REZUM--HAVE YOU HAD THIS DONE???????

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I had a nice conversation today with the President of the "Urology Times". He was telling me that there is a "New Procedure" that has been approved called the "REZUM SYSTEM".  The company that makes the system is called "NXThera, Inc".  You can google them up and lots of stuff comes up.  I called them for a referral and they gave me a Doctor in Minnepolis that has done it over 50 times now.  I called his nurse and she said he would call me back and answer my questions on monday.  As you guys probably know Doctors are not very good at returning calls but we'll see what happens.  Iam not very good at explaining how the procedure works but basically they take the device and put it up the uretha and vaporize the prostate cells which kills them.  It works with high pressure "steam" that at a certain degree will kill the prostate tissue.  My question for you guys is there anybody out there that has had it done to them and how are you getting along and are there "side effects", etc etc?????

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  • Posted

    Chuck I had resume done 9 weeks ago and I'm having lots of blood in my urine. I'd suggest no one ever have it done. My Dr says it normal to bleed. BULLS**T!! IVE BEEN BLEEDING FOR 3 DAYS.

  • Posted

    I had some "intensive" intercourse and had about a week of light bleeding.  According to the internet, it can happen.  

  • Posted

    To All,

    So I have an appointment scheduled for a consultation with a second urologist who does Rezum.  This is in mid-October and outside of the Kaiser Permanente system which is where I have my health insurance.  The first urologist who is with KP, wants to talk with me.  Their comment to me was:

    "I think the more relevant question is whether rezum is appropriate for you.It's less invasive, etc but in some ways that also is less effective. Also there are equivalent options to consider "

    So I am getting my ducks in a row for that conversation.

    I suspect that a few on this forum have been through this conversation before, so I am asking for your suggestions on how to proceed.  I will also be talking with the family-member-MD for suggestions too as they have always given me excellent advice.  As the saying goes:

    "It takes one to know one".

    No offense to doctors intended.  Another note, is that myself and the family-member-MD are leaning towards that I have a medial lobe obstruction.  As I recall from this forum, Rezum works OK for medial lobe obstructions.    Are there any comments here?

    I wish everyone a great Labor Day Weekend, although, I suspect that many of us are no longer working biggrin

    Thanks,

    Steve

    • Posted

      Steve  Just be careful  that they don't try to get you into some other procedure.  If Rezum is what you want they so be it.  Do ask how many injections because you have a right to know.  Good luck  Ken

    • Posted

      The way I think about it after having 2 failed PAEs followed by a "so so" result with FLA - I do believe the more traditional methods are more reliable, but then you almost for sure end up with RE. Therefore it depends how willing you are to put up with some uncertainty - Rezum is one of those where it takes weeks or months to see if it worked. I know from experience it can get you down day after day wondering if things will improve. I regret doing the second PAE but otherwise I'm happy with my choices, I don't have RE and am still young enough for that to be important to me. The argument of "less invasive" is not the issue in my opinion. They all involve some pain and discomfort, wearing a Foley catheter after or whatever.

    • Posted

      I had resume done. Didn't help me at all. If anything it made me worse.

    • Posted

      How are your symptoms now? Do you have urine retention or urinary frequency?
    • Posted

      Thomas had a really unfortunate but very atypical experience. If you have an enlarged media lobe, Rezum is usually the best choice. In an absolute sense, something like TURP or Greenlight might open things up slightly more, but for the overwhelming majority of men with simple BPH (with our without median lobe), that's a distinction without a difference in results, but a major difference with recovery and potential permanent problems. IMO, based on what you described, there is no other procedure that will combine low risk, quick recovery and small chance of permanent side effects (RE with Rezum is 5-10%).

      If they don't twilight you, its usually quite painful, but its quick - each spray takes 9 seconds and most men get 5-7. If your doc offers the twilight option...take it. Recovery can vary - most men take 7-`10 days before they can function without a catheter and its 30 days before the procedure starts to work. Most benefits come weeks 6-12, maximum benefits at 6 months. There is often some urgency and bleeding weeks 3-5. The bleeding goes away as does the urgency. If the urgency is bad, a short course of Myrbetriq will help a lot and reduce it to a nuisance.

      I STRONGLY recommend self cathing rather than the foley. I took much longer than most to be able to pee and I would have been beside myself if I had to wear a Foley all that time. Once you get the hang of it, self cathing is painless, easy and allows you a completely normal life. I was back in the gym, doing everything including squats in 5 days, even though I couldn't pee by myself at all. Even if its only for a week, Foley's suck, hurt and self cathing makes them unnecessary.

