REZUM--HAVE YOU HAD THIS DONE???????
Posted , 385 users are following.
I had a nice conversation today with the President of the "Urology Times". He was telling me that there is a "New Procedure" that has been approved called the "REZUM SYSTEM". The company that makes the system is called "NXThera, Inc". You can google them up and lots of stuff comes up. I called them for a referral and they gave me a Doctor in Minnepolis that has done it over 50 times now. I called his nurse and she said he would call me back and answer my questions on monday. As you guys probably know Doctors are not very good at returning calls but we'll see what happens. Iam not very good at explaining how the procedure works but basically they take the device and put it up the uretha and vaporize the prostate cells which kills them. It works with high pressure "steam" that at a certain degree will kill the prostate tissue. My question for you guys is there anybody out there that has had it done to them and how are you getting along and are there "side effects", etc etc?????
35 likes, 5645 replies
robert81316 ChuckP
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So....I've not been on here in weeks but wanted to give folks an update. I saw a NEW urologist as I started having symptoms after what was a pretty good two weeks of feeling good. Great flow and only waking two times a night to pee. This was a marked improvement over the 3-5 times a night I was getting up before they removed my stone. Well, this new doc was just absolutely amazing. He was patient, asked me my complete history, explained everything and went on to answer questions. He also did a cystoscopy at my request and said that my prostatic urethra actually looked a lot better than he thought it would considering I just had that thing removed six weeks prior. He diagnosed me with prostatitis......can you believe it? After all I've been through. Well flow isn't as good and I'm back to now 4 or 5 times a night getting up to pee.
This doctor told me he doesn't like REZUM, because it's a burn and burns suck. He does nothing but button turps. And he told me he can also control where he puts the button to prevent retro. He said he doesn't get patients with ED or incontinence after the surgery. I asked him how many he's done, and he couldn't even tell me other than he's done every type of TURP under the sun. He said that if I don't get back to functional flow and not getting up at night he might want to TURP me. I already have permanent retro from REZUM so what do I have to lose. This may be a possibility for me because I just want to be back to as normal as possible. I could be dealing with an infection or I might just not be a success story for REZUM. After all with all my complications I would say I wasn't. At least I had a couple of good weeks. Now I can say that Friday was likely my best day since I had the surgery. I felt almost no symptoms, except crappy flow. And my retention was relatively low. 50ml at the doc two Friday's ago. But that wouldn't be a surprise with prostatitis. We will have to see if antibiotics work or if I truly just need a redo of a surgery. If so I've already decided I would let this doc do it because of how professional and caring he was. We talked extensively about preserving sexual function, except the retro of course. I honestly believe my first doc could have avoided doing that to me, and before the surgery he never explained it. I had no idea until this doc that it was a permanent thing.
I'm also being treated for anxiety and depression now because I couldn't cope with all the crap I'd been through. I guess I'm not as strong as some other folks.
First thing this doc said to me when he entered the room was "You've had a s****y year". Then came the compassion. I like him, unlike my other doc who was practically mute. Never explained anything without me asking. So if I have to have another surgery it will be a TURP. I've already lost my ability to ejaculate and if I'm not going to lose my ability to get an erection or have incontinence I've got nothing to lose. And the healing time will be much faster than REZUM.
hank1953 robert81316
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" ..the healing time will be much faster than REZUM..." Are you talking about Turp ? No kidding ? Hank
robert81316 hank1953
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Yes. At least for me. Remember ive had REZUM in October and I'm still not right. At least with a TURP in my case I would get immediate results for flow.
kenneth1955 robert81316
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robert81316 kenneth1955
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The way he explained it to me and I asked, Why did I have ejaculate 8 days after but not now. He said because it takes the tissue time to die. I will never get it back, so it's permanent. But I want to NEVER have problems again so a button TURP is worth it to me. I have nothing to lose at this point, even he said you already have retrograde, so if we need to TURP we will. I'd rather just have it done to get my freaking life back.
kenneth1955 robert81316
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oldbuzzard robert81316
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There is no procedure that will guarantee you won't have a problem. Prostates continue to grow no matter what you do to them and there are many who have had 3+ procedures, including TURPs. Some questions: 1) If prostatitis is your problem, that explains why Rezum didn't work, but not why he thinks a button TURP will. 2) Prostates don't grow and shrink on their own, so if you had two good weeks its because something else abated that has nothing to do with your prostate. Button TURP won't help that and no other prostate shrinking procedure will either. Have they done a urodynamics test to see if your bladder might be some of the problem? If it is, prostate procedure won't help that either. Also, he's misleading you if he says that recovery from a full out surgery is shorter than a procedure like Rezum. I'm sure there are cases where people have recovered quickly from it - but from what I've read you're looking at 3 months.
robert81316 oldbuzzard
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I just recently developed prostatitis. Maybe left over bacteria from the stone and/or removal of. I still get up at night multiple times to pee and flow isn't what it was. As you can imagine my flow was great after the stone came out. I am making my own assumptions on recovery because I know guys who have had it done. The doc is way better than my last and if making my flow better and getting sleep will improve I will gladly do it. Obviously with all my complications from REZUM the surgery wasn't a resounding success. I wish it was really. Time will tell. This isn't something I'm going to jump into. I will wait to see how my treatment comes out. Its too early to tell. If the prostatitis goes away and I'm still getting up at night to go multiple times and my flow sucks I will deeply consider it. Thanks
jimjames robert81316
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robert: He does nothing but button turps. And he told me he can also control where he puts the button to prevent retro. He said he doesn't get patients with ED or incontinence after the surgery.
