REZUM--HAVE YOU HAD THIS DONE???????

Do you have any idea how big your prostate was? If it was on the large size (even for BPH) then these results are typical. And my guess is that you will see more improvement before its all over. You may well be peeing pretty normally in another 2-3 months.

Boyd

Wonderful your results are so positive.

We have treated many patients in similar situations as yours, and most have done great as well (Although it may take a few weeks for the results)

Happy holidays 

Boyd

Wonderful to hear.

We have seen many patients in retention or near retention improve drastically after a few months.

Have a wonderful holiday

Hi Boyd,

Congratulations on your recovery. Sounds like your urologist was correct when he preached patience because of the aggressive approach.

As long as you have been self cathing for several months, and assuming no major UTIs or complications, I would consider self cathing once a week or so to make sure your PVR holds at under 200ml. Should it start slipping, you might consider resuming the self cathing on a reasonable schedule for its bladder rehabilitation effects, especially if the bladder was very stretched going into Rezum. Alternatively, I would have PVR checked monthly for now at your urologists via bladder scanner. With the great strides you made, you want your progress to hold and/or continue.

Jim

Thanks for sharing. Sorry that Resum failed. Why are you considering prostate removal ? Is not there another option ? Hank

Sorry that it did not work did they tell you way.  Don't think about having your prostate out there has to be a better way.  Why not have the Urolift  It will open you up with out cutting.  And when they do the clips they can check the tube and un block it.  Don't let him talk you into having anything removed  Thank about it  Good luck ken   

Hi jcl

I’m sorry you’re still having an issue

You may wish to get a second opinion.

If the prostate truly hasn’t changed at all, it leads me to think that perhaps the device wasn’t working 

What Jersey is saying makes cents .  If it was working you should have had some results  It should have gotten smaller  I would check with the ones that did it to see if there was something wrong.  Ken

Hi Jersey

The urologist that performed the Rezum said it could not be my prostate causing the weak flow - he even called the Rezum rep. and on speaker phone he said ya cant be the prostate must be his bladder so he put me on Toviaz which made it impossible to pee.

When I called his office to report this they said stop the Toviaz and start the Flomax again. The Flomax and Rapaflo did not help at all.

That is when I called NxThera and they recommended I go to a medical urology center at a hospital not an office urologist. They recommended I have more tests done to show why I was still having a problem, but they also said it wasnt going to be the prostate it was more linkely a urethra stricter.

I was seen by Dr. Wiegand at the USF Urology Tampa General Hospital. Dr. Wiegand said 1st he would need to do a rectal check and then a cystoscopy to see if my prostate himself and to see if I had some scaring.

I agreed to the scope and he immediately said yep your prostate is large and I see no evidence that you have Rezum or any other procedure performed - you look like I would expect a new patient with your complaint to look.

He has me scheduled for a video bladder dynamics test next month. He said if that test shows that my bladder is working good we can discuss option for prostate such a TURP etc

I am as anyone can imagine so disappointed. I have been dealing with this since I was 23- 47 now. How is it meds did not work? Rezum did nothing but cause RE and now I have this constant mild pain in my penis since Rezum. 

I did not go back to the Rezum urologist because he in my opinion should have done 4 or more treatments on both sides on just 2. Considering I was suffering from this for over 20 year why not make sure to get it?

Now I must research TURP and all the other options for reducing prostate.

Advice?

Don't get a TURP. Don't consider a TURP - its an outdated procedure with a long recovery and when things go wrong, it can be horrible and permanent (incontinence/impotence).

There are other things, pending a full workup that you could consider. Believe it or not, if you have simple 

Don't even consider a TURP. Its an outdated procedure with a long recovery, potential for devastating side effects (lifelong incontinence/impotence) and for simple BPH other things that are less invasive with much less risk could do the job. You've learned from experience that procedures can be botched. With Rezum, the consequences are minor, with TURP, a mistake or bad outcome can ruin the rest of your life.

If full diagnostics confirm that your prostate is the only (or an important one) issue, believe it or not, Rezum in a competent surgeon's hands is a good idea, even after the failure - either the machine wasn't working properly or the doc didn't know what he was doing, most likely. Urolift, PAE, FLA and even Greenlight are all less invasive with fewer side effects. 

Really Greenlight? When I brought that up to the uro he said no way its a mess.

From what I've read, Greenlight used to be good, until the last couple years. Read recent posts from Robert. He had very bad problems post Rezum. Turns out to be a bunch of stones. Hank

JCL123- Sorry to hear.

