REZUM--HAVE YOU HAD THIS DONE???????
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I had a nice conversation today with the President of the "Urology Times". He was telling me that there is a "New Procedure" that has been approved called the "REZUM SYSTEM". The company that makes the system is called "NXThera, Inc". You can google them up and lots of stuff comes up. I called them for a referral and they gave me a Doctor in Minnepolis that has done it over 50 times now. I called his nurse and she said he would call me back and answer my questions on monday. As you guys probably know Doctors are not very good at returning calls but we'll see what happens. Iam not very good at explaining how the procedure works but basically they take the device and put it up the uretha and vaporize the prostate cells which kills them. It works with high pressure "steam" that at a certain degree will kill the prostate tissue. My question for you guys is there anybody out there that has had it done to them and how are you getting along and are there "side effects", etc etc?????
35 likes, 5645 replies
andy0327 ChuckP
Posted
I was leaning toward the Rezum procedure....but now I am leaning toward PAE. Rezum can be done in my uro's office, but from what I can find out the PAE is only done in Virgina...is this correct?
tom86211 andy0327
Posted
PAE is done all over the country by interventional radiologists, not by urologists, so you have to do a little research to find out who does the procedure in your area. It is the most effective procedure relative to side effects.
Tom
randy_85492 andy0327
Posted
Andy, from my research PAE's are offered in NC and Miami through Dr's. Isaccson (UNC) and Bahlia (Miami). ...If you follow the thread, you'll learn how to contact them and forum member success with them..There may be other U.S. locations, but I do not know them...The PAE is performed in a hospital by interventionist radiologists and the REZUM is normally performed in the urologist's office...I had a REZUM in mid-August...It seems to have been a success...
richp21 randy_85492
Posted
Hi Andy and Randy,
The PAE is not necessarily done in a hospital. Dr Bagla at the Vascular Institute of Virginia does it at the Institute, and actually cited that as a benefit so there isn't any exposure to the opportunitic infections that can occur at a hospital. There are many docs throughout the US and other countries (Australia, Portugal, ??) that perform the procedure. Check other discussions in this forum, particularly "Has Anyone Out There had a Prostate Artery Embolization". Posts from men all over who had the PAE procedure.
randy_85492 richp21
Posted
thomas0413 ChuckP
Posted
Thanks for the info. I was not taking Cipro for a couple of months before REZUM so it seems that REZUM helped for a couple of months. I'm scheduled for pelvic scan and cystoscope to find the pain source.
jimjames thomas0413
Posted
Was the chronology then? :1) Pain; 2) Cipro for five months for pain; 3) No change in pain during the 5 months on Cipro; 4) REZUM; 5) Pain went away for a while; 6) Pain came back.
Jim
thomas0413 jimjames
Posted
Exactly. Pain came back accompanied by bladder pain. Medication doesn't seem to aleviate the pain. I'm scheduled for pelvic scan and cystoscope to find the pain source. Friday (11/11/16 I'll post what they find. Bill
forrest46429 ChuckP
Posted
I had this done close to 8 weeks ago. I was put the sleep during so pain wise, nothing really. I was however in and out of a catheter 4 times that included two trips (and expense) to the emergency room.
After 3-4 weeks I was foley free and no real pain. In 4-5 weeks was peeing much better which is great.
However, I just turned 43 two days ago and was sold on this procedure because of no retrograde ejaculation. I now have zero ejaculate, none.
After speaking with my doctor between himself and another doctor in his office they have done a total of 6 of these and only 2 have not had retrograde issues.
I asked him about that and told him look the reason I decided to do this is because they sold this procedure as not having that issue. Not that there was a low chance, that there was... and he interrupted me and said "yes I know they pitched it as gospel and that's not been the case".
I'm 43, been married 2 years, was told this was absolutely not a possibility and now my doctor said it's extremely likely permanent.
I'll be honest, I want to file a lawsuit. In fact I've been looking for law firms that will take my case or already working on similar ones.
2 out of 6, is the number that has had no issues that this company claimed is absolutely not a possibility.
thomas0413 ChuckP
Posted
I had the REZUM procedure April 27, 2016 because I was having extreme pain in the pelvic area. I am 81 so I also had BPH, but the pain relief was my goal. I was put to sleep for the procedure so I didn't feel anything and woke up with a catherter. The catherter was removed in 3 days. The pain subsided and the flow was much better. I did not have pain for about 6 weeks and then it started gradually returning. By October the pain was back to it's original level anywhere from a 2 to 10 level, primarly in the morning hours and is only related to movement. I have no pain until I start moving, right down to just bending over, walking, and even bumps in a car. I went back to the doctor and he suggested a MRI and a Cystoscopy to locate the pain source. I had a MRI last week which came out normal. I had a Cystoscope yesterday which showed that the REZUM procedure had only provided 30% relief of the urethra. So after 6 months later I have the same symptoms as before the REZUM procedure, pain and urinating every 1 1/2 hours. I asked the doc what would he suggest as the next step and he mentioned TURP. He don't have a clue as to the source of the pain. So I am in a quandary as to the next step. Bottom line - REZUM doesn't work long term for everyone.
jimjames thomas0413
Posted
Thomas,
When your doctor says "he doesn't have a clue" that should be a big red flag. They did the REZUM to get rid your pain and it didn't. (I'm not convinced at all that your temporary pain relief was even related to the REZUM). Now he's suggesting a TURP as a next step??? FORGET IT!
He's fishing like a lot of them do. Have a BPH sympton, then try this operation. That doesn't work, then try this. Do not go there with him.
Since they haven't found a pain source it seems to fall within the realm of some sort of prostatitis which often requires patience but hardly ever an operation.
Time to explore things like sitz baths, prostatic massages, relaxation therapies, etc., even a longer term of antibiotics, but not a TURP when your doctor self admittedly doesn't have a clue if it will solve your problem. Unfortunately you may have to see other doctors or research things on your own because many urologists tend to be one or trick ponies in terms of treatments offered.
Jim
thomas0413 jimjames
Posted
I didn't mean that the doctor said he didn't have a clue, that was my preception because he didn't suggest a solid next step . He is going to inject the prostate with Lidocaine Monday to numb it to determine if the pain is coming from the prostate or something else. I diffinately am not receptive to letting him TURP me. I can't see how scraping the prostate would provide pain relief.
Thank you so much for the advice.
jimjames thomas0413
Posted
I think that's a good diagnostic step as long as you are having pain at the time the lidocaine is being injected, or does the lidocaine have a longer lasting effect? I would then assume that if the pain doesn't go away that it's something other than the prostate, however even if the pain does go away that doesn't mean cutting away at the prostate will relieve the pain. It just could mean some type of inflammation that might remain whether he did a TURP or not.
Jim
nealpros thomas0413
Posted
Neal
kenneth1955 thomas0413
Posted
That is right. Don't let hime turp you. You don't know where the pain is. He is just going step by step. Hope it works. Ken
thomas0413 jimjames
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Thanks Jim, I'm going to ask him to confer with the other doctors in the practice and outline a step by step procedure to correct the pain.
thomas0413 jimjames
Posted
I'm not going to let him do a Trup. I told him that the only thing I want corrected right now is the pain. When the pain is gone I will consider methods to open up the ureatha.