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Interesting. A few doctors in Europe perform EP (ejaculation preserving) TURP, which sounds what you doc is offering. Do you mind posting his name and hospital affiliation for our members? If not, could you private message me his name. Most doc's performing TURP tell the patients that retro is a given, so it would be good to have some names of docs who have a different approach. It would be nice to get a more exact answer to the question, "how many has he done" plus how many retro's out of that group.
Jim
Jim
JerseyUrology jimjames
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I do button turps and have used every form of laser there is.
Incontinence and ED should be very low regardless of modality offered; lower still with a minimally invasive procedures such as rezum and urolift.
kenneth1955 jimjames
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Jim I have gotten a email from a Dr. Gordon Muir in the UK that he wrote with some other doctor's about saving a man ejaculation. He has done many GL procedure and has had good luck with others. He has said that with preservation of the ejaculatory area that ever with a Turp you can preserve the ejaculation in most men He said like it 90% good instead of 100% none. But this takes time. Most doctors to not want to take the time to do it. I will see if I can figure out if I can send it to you. He said that they found out that 80 % of men still like to keep there ejaculation. I think you should read it. It was very interesting.......Ken
jimjames JerseyUrology
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JerseyUro, I think both Kenneth and myself used "he" in a recent post. The "he" I was referring to, as in "how many has he done" was in reference to robert81316's doctor, who appears to be doing
ep (ejaculation preserving) button turp's, but has not providing success numbers. From what I understand, only a few doctors in Europe take the time to perform this particular TURP technique where ejaculation is preserved in most cases. My guess is that besides learning the technique, the procedure takes more time since more precision is involved.
Jim
Jim
jimjames kenneth1955
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Hi Ken,
We should probably start collecting their names but it's a short list that does ep preserving TURP or ep preserving GL. It's unfortunate that convenience and time trumps patient's benefits, but medicine, for better or worse, is driven by economics. I'm sure if the insurance companies paid more for ep preserving TURP, more doctors would then train and offer it. Kind of sad but...
Jim
kenneth1955 jimjames
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I think I will start keeping a journal on all the procedure's. I have a lot of books at home and I wish we would have thought of this years ago. I am going back home Monday but coming back to Georgia on Thursday till the first week in April. Helping my daughter with my 3 grand kids. Have not done this in 35 years. I have a 10-5 year old girl's that I help my son-in-law get ready for school and get them after school that leave me the 4 year boy at home. He is a hand full but I love them all. Anything I can do for them I will do. I did all of it before My wife was not a home body and I did it all before so I can do it now. I just get tired faster. I watch the kids have dinner for them when they get home home is clean. Only think I don't like is the wash. I had 3 kids but don't remember doing that much wash. Been doing 5 to 6 loads a week. But it has to be done. Anyway I can write it down and then type it up and keep it on my computer. I have a fub that I will keep them on so If I need to I can print it. Going to take me a while to make up a form but I will get it down. I was a ward secretary in a nursing home for almost 2 years back in the 80's It will give me something to do after they come home. Take care. I tried to send that article to you but cant get to to attach Later my friend Ken
davidaami kenneth1955
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It's been a while since I've updated my story. I was the one who had an overactive bladder. The first urologist I visited believed I had an enlarged prostate and that I was on my way to needing Rezum at some point in the future, and that I should take various medications. But the one thing he did prescribe was physical therapy, and that's what worked. By doing the various exercises I was taught by the physical therapists, 8 sessions in total, such as strengthening my transversus abdominis as well as doing a "sub max kegel" exercise along with some stretching of the iliopsoas and piriformis muscles. I was able to return to a normal urination pattern and sleep through the night (my main goal).
?I've started to try just a little bit of coffee, like 1/4 cup in the morning. I'm still avoiding gluten, and anything I think might be triggering an overactive bladder. I'm not taking any medication.
?Before the physical therapy, I went to a second urologist who did a urine flow test, and said my flow is normal, I don't have an enlarged prostate, and therefore there's no blockage of my urethra.
?A bladder ultrasound showed a mildly enlarged prostate but no other pathology, no stones, normal cortical thickness of the kidneys.