The Rezum could be repeated, but based on your experience, I don't think you would trust that.

Urolift may or may not be helpful.

The TURP is considered the "gold standard"; most younger urologists use one of the newer techniques to accomplish it, such as with the Plasmabutton or a laser; results are generally good assuming that obstruction is the issue.

Aquablation is "the latest" procedure offered, and appears to have excellent (early) results; would definitely ask your urologist to review all of these options with you.

It can be, but its a breeze compared to TURP. I don't know why Urologists (including Jersey Uro who is normally right on the money) insist on calling it the gold standard. So many other ways to accomplish similar results are available with much less risk and much shorter recovery times. TURP is a full blown surgery and it can be months before you're fully continent, assuming all else is good. Why would anyone recomend or do that as anything but a last resort is beyond me.

Dr. Weingand seems on the right track. The others not so much to put it kindly. If the scope and video urodynamics points to the prostate as still being the problem, there are a number of less invasive options than TURP, including self catherization as part of a watch n' wait strategy till a better procedure comes along. If the problem isn't the prostate, then you can't expect good results from any prostate reduction procedure. I think it's good you left the urologist who did the procedure at this point. Don't go back. Even if it turns out that the problem isn't your prostate, he should have known that in advance by doing a proper workup including urodynamics.

Jim

jimjames

I have had at least 6 cystoscopies done over the past 20 some years. Dr. Wiegand was the only Urologist that did not hurt me at all. He had me in a special chair in a room just for this procedure. The office Urologist's I have seen all these years just used the lay down table in their exam rooms and wheeled in the scope.

Anyway I am not sure what I should do about the prostate problem. Dr. Wiegand named off a few things we could consider doing after all the testing are done. He was telling me this while I was trying to clean-up from the scope so I did not remember anything he said. I just remember saying to him is that what they call the gold standard procedure and he said yes. I do not and will not get a TURP after reading about it today.

I just cannot believe that with all the technology we have today their is not yet something safe with no side effects for dealing with this problem.

I was trying to do some research on procedures but there are so many options and opinions, and not all are available at all locations. It seems that most of whats out there is what the office urologist can just do as an in and out from his office procedure with no anesthesia. Again we are just cattle.

JCL.  Don't let that doctor rush you into anything.  If you do find out that it is your prostate.  There is a lot you can look into.  You can either do a Urolift which does the same as the other procedure without cutting your prostate out.  It will make a tunnel and relax the bladder or like JIM said do CIC for a while when you need to.  Try to do what the least side effect are for you.  Take care  Ken 

Do any of you have an opinion on Green Light? I think this is what the new urologist from medical school hospital is going to offer. He only does TURP and Greenlight. I emailed to ask. He said he has no reason to do the in office therapy since turp and greenlight work

Good evening.  First of all you need to find another doctor because he just told to take it or leave it.  Both will cause sexual side effects. And they can cause other problem.  There has to me some place else to go where you can have a less evasive procedure.  There are a few that will do the same thing with less of a impact on your life.  Good luck  Ken  

I agree with Kenneth. Any doc who only offers those two procedures needs to be replaced.

 

Both are outdated, are more invasive than necessary and include a more extensive side effect profile than the less invasive, usually as effective ones. Greenlight will leave you needing a diaper for at least a few weeks most likely, has a 50/50 chance of causing RE, requires anesthesia and can leave you incontinent. The skill of the surgeon impacts the outcome significantly, but the main point is that less invasive procedures with no anesthesia with almost no chance of causing any permanent problems are available that work as well as greenlight. 

I'm not sure how bad your situation is currently - but if you you are in retention or having trouble functioning normally enough, I would self cath until I found a doc who could do Urolift or Rezum. If you're not that bad, just find a doc who lives in 2017.  

I appreciate your input. But keep in mind what your saying. The new office procedure do not allows work do not last for years can and do still cause side effects and do not work sometimes are they do not relieves as well as TURP or Greenlight. Yes I wish that meds and Rezum had taken care of this for me, but it did nothing. All I have now is pain and RE 5 months post Rezum. The Rezum did nothing to shrink my prostate. Why? who knows I know it hurt like hell so the steam was going in. I bleed for 10 days so I know something was damaged but it went right back to blocking off flow.

I have been doing some reading/research on TURP and Green light. I will not do the TURP there is not reason for me to when there is the Greenlight. I have heard both good and somewhat good and some bad and very bad things about all the procedures.

