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RHEUMATOLOGY APPOINTMENT!

Posted , 8 users are following.

sadie1980
sadie1980

Well after waiting months for an appointment it has finally came and gone ! Not much to say other than I have been diagnosed with fibro ! What happens now ? Is that it ? Do I just carry on with my meds ?

Very weird feeling! Thought I would feel relieved but I feel lost ?

Big hugs ladies xx

0 likes, 14 replies

14 Replies

  • jacqui17483
    jacqui17483 sadie1980

    Posted

    Hiya, I felt the same after mine. They left me in the care of my GP, who did nothing really but kept issuing repeat prescriptions. I am 5 years on and still lost. Make sure that your GP gives you all the help & support you need xx
    • sadie1980
      sadie1980 jacqui17483

      Posted

      Thank u Hun it's great to no I'm not alone x I take 75mg of pregabalin a day with 40mg amatriptolin and tramadol when needed it gets me threw and I definitely do not want to take anymore tabs x
    • jacqui17483
      jacqui17483 sadie1980

      Posted

      Yeah I am off gabapentin now, I did it myself because of the weight gain, but the gp still sees the weight only, he doesnt listen when I told him it was the gabapentin that made me put the weight on, when I was 10 stone I had all the conditions, so its nothing to do with weight. Now I will prove it to him by coming off the gabapentin. I never tried that pregabalin, they put me on lyrica to begin with . Hugs xx
  • kaz_40
    kaz_40 sadie1980

    Posted

    Hi sadie1980 My gp just gave me meds but unfortunatly cant take anything for pain relief as had severe side affects. I havnt be offered any help or support by my gp its been a case of get on with it and manage it yourself.Talk about being hung out to dry. some areas offer 12 weeks free acupuncture hydrotherapy you can be refered to a pain clinic and cbt therapy. it all depends on where you live what is offered to you if anything some areas have fibro support groups. I felt relieved when finally got diagnosed but feel abandoned and lost now. Big hug to you x
  • gill50535
    gill50535 sadie1980

    Posted

    Hi sadie. I was diagnosed in december and was refered back to my GP but also to the pain clinic, so ask your GP to refer you there. The meds are just one small part of the care we need. The pain clinic have lots more to offer, not just meds, but guidance, physio, therapists to help you cope with massive changes, i highly recommend you ask to be refered there.

    Hope you get sorted soon.

    Gentle hugs

    Gill

    xxx

  • Blondee63
    Blondee63 sadie1980

    Posted

    I was sent to rheumatologist who said it was fybromalgia cos I'm in pain everywhere.she told me she was gonna sort me out with pain relief patches but still not heard ewt n this is from last Oct! I on repeat scripts of co codomols but they getting less n less effective, find after I've took 2 I've still got t take an extra one n can still be awake a few hours later.. Got arithirtis in me joints ,a bulgin disc in me spine n I'm vitamin d deficient so on tablets f 6 months , that's besides high blood pressure tablets. Totally depressed n struggling with my 2 hour part time job !!

    • sadie1980
      sadie1980 Blondee63

      Posted

      Sorry to hear this I'm very lucky that my pregabalin works along with my amatriptolin and tramadol when needed but I may need to up my pregabalin dose as I have a few pains reappearing
  • mel77
    mel77 sadie1980

    Posted

    Hi sadie:

    Sorry to hear you having fibro. I alsohave it quite a long time.. I was under the care of a rheumatologist for over 2 years ago and she tested my blood and my sed rate was very high like over a 100. She started on me with prednosone which did take the inflammation down to 50. Still too high. After a year that I was on it she finally took me off it. She started me on Methotextrate caps and made me feel sick after a few days. She immediately took me off it. The trigger injections sucked because all it did was to give me some relief for a couple of hours until it wore off. She then gave me a Humira injection kit and wanted to start me on that. Being the cost was too high and couldn't afford it. Afterward she wanted to put me on Remicade IV but that was even more expensive and my copay was still high. I didnt go for it and she gave up on me. She told me if I didn't do what she suggested, then Icant treat you. Before I continue, be forwarned that I type rather lenghtly letters. If you rather have me type shorter letters, than please let me know. I am always accomodating. So, be well and take care.

    mel

    • sadie1980
      sadie1980 mel77

      Posted

      Hi Mel sorry for all the rubbish you have been threw sounds so horrible

      Mine started after the birth of my 3rd child in July 2014 at first I thought I was going mad as no pain killers were working I even thought I had post natal depression I was at the doctors every other week crying in pain it was unreal they did blood tests over and over and other than low folic low iron b12 and vit d there was nothing else wrong with me it was killing me I even told the doc I was going to end my life as I couldn't take anymore. It was the worst time of my life when it should of been the best as my 3rd child was a miracle after 7 miscarriages. But now I take pregabalin amatriptolin and tramadol when needed and it has taken most of the pain away so I am grateful for now

      Hugs

  • Maggers
    Maggers sadie1980

    Posted

    Hi Sadie

    Welcome to the club nobody wants to join!   I cried when I was diagnosed but then again it had been nearly 30 years since my first symptoms. Hospital Dr just wrote fibromyalgia on a piece of paper -  said "go look it up, we don't treat it here I am referring you back to your GP - goodbye" That was it.   You will learn more and get the support you need here. Hopefully you have a decent GP.  It will probably be a case of trial and error to see what works for you. We are all different - I don't use prescription drugs just vitamins, plain cooking from scratch, hynotherapy and the like. It works for me.   Good luck in your quest for what will work for you.

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