      Good luck, I'd love to hear what other things your doc recommends for BPH with a median lobe...

    • Posted

      @mike588:  The argument of "less invasive" is not the issue in my opinion.

      ---

      Hi Mike,

      Thanks for the reply.

      I agree that "The argument of "less invasive" is not the issue".  I had a good talk with the family-member-MD last night, and one thing that came up was that so far, the urologist is avoiding mentioning the side-effects of TURP.  No surprises here.  We look for alternatives to TURP for that very reason.

      Personally, the wait after Rezum would not bother me all that much as I have always been good at waiting.

      Finally, I did not get any notification emails from replies to my post.  I don't know if that is due to this forum which occasionally has problems or from Comcast which regularly has problems.  As a test, can some people make a few more posts?

      Thanks,

      Steve

    • Posted

      @kenneth1955:  Just be careful  that they don't try to get you into some other procedure

      ---

      Hi Ken,

      No problem, I am good at standing my ground.  The key is to do it in a way that does not offend the urologist.  That is why, I talk to the family-member-MD.

      Also, can you post a reply so I can see if I get a notification email from this website as I have not been getting any which could be due to the website or Comcast.

      Thanks,

      Steve

    • Posted

      steve05114,

      Hi Steve,

      I had Rezum done on May 24 2018 and  would do it again in 1 nano second (.000000001 second) with the same URO, Dr. Nancy Huff @ Advanced Urology - Lone Tree/Parker, CO, she did a great Rezum procedure on me. No pain worse than 5 bee stings (yes I was awake with sedation), limited blood spotting in first 2 days and NONE since then!

      My results have been great and I strongly recommend Rezum over all the other procedures I looked into.  URO LIFT was not recommend by my URO because of my prostate's median lobe obstruction.

      So Steve, I hope you have great results, like I did, with your Rezum procedure,

      I am working on a complete and detailed report and was waiting until my 3 month follow up, which just happened on 8/29/18.  So I hope to finish and post it on this sit soon.

      For now, I will say that I am 75 yo, had a median lobe, 22gm prostate, very large expanded bladder (had held 2,000mll more than once) and I was in complete retention, and used Foley Catheters for 16--17 months (could not pee without one and found it not a big deal for my situation, I did not want what I consider the "hassle" of self-cath. ).

      And to Kenneth1955, before you ask, I unfortunately have not had any sexual encounters, so far, to be able report on my retro or not ejaculation status .  But if you know any available females who would like to help me figure that out, please let me know.  smile 

       

    • Posted

      Not at this time Allen  Very happy that it worked out so well for you  Ken
    • Posted

      @allen98488: I had Rezum done on May 24 2018

      ---

      Hi Allen,

      Thanks for the reply.  I am looking forward to your report.  I can't relate to the 5 bee stings as I made it to 62 without ever being stung by a beeredface

      Dr. Nancy Huff at Advanced Urology is part of the group, where one of the urologist was involved in the clinical trials before the FDA approved Rezum in December 2015.  Do you know how long she has done Rezum and about how many she has done?

      The second urologist that I am seeing that does Rezum is a lot closer to me as I live north of Denver.  They were recommended to me by someone at NxThera.

      Steve

    • Posted

      Hello Allen-

      I had rezum done 5/16 of this year. SAME results as you.  I am 65 and feel like an 18 year old now.  I found this procedure to be extremely painful but worth the effort. Awake during the entire procedure. Urolift was advised against for the same reasons.  The surgeon administered 9 steam shots in me.  Can you tell me if you got any Insurance payments?  I had to invest my own money and the office told me that they would do everything possible to collect.  So far nothing.

      -thanks, Joe

    • Posted

      Joe1953,

      Once I decided the meds were not working and wanted to go with Rezum, I had to wait about 8-9 months before Medicare started paying for it in Colorado.  I also have AARP United Health Care Medicare Supplement Plan N which paid the rest except for $14.99 which I paid out of pocket.  I learned that the Doctors do not deal directly with Medicare, they have to process thru MACs (each MAC covers certain areas of the United States and they are independent companies from the Dr.'s and from Medicare, i.e.the middle man!  Here, the MAC was not coding Rezum correctly.  I got personally involved directly with Medicare.gov, the Dr.'s billing staff and Rezum corporate staff and basically raised hell and magically by the next month it was approved.

      The Medicare approved billing 5389code for Rezum procedure is listed on my Medicare Statement as "Urinary system procedure (53899)".

      I advise you to stay on your doctor's billing staff and your insurance company.  They also need to state on the billing form "Medical Necessity" for insurance to pay for Rezum because some Men have it done just because they don't want to take the meds.

      Allen 

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