Keep in mind the new uro I have works in a hospital now an office in a strip mall. He is a professor of urology at the University of South Florida. He said there is not reason to do the less invasive procedures. He has great results and outcomes with Greenlight. He said when the other in office therapy doesnt work what else are you going to do.

It makes sense to me, but I am not looking forward to having anything done, not even trying Rezum again or a Urolift. I am already in pain from 1 Rezum that did not work. I just hope that whatever I do thigs do not get worse.

JCL  I am so sorry that you had a problem with Rezum.  They must have not did it right.  But your doctor is very one side  He sound like a car sale men.  My procedures are the best so do mine I know better.  You say you want something to last well .  Turp and GL don't last forever either.  There have been men on here that have to have repeat procedure.  There was one man on here that had 2 Turps and 1 GL with in a year because of all the problem the first one caused.  There are other urologist here in Florida that are not in a strip mall.  Urolift is a very good procedure just like some of the others less evasive procedure.  I had mine done 3 years ago.  And it has been around for almost 7 years.  If in a few years I have to have another couple clips put in so be it.  I have no side effects at 62.  And no man is going to tell me I need my prostate cut out to pee better.  What ever procedure you pick is on you. Not any of us or the doctor.  He's going to get paid no matter wait.  And he will not have to deal with any side effect you get.  I wish you luck in your pick.  God help you make the right one for you  Ken

I understand your conflicts here. You might want to get a second opinion - greenlight isn't permanent either and the recovery can be long and messy - even when it works well. But I get that you don't want to do Rezum again - I probably wouldn't either.

You can also consider that Interventional Radiologist option. They can do PAE (if you don't have an enlarged median lobe) or Focal Laser Ablation. It might be worth a consult there before committing to Greenlight. Last comment there - i think most men get good results from Greenlight when a skilled experienced doc does it. How many has yours done? The big concern, is that when things go wrong (admittedly rarely with an experienced surgeon) that horrible things can happen, which is not the case with the less invasive procedures.

Good luck!

It is very hard to make the right decision.on what to have done if anything.  But you have to realize a doctor's can only tell you what they think will work for you.  He really does not know if it will until he does the procedure but by then it may be to late then what.  We are all different.  You found that out the hard way.  Rezum did not work for you and you said they do not know why.   If your prostate is the problem.  I think a UROLIFT will do the job.  It will open you up without cutting the prostate.  All the procedures do the same thing.  Make a tunnel.  We are all on here to try to help you.  That is a very hard job.  Being different we all have our own concern's for our life.  Please get all the information you can before you do anything  God Bless  Ken  

Your situation is a very difficult one. You are like most of the other guys on here; we do the research and we choose the path that we think is best for us individually. It must be extremely disappointing that the Rezum didn't work, and in fact, has caused new problems. I know that this isn't any consolation, but I found out today that over 17,000 Rezum procedures have been done to date. To me, that statistic alone says that the vast majority of Rezum procedures were successful, because we rarely hear about a failed one like yours. It also indicates that something was not done correctly by your Rezum surgeon. Possibly he didn't inject steam at the correct locations, for example. Because of the issues that you are having, you need to be very cautious about choosing the next step. In my mind, the best thing for you to do is to find a urologist who will look at a 3T MRI and help you decide the best course of action. My understanding is that this type of high resolution MRI will provide a detailed 3D view of the prostate, bladder, sphincters, etc. If you go with another procedure without knowing what your individual organs look like right now, the new procedure may or may not provide relief. You deserve to get it done right this time. 

Hey JC  that sounds very odd.  He does Green light if the Rezum fails.  is he looking for it to fail.  Did you ask her about your RE and if they can do something.  I hope you can get some help.  I live in Orlando and I have a great urologist Would not tread him in for anything.  Good luck  Ken

Two patients from the same doctor with loss of bowel function sounds like the doctor made the same mistake on two patients. This is an almost unheard of complication and two from the same doc sounds like a problem with the doc, not the procedure.

Doctor's do make mistakes now what is he going to do to fix the problem.  I would get another doctor I would not trust him and I would not want to be another one of his mistakes  Good luck  Ken 

I need to clear up something from a post a made yesterday, Cindy did not recommend that I get Rezum done for a second time. What she said was I "could do a second Rezum" in an attempt to remove more tissue as a treatment option. Just wanted to clear...