?I started the physical therapy in early January, and I stopped taking medications back then as well. I wanted to make sure that the physical therapy was working on its own, so I stopped taking the Alfuzosin and the Oxybutynin. The meds had side effects, and I just didn't want to have that.
davidaami
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I'd be happy to email anyone a .pdf of the physical therapy exercises. The exercises also included strengthening the gluteus medius and the oblique abdominals.
davidaami
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My symptoms probably mimicked a prostatitis, I had to urinate many many times during the day, and it was worse at night - making sleep terrible. Sometimes I would have pain in my bladder, sometimes not. Sometimes there would be pain in the urethra after I urinated, sometimes not. There would often be a few hour period of no symptoms, perhaps from like 3pm -8pm.
?Now I'm back to normal.
joel16281 davidaami
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scott95643 jimjames
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scott95643 robert81316
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oldbuzzard scott95643
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JerseyUrology oldbuzzard
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scott95643 JerseyUrology
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Yes, but haven't been able to find anyone doing Aquablation here in USA, other than a couple closed clinical trials. It's really more like FLA I think, but with Water jet as opposed to Laser, yes?
mike588 scott95643
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FLA does not use the Urethra as the entry point - as far as i can tell from the Aquablation web site it uses the Urethra, and maybe the rectum in some cases because it mentions rectum in risks comment and seems to imply both methods are used.
?FLA does not cause retro ejaculation as far as I know, whilst the Aquablation web site cites 10% risk if I am reading it right.
?I think one of the Urologists at the group I go to was involved in Aquablation trials but I don't know if he's doing it, I know he does Rezum as does another Urologist there, so I am wondering if they consider Rezum more accurate? I asked the PA of my Urologist who does both Button Turp and Rezum and she says he does Rezum but prefers Button Turp - I don't know if it's because it's easier for him or he actually thinks it's better for the patient.
oldbuzzard mike588
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Its doubtful that its easier, possible its more lucrative. But its a surgery, stuff like Rezum and FLA aren't. No anesthesia, quicker recovery, almost no risk of a permanent disaster (its low with TURP too, but there are many stories on this forum of permanent incontinence and/or impotence from TURP but virtually none with Rezum/FLA/Urolift.
While TURP can offer somewhat more extensive unblocking, the vast majority of men with BPH can get sufficient improvement from the new procedures with very low risk. For most, anything more extensive before trying one of them is really bad advice and possibly bad medicine.
jimjames oldbuzzard
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TURP literally used to be the "gold" standard as in $$$ for urologists, but I've recently read that due to diminished insurance reimbursements in office procedures like Urolift, Rezum and the upcoming Aquablation are now more lucrative.
As to anesthesia again, TURP (and I assume GL) can be performed under spinal block with the patient conscious, so not sure it's any more dangerous than the twilight drugs often used with Rezum, for example.
Jim
ken19524 JerseyUrology
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I've noticed that the Procept site compares their Aquablation procedure to TURP only. It certainly does sound like a better procedure than TURP. But it is like most other procedures for BPH in that it relies on the training and skill of the provider to avoid side effects.
One point that, to me, is in favor of Rezum is that the urethra itself is left intact after the procedure. I was able to painlessly self-cath after my Rezum procedure. I doubt that would have been the case for the other procedures that destroy part of the urethra.
ken19524
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oldbuzzard ken19524
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Aquablation does what TURP does with water. The procedure is shorter with much less chance of side effects. So its basically a TURP via less invasive means. That said, its still a big roto-rooter with a long recovery - some say longer than traditional TURP.
Most men with typical BPH don't need that much work done to pee relatively normally and for them, something like Rezum is a much better first option. The odds that it will provide an acceptable level of relief with reasonably normal function within 10 days or so are very high, so going to the heavy artillery in most cases is probably not ideal. Yes, Aquablation is much safer than TURP, but why have it done and wait three months or more for a result that's probable in a matter of weeks (sometimes less) with something like Rezum. If Rezum (or one of the other non surgical procedures) doesn't work, you can always have Aquablation done.
raygar13 robert81316
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Had rezum jan 31 2019. My urologist explained to me that in the rezum procedure she could see the ejaculatory duct and stayed away from it. Even with 15 steam injections, no problem with retro. Actually it is not the steam that kills the cells on the outside of the urethra but the energy released when the steam turns to water. The cells are killed instantly and then the body absorbs them over time. If you had function after 8 days the damage to the cells had already been done. You also had flow. Condition should have improved as the body absorbed the dead cells. Infection/prostatitus a more likely cause for your deteriorating condition. I got a little improvement around week 2 but max benefits occurred between 2 and 3 months. Had a large 140 prostate. Did a lot of research on the rezum procedure. Main source was Richard Levin who did one of the early trials of the procedure. Now he does 95 percent rezum hardly no turp. Way more nightmare stories of turp. Had urinary retention twice before the rezum, now I feel the chance of this happening is zero, have much improved flow, can hold the urgency to go, and have complete control of leaking. ipss symptom relief 22 to 8. Not a doctor but if you had positive results at 8 days when the cells had already been ablated but not fully absorbed it doesnt make sense that now you cant ejaculate. Hope antibiodics improve your condition. Keep researching the internet on the turp procedure, good luck on your decision