Rheumatology referral

Discussion about fibromyalgia on this forum at the moment re dr John Lowe ,  clinician and researcher for thyroid and fibro.

Not feeling great today, have been really tired and emotional all week and really sore. I feel quite stiff as well. Doctor gave me naproxen 500mg twice a day with omeprazole but I do worry about my stomach. I don't think they really do anything.

Bit scared of seeing my doctor invade she says no to a referral 😕

Bless you, I remember those early days. I got put on Amitriptyline 10mg and within a month really felt a difference - before them it took me a good few mins to get off the sofa and even longer to get out of bed as I was so stiff (I was only 23 at the time). My worse day was when I couldn't even lift my cereal spoon to my mouth because my hands were that stiff and I just remember sobbing. My feet and legs would hurt so bad that I thought I was going to collaspe with the pain too. Most of my problem was not being able to sleep properly at night, and these tablets really helped. I'm now due a baby any day now and all my symptoms have totally gone, and can even straighten my fingers out (they were bent before due to tight tendons) - praying it doesn't come back. Try to keep positive, I found it really helped. I have a five year old that used to keep me sane on my bad days. Don't be scared of the Doctors, really push for a referral xx

I read the long interview with him. Amazing, I truly believe there is a connection between thyroid and fibro. I really want to do the saliva tests an find someone who prescribes Armour. Now my THS, T3 and T4  are in the range and guess what, I'm supposed to feel fine. This problem in a nutshell, the lab tests are fine, so be happy! Haha! I haven't even started the discussion with my GP yet about changing the thyroid medication. My fibro isn't diagnosed yet, but my Costochondritis is. 60-70percent of those with fibro have Costo. Yesterday I went to a chiropractor, he made wonders with my rib cage but the fibro tiredness is worse than normal, but the chiro treatment gave me hope. I just hope I can find a doctor who listens to the John Lowe arguments...

good luck with that most gps iv come across really hate 

being given information from the net 

it takes control from them .

infact my doctor said did you get it from the net and just put it down to one side and handed it back , to me when i left . 

i have no faith in them most are pill pushers for the big medical companys

and do whats best for them not for there patcients ,

i will let you know if i come across one who actuley listens 

or cares

Yes conta,  my blood tests were normal for years  and I was called stupid  imagining  it its all in my head I m just depressed , time and again this was all they could come up with .  When I showed them ( and I have seen a few) all my research just got very annoyed rude or  intimidating no help what so ever so I just had to keep looking for a doctor who would ignore the thyroid  blood tests and treat me for autoimmune disease (hashi) and hypothyroidism, which it causes !! Some people need T4 some need T3 some need NDT it's a trial and error. But the first thing to do is persuade your doctor you are no better even tho tests say you should feel well on your  medication and hope he is open to suggestions ( re dr Lowe) good luck with that one , you will be one of the lucky ones if he evens listens to you! Best of luck 

Hi Aurual;   I Really don't understand how docs would prescribe Naproxen for something soooo painful as Fibro....Naproxan (commonly known as Naprosan, can be bought over the counter/coles/supermarkets)....beats me.....there are times like this when I read how some of the people on this forum are NOT taken seriously, that I wish we had a Majic Wand, and gave these docs a week with our conditions....Also Naprosan is also commonly known as Brufen, and the First problem that arises, is SWOLLEN FEET....it seems to Decrease our circulation in Extremities....I feel like swearing (b...... hell), and I'm really begining to like my faces....they say a lot !!!!.....Bron

BLOODY HELL ! REALL CARE AND UNDERSTANDING .

NO WONDER WE FEEL DOWN WITH THAT ATTIDUDE FROM A SPECILIST  LOL

Yep - came out absolutely stunned.  I had been suffering since the 1980s. told it was osteoarthritis then it wasn't it was possibly lupus. Ignored until new gp took over she referred me. Took 40 weeks for appointment to come through. Saw consultant, took bloods told 3 month follow up. Had 14 appointments cancelled. Consultant went on maternity leave. 18 months after original consult saw new consultant who diagnosed fibro. That's it in a nutshell. I am sure there are some caring consultants out there it's just I have yet to meet one.  Even paid to see one privately but he couldn't be bothered - saw him on a Friday before bank holiday and was his last appointment and he couldn't wait to get me out of the door!

Maybe I smell or something......

 I AM SURE YOU DONT HUN .

but its like they are saying it dosent exsist well we all cant be wrong we all cant be suffering so badly and making it up ,it makes me so dammend cross 

i went for my pip medical today what a laugh a women in a office firing questions at me ,trying to trip me up . asked at the end to do some excersises but said i didn thave to if i wasnt up to it 

i really wasnt i didnt get to bed till 2am then i was up at 6.30 

had 40min drive on bendy roads so i felt car sick and tired 

but now i suppose i will get turned down and have to appeal 

more stress. 

its like if you do them its you can manage fine , if you don tdo them unwilling to try , so either way you cant win .

i hope you find some help soon  .its bad enough suffering without the medicals making out your swinging the lead .AS IF WE WOULD CHOOSE TO BE LIKE THIS IF WE HAD A CHOICE .