Agreed I am sure all failures are probably related to the urologist and not the procedure therapy. Whether that be Rezum Turp Greenlight etc.. Just saying any treatment has a risk. Its more about finding the right doctor I am thinking now. Not the right procedure. Each doctor has an opinion and each has their own success and failures.

I am happy that your looking at it that way. Your taking control of your body.  Your a young men.  You should be having fun not doing research for your prostate.  I trust my urologist but i do push him.  If I don't fellow what he said's I keep asking question.   I had a problem a few weeks ago.  Went into the hospital for one problem and ended up with another.  My bladder stopped.  Had to be catheterize 7 times what a mess.  I wanted to know why.  Everything went back to normal.  Was in the hospital 9 day.  My doctor told me that he did not know if this will happen again so it would be a good Idea for me to learn how to do CIC.  So he gave me some catheter.  Try for a week.  Was painful but after about 6 tries I got it in.  All week was having pain in groin and having a little blood.  Was told CIC does cause some bleeding.  That I was aware of.  But what happen to me a week later.  Got up at 5AM to go to the bathroom.  Stood them for a while nothing was coming out.  I pushed all I got was dark blood and some clogs.  I still felt that I had to go.  It took me about 15 minutes but I finely got it going All blood again and then I felt something coming through the urethra.  It was about 4 to 6 inches a clog or tissue.  This was 2 weeks ago.  After that stuff came out I started to pee pink.  It took 2 days to get back to normal. My doctor will be doing a scope on me next Thursday.  I'm sorry but to me that did not feel that was normal.  I think I tore some of the tissue when I was pushing the catheter in.  I have all way check myself after a bath and to me I don't feel the same on both sides of the base.  The muscle around the base of the penis.  I don't remember what that is called but we will see if all is ok.  I like to make sure.  At 62 I don't want any surprises   Take care men and good luck in your search.  Ken 

Ken, sorry to hear about your problem. Yes, you are right. What happened to you is not normal. Hope the urologist will figure out what's wrong. Yes, it could be CIC. CIC does have its own risk, especially for beginners.

Also, I know you may not like to hear this but I wonder if your Urolift clips maybe causing problems. Hank

Hi Ken,

I think a scope is a good idea. It's not surprising you had issues with CIC, because if I remember correctly the doctors had similar issues inserting a Foley when you were at the hospital. That said, it's not unusual for some bleeding the first several weeks of CIC. Hopefully your doctor is well versed in CIC, so he can tell you what is normal and what isn't.

Jim

I hope that's the case, and I could be wrong, but my understanding is that the manufacturer doesn't have to report treatment failures and side effects that were not documented in the original studies. That's where anecdotal info like what we get here can be helpful, as well as a misdirected internal memo! But even if operator error, still a consideration given how new the procedure is and how new many of the doctors doing Rezum are to the procedure. I believe the "training" period is just a couple of hands-on hours.

Jim

Hank ....You and I are thinking on the same wave leak.  I was thinking the same thing.  I know when I was doing the CIC  I was forcing in the catheter in  pretty good and it did hurt for days after and I had a little blood which is normal but not what happen after.  I just found out my doctor ordered a pill for a infection.  I have to wait for it to be ready.  I want to know what is going on.  I will have it done next tursday in the office.  Thanks for your concern.  Ken  

Yes  I think he is.  He told me that it was a good Idea.  But maybe I should have had either him or the nurse show me the way to do it.  Not just take it a pond myself.  We will see next week  Thanks Jim   

Good morning Jim, Hank and the other guy's I consider friends that I have made over the last few years.  I cannot wait till Thursday to see what is going on.  I will be having a cystoscopy. I think my prostate got bigger or could be my kidney's.   Over the last week I have been waking up in the morning to go to the bathroom.  I have a lot of pain in my groin and the back pain is murder. Sitting or standing.  When I got up this morning I tried to wait for a little while to make sure I went good.  Will I sat down and it took a while to go.  I still am going but there really is no force it just come out slowly still feeling like I have to go but nothing.  My doctor order something for me but my pharmacy can't figure it out.  They said they don't understand what is writing.  I think it was for pain have to call at 10  to see if they have it yet.  I know this is not something over night.  I think what ever the problem is it has been building up to something.  I think the hospital stay and that kidney infection started the whole thing.  It seams like every week after that there was something else to add.  What every it is I will deal with it.  If it's kidney stones.  I will have them taking care off.  If it the prostate I am ready to have a few more clips put in.  What ever it is I will deal.  I just want the pain to go away.  Well I hope you all have a good Sunday. I'm just going to take a Tylenol and go lay down. Thank you all   Ken  

Good Morning Kenneth

I understand being in pain. I am still suffering myself over 5 months now. I wish there was a one size fits all fix for us guys. This forum has been some help knowing I am not alone.

