My wife and I were talking about your husband's situation, and how difficult it must be. I'm sure that the surgeon performed the Rezum procedure with the very best of intentions. It's just too bad that you both have had such a difficult time since.

      Your husband's situation with the Foley catheter reminded me of something that I was thinking: that every doctor should have to wear a Foley catheter for a week to see how it feels, and how difficult it is to function. Then perhaps they wouldn't be so casual about leaving a patient to suffer wearing it  for an extended time.

I've had the exact same thought.

My reply was to,

"First, get a different doctor immediately.

Second, get a lawyer and sue. This should not have happened."

So on the first thing to do, we agree. Surely, you don't think there's no liability here, do you?

The medical profession will be improved by getting the incompetent people out, just as would any other profession. If mistakes are not costly to those doing them, there will be more of them.

Neal

Good morning.  It's been about 6 days.  How is your husband doing any better.  I will keep you both in my prayers...Ken

There may well be liability but getting a settlement or judgement can be much harder than insurance companies and doctors who want to limit their liability would have you believe. Be prepared for a long fight - if you get a judgement they will appeal and appeal. One tactic often used with older plaintiffs is to stretch things out until they become incompetent or die.

Your life has been permanently damaged as a result of this doctor and it can't hurt to speak to some attorneys and see what comes of it. If someone with good credentials will take your case and front the money needed to proceed, there's no reason not to pursue this. And I'm glad you were able to finally get a workable solution. At least now you can live a reasonably normal life.

You cannot tell if there is “liability” from the above. We don’t have an entire medical record to review. Would recommend a second opinion. MIST procedures are often used for patients who cannot tolerate something more invasive, and would need a medical professional to review the case. Telling someone in an anonymous forum to “get a lawyer and sue” without the whole story is irresponsible.

Ken, you're so kind to remember Joel.  He had the catheter removed Wednesday morning, and gave a good pee just before he was to see the urologist 6 hours later.  Apparently, it was so good, that it was all over him!  He did tell me that it was very painful when the nurse at the rehab facility pulled it out.  Apparently, the urologist was so pleased with Joel, noting that his bladder was fully emptied.  Happily he didn't need a stent, and won't see the urologist for another month if there are no problems.  I'll see him this afternoon and see how he is doing.  Of course now he has to call for an aide if he wants to pee, so he might miss the catheter!  A little humor there!  Today is extra difficult, because our beloved dog, Janie is being operated on to remove her spleen which contains a large mass.  We won't know till after, but it's probably cancer.  I know this is off topic, but we sure could use some good thoughts from all you great souls.

Thanks,

Joanna

Telling someone to sue without knowing the whole story is irresponsible. Telling someone to consult with an attorney or three is not. IIRC, nealpros had a greenlight fail performed by someone who had done fewer than 10 of them. He was completely incontinent and spent the better part of a year dribbling non stop into a diaper. Yes, we don't know all the particulars, but it certainly couldn't hurt to have a competent attorney examine everything and weigh in.

It's difficult to see why advising someone to seek advice from another professional would be "irresponsible". The lawyer will be able to advise about liability, and chance for success of the case. I agree that you might want one who would do the case on contingency, taking part of the settlement in lieu of fees to the client. That would mean that the lawyer believed that there is a good chance of success.

Would strongly advise to see a urologist rather to hopefully make him better. I didn't see anything in the above anecdote that is outside the standard of care, so not sure why you would waste a lawyer's (or this poor woman's) time.

You're right of course - and imagine a doctor worrying about wasting a lawyer's time. Doctors don't like to be held libel for their mistakes, insurance companies don't like to compensate that liability and lawyers like to make money from those mistakes. Seeing a lawyer, assessing liability and the likelihood of a judgement/settlement makes perfect sense. And I wouldn't get legal advice from a doctor any more than I would get medical advice from a lawyer.

That is very good news.  Maybe he will be able to get better without anymore procedures.  Sorry about Janie but we only can do so much for our pets.  My daughter just got 2 dogs from the pound.  One big one that thinks he's a lap dog.  He is 100 pounds.  And the other they were going to put him down.  He is 10 years old and has a heart problem.  He is a long hair Chiwawa. My daughter said to take him to give him a good life for as long as he has.  Hope all goes well for Janie.  For now you can rest a little.  I will keep you all in my prayers..Ken

They don't worry to much about liability and it would take a lot to win.  You also sign the papers to have the surgery.  I never give any doctor total control for that reason.  Ken

Ken, you have a very special daughter.  Joel continues to be feeling good.  Maybe he's one of the lucky ones, and maybe he really did have a good urologist.  I know men come from all over Florida to see him.  Janie has come through the surgery well, and is in the recovery stage.  I really appreciate all the prayers.  She's our perfect daughter!!

Glad all is working out.  With all of this.  You need to take care of you now.  Ken

Hi Buzzard,

You're absolutely correct about this issue. To set the record straight on my history, however, I had a penile implant done incorrectly, but have since had it fixed, and it works perfectly. No green light.

Neal Pros

I agree on the "hard to follow" comment Ken. I am new here, and had assumed that posts were all chronological, especially when I can sort by oldest or latest, but I've quickly learned that's not the case, lol!!   I don't quite get how they actually are indexed, but it seems pretty random, and very hard to follow logically.  That said, can I ask where you had REZUM done?

Scott  First of all I did not have the Rezum procedure.  I have a Urolift.  You will get e-mail from every one and all procedures.  If you put one in you will get men that want to answer your questions.  Good luck.  Urolift    Retro 0 %  Rezum  Retro  10 to 15 %   Ken

Scott,

      I had my Rezum done at the SIU (Southern Illinois University) Urology department in Springfield, Illinois. 

       

'The Other Ken;

Too many 'Kens' on here!

Scott was asking me where I had my Rezum procedure. 

By now you probably already noticed that but just thought I'd type this here.

Regards,

Ken in Illinois.

No problem.  I did not see that.  Kenneth of Orlando

Thanks all Kens ...LOL.  funny that they also gave u both a number starting with 195 :-)

 

Yes that is funny.  I just like to know how did everything go on thurday.  How are you feeling  Keni