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After harrasing my GP for four years i finally got referred to rheumatolgy.
I went to see the consultant in Oct2014, he looked at my hands,feet and blood results and said i have RA and to go with the nurse. The nurse took some more blood, gave me an inj of 80mg depo steroid and sent me to x-ray. I then had a chest, hands and feet x-ray and was told i could go home, i asked about info etc and they said have you got the internet. So i left along with thousands of questions in my head.
My GP subsequently put me on Sulfalazine 500mg 8 x day.
i struggle with any tablets never mind these bricks and even after forcinga couple down they make me sick and unwell and had to give up after a few weeks. I managed to speak with the RA specialist nurse and they put me onto weekly methotrexate injections at the hospital.
I have a 15mg injection weekly but every 3rd week my WBC and neutrophils are always low so they wont give me it. So it is always stop and start. The last couple months i have had to stop twice and have antibiotics as they found a heavy growth of H.influensae on my chest.
I have now started injections again last one being 11th march.
On the 13march my GP receptionist showed me a letter from my consultant, dated 26feb saying my methotrexate has been stopped and to put me back on sulfalasine 500mg 8 x day initially???? even though he hasnt informed his own hospital as they still giving me methotrexate, next one booked for 19th march.
the last couple days my chest and sinusses have been really bad again, with poor breathing and i know its the H.influensae again, and feel really unwell. So obv on 19th march will tell the nurses about letter and wont be able to have inj, but hey have still mademe ill again.
Been to GP today and he said will do another sputum test and the mix up isnt his fault.
sorry about the long story but this isnt half of my problems with hospital and gp.
I also suffer from osteoarthritis in hips, knees from previous motorcycle accident, migraines(cyst on brain), sciatica pains, depression and insomnia.
Medication also includes, Fentanyl patches, Zapain, Rizatriptan, Diclofenic, Baclofen, Folic acid, amitryiline.
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