Ken, I think you still have stone issues. Perhaps self cath will do for now, either letting the stones out or pushing them back into the bladder. Hank

Hi Ken,

I agree that this is probably just a continuation of whatever brought you to the hospital last time. Hopefully they will figure it out quickly and get you better. Sorry you have to go through all this. Taking a Tylenol and a rest sounds like a good plan.There is also something called "azo" that some have found helps with urinary tract pain, however I wouldn't take it without the doctor's approval, since by masking pain it can sometimes make diagnosis more difficult.

Jim

Thanks guy's.  Jim  I do know about that brand.  I have to take my son to work at 1:30  he works at Walmart's. I have to check if they have the other stuff ready.  In a way I do think it's stone been having a lot of back pain    Had some removed about 14 years ago.  They were the size of jaw brakers.   I do have to worry about the defective kidney.  It is about a 1/3 smaller then the other and it is sitting on the bladder and pelvic wall.  I want this fixed has soon as possible Thanks again guy's  Ken 

Don't hesitate to go to the emergency room or urgent care if you think they can do something for you. 

Thank you David.  If I have to I will.  Was laying done still have pain front and back.  It does help if I lay on my side.  I think I'm going to take hot bath.  No feeIing to go even with the discomfort.   Went at 5 AM.  Maybe the bath will help.  We will see..  Ken 

So you haven't urinated in 6 and a half hours?  That's a long time. Not sure if drinking water would help. If you do self-catheterize make sure to be scrupulously careful about sterile technique. 

?Don't overdo it on Tylenol. Don't take any more than what the maximum is that you're allowed to take. 

Yes that is right David.  Just got out of the tub.  Back still hurts but was able to pee a little when I got out.  The only thing is I don't know if this has anything to do with anything but got very dizzy Had to hold until the wall so I would not fall.Boy getting old is the bits  Thanks you  Ken

It's a big change in blood  pressure when you're relaxed in a hot tub and your blood vessels are dilated, to suddenly getting up. When you get a chance while you are sitting or lying down, just take your blood pressure with your monitor. 

Thank you I will.  That is what I think it was because I like real hot water.  The blood is moving fast.  Have to watch I take a blood thinner to  Brilinta 2 times a day  Thanks again  Ken  

Ken if you're taking a blood thinner I have to wonder whether that's making you bleed more from the Rezum procedure compared to the average person.

Hey David.  I did not have the Rezum procedure Sorry about that.  I had a Urolift done 3 years ago.  Was in the hospital for 9 day's just before Thanksgiving. Bladder stopped working. They found out I had a kidney infection and my bladder was inflamed.  I was told to learn CIC  It took me 5 try's which was pain full.  The fifth time it went straight in.  No problem.  Had some bleeding a few weeks ago.  One night before I went to bed saw some blood at the tip.  Cleaned myself up and went to bed.  Got up at 5 AM could not pee. After about 5 minutes I felt like I had to go.  Nothing but blood came out.  They had the feeling again but could not go.  About 15 minutes later went all blood then I felt something coming through the urethra.  It was about 4 to 6 inches of a clog or tissue  I don't know.After that came out I started to pee pink and they it changed to a normal color.  This week been having no blood but been having the pain in the groin and the back.  I will see Thursday what is going on.  Been sending the information to my Urologist.  Sorry about the confusion   Ken

Hi Ken, are you having any bowel issues, like constipation or gas or diarrhea or stomach cramps ? They can make urinary problems worse. Hank

Hank  No constipation but having a lot of gas this week.  Went today ok.  Just trying to relax.  Back and groin pain but not as bad as this morning.  Thanks buddy  Ken

Good afternoon.  Sorry to get off the subject .  But I am trying to help one of the guys on here.  He was put on Avodart.  He has been on it for a long time.  It did it's job the first year his prostate got smaller but after 4 years it went wild.  The doctor did not tell him about the side affect.  And he I guess did not look it up.  He took the doctor word that it would help. He was told that he can never get off of it.   His sex life was put in the box and mailed away.  His there a drug he can take to counter act the Avodart and try to get back to some normal.  Any information you can give me may help him  Thank you.  ken