Fingers crossed for a positive outcome.  They sure don't make things easy for us do they.

no they dont 

Hi tiswas and  Maggers:  letting you in on what i Eventaully did, when doing the  same for My Insurance claim (I had taken out an Income Protection as I knew my income was necessary to help meet our committments with 4 children etc):....when it came to the day of "being tested/put through the Wringer....I did start the Exercise testing etc, but towards the end....I just gave up Then....burst into Tears, and said "Ijust can't do anymore"....maybe start, and then gently slow down, and then stop.....we need to Show these so-called know-it-alls, that we are trying, but our bodies just won't let us.  We have all paid our taxes, just like those who are Pushing us....we have earned our place in society, and we want to stay in society                    Bron

well your dammend if you do and dammend if you dont you cant win 

if you dont they say didnt even try 

if you do managed fine how can you win 

As I said, I did get my Compensation....just by Really showing them what I could do, and how long I could last at what she wanted me to do....I have found that Stubboness never gets us anywhere.....if we put "our backs up"...so does the opponent...in all walks of life.....try again....Bron

We have sooo much to be annoyed about with this Fibro...mmm, but it really doesn't get us anywhere does it tiswas...unfortunately there must be soo many people cheating the system that they have clamped down like this..just keep trying...the truth always prevails in the end. Yes it can seem like a long ammount of time waiting desperately...but you will get there..don't let anyone make you feel like this- they don't have permission...so don't allow them to...have a lovely day tiswas...be blessed:-) xxx

compensation is differant you have paid in for that ,

your going to get more le way .you shouldnt have to perform like a circus clown for it but at least they no you have paid in .

nothing to do with clamping down on the ones who are defrauding

because there the ones who know how to play the system there experts at it and most will get it again because of it .

its the honest ones the ones the ones who try ,

how can i or anyone be judged on a yes /no answer basis fairly

theres no where on the form, for yes but with diffitculty, its yes or no 

the more yes's you get increases your fail rate end of benefit 

and any independece that you had .

that whats worring me no independece . 

plus my marriage is good like some on here 

it will put more strain on that which is already 

at breaking point due to lack of sex 

then what happens ,if he decides his had enough 

i will be really stuck and struggling.

i am really glad for you who have loving and supportive familes,and a

caring husband ,but i and many others dont .

please try and consider us less fortunate ones .

love is a powerful thing and it helps in many things when you dont have it 

life and pain is much worse .

bless everyone on here who trys and struggles everyday 

to do a little something to make someones day a bit better .

 

i meant my marraige is not good 

I really feel for you tiswas, I really do..it must be sooo very hard for you..it is sooo unfair,,, there are many many people who have and have not got Fibro  who are in a marriage that is not good, and that is just awful...and I really do consider them....but my marriage Is very very blessed indeed and for that there are no apologies..and yes we have had to work at it..especially when the children were small. ...and I know every day what my husband has to go through for me and I'm very appreciative...and he knows if it was him with these issues..I would be exactly the same..,for better or worse...that's what he always says...I'm also on a superannuation pension...I was medically retired from the state government, firstly I was on compensation for years...then I was retired and put  on my superannuation pension..wich is a really good one, but I did pay a lot into it...as far as compensation goes we don't pay into that..the employers do.,even if I only worked there for one day and hurt myself at work I would be entitled to it..but like mine..when they see you can't work anymore it automatically goes to court-(not nice at all)and they if you win they give you a payout ...etc..in my case I couldn't get my superannuation pension until I was retired permanently..and this took some 10years of being prodded and poked by their specialists and also their psychiatrist....etc....finally 10 yrs down the track..I was retired...I was also the union rep and the OHS rep..in the office, so I had a fair bit of knowledge on how it all worked...poor people who know nothing, I really feel sorry for..it's a long long haul...but in the end...the truth prevails..,  

Sounds like the forns you have to fill out for help of any sort...seem

to be pro government..so was mine and they weren't government related..it must just be what they do...in Australia there is a lot of people cheating the system and they have really clamped down, they even have private detectives filming you in your daily life.,they have caught many people this way..especially the ones saying they are disabled and been filmed lifting heavy loads into trucks etc.,their on TV.,,and I do smile.,,everyone needs to be accountable for their actions, some are jailed.. and it's because of people  like that, which make it soooo hard for genuine people needing assistance

  But as I said before the truth will always prevail in the end..do hope you have a lovely day tiswas..be blessed.,:-)xxxxxxx

Hi Tiswas

Hope you get you're claim through..