Rhinitis so bad has caused growths on lungs and coughing up blood..

Posted , 3 users are following.

This discussion has been locked due to a period of inactivity. Start a new discussion

I am desperate to find out what causes my rhinitis. Many years of suffering with itchy cough, green phlegm (non bacterial), sore red eyes and blocked runny nose. Year round symptoms peaking April to September. Diagnosed as non allegic. This year things got so bad with the horrendous cough which keeps me awake, that I started to cough up blood. After three months of this CT scans revealed polyps on both lungs. COP - cryptonized organizing pneumonia was diagnosed. Basically this means multi bacteria attacking lungs. After six weeks on high dose steroids the nodules have reduced in size. Anyway, now that steroids have been tapered to low dose all my symptoms have returned and once again I have a cough producing thick green phlegm which tests as non bacterial... therefore, I am convinced my rhinitis is the cause of the problems with my lungs. Basically, years of severe coughing and phlegm on the chest but try getting the NHS to accept that! Hopefully this explains my desperation in understanding what causes my rhinitis in the first place. Always worse in the Summer but not "hayfever". 

0 likes, 7 replies

Report

7 Replies

  • Posted

    lve had allergic rhinitus for many years, started 35yr ago, we,d moved from hillside village to town suburbs side of busy main rd, started with severe bouts of coughing where it would feel like dust grit in my throat on breathing in, choking, l,d to go in blow my nose a lot to clear it, along with using steam inhaler, bouts would last l0-15min, took docs a while to diagnose allergic rhinitus, and given rynocrom which was very affective

    On moving back up hillside problem cleared without using med, but later on moving to valley bottom it returned, l,d sort of worked out it was diesel fumes, and attcks worse if stood near stationary wagon with its engine running, but l could have bout with breathing in some detergent toiletry things, not all, then found cement plaster dust soot all started the coughing streaming eyes congestion, gps confirmed this happens with allergy,s, allergens to sufferer increase, but different things for different people, though some things many are allergic to, such as pollen,diesel fumes, detergents, l think for me it was formalin which is in many products. There was the odd time l got an infection along with it, and got anti bs for it, but they never became chronic like yours sound to be, and you having bacterial infection rejected, But somethings aggrevating your lungs badly, and they can do allergy tests of different things to find which allergens your allergic to. . Although my symptoms are not as bad as yours re the coughing, l have become more prone to asthma bouts frequently and have inhalers with limited results, l,m due to spiro test soon, but l do know of more people with allergy and asthma in recent times, breathlessness probs, mainly older and some vunerable younger. l guess youll have tried allergy tabs nasal sprays, but l cant see why your docs should object to allergen testing, its not a big test, pin pricks of different allergens onto skin. Best wishes.

    Report
    • Posted

      ps l also use air conditioner filter in my home, just to reduce to some extent allergens dust in the home, not sure how much it benafits, but as you know its a case of tyrying to reduce things that might aggrevate.
      Report
  • Posted

    Do not try, they are pretty useless with this kind of problems (I live in Scotland) diagnosed no allergic by which kind of test? Any prick test? In the UK the only private test reliable is called igE test, which search in your blood for specific antibodies, however having got over my dreadful experience with the NHS I am willing to share what I have learn from dealing with them, please tell me more.
    Report
    • Posted

      Hi Dave, thank you for reply. I've had 2 negative skin prick tests although I suspect dust mites. So far allergy covers etc have made no difference though so who knows. Lung doctors diagnosed cryptic organizing pneumonia which I thik basically means they don't know and seem reluctant to look any further. I asked allergist for a blood test but she refused saying it tests for same things as skin test grrr.. I will ask again but probably have to wait months for appointment. 
      Report
    • Posted

      Ups that is gonna be over the moon for you but I suggest you a short trip abroad. Clontarf clinic in Dublin or the best I know quiron dexeus clinic in Barcelona. You may go private in the UK but the NHS allergist what is telling you is that they only have a limited panel that cover the most common ones. Hence seeking forward is gonna cost you so much that is cheaper a short trip to Barcelona. I was at the same situation with no private insurance and the NHS fooling me and in the end I regretted every penny expended in the UK. You might not be allergic but there are people who is allergic from shampoo to hair dye that are in a situation like you. I gotta say the NHS panel confirmed my allergy to mites but I was allergic to a third me not in the panel that happen to be the problem. However you may have other kind of disease (immune disorder) that the NHS is clueless about. I agree with your idea of an allergy but what you need is a proper diagnosis. I thing I was tested for around 57 allergies so you should try something similar before opening your mind to a different not diagnosed disease. To start you should all go your GP for a copy of the prick test. They must provide it with no delay. That will give another doctor some information to start with.
      Report
  • Posted

    Of course before going abroad I pretty much google and contacted every option in the UK, you will find ENTs and allergy specialists that are  commercials of one product, such as stallergenes or allergen therapeutics. This is not wrong itself but they have limited resources for a complicated diagnosis.

    I have not been at any of them but at least contacted the one in London and they gave me the impression of being capable. My location made these options no feasible. Hopefully you would be closer.  

    The rules that regulate accesin NHS test results are these http://www.nhs.uk/chq/pages/1309.aspx?categoryid=68

    I believe you need to get a copy to show to any specialist in private that you may go. 

    Emis Moderator comment: I have removed the link(s) directing to site(s) unsuitable for inclusion in the forums. If users want this information please use the Private Message service to request the details.

    http://patient.uservoice.com/knowledgebase/articles/398316-adding-links-to-posts

    http://patient.uservoice.com/knowledgebase/articles/398331-private-messages

    Report
    • Posted

      Hi Dave, l agree with much of what you say. l had the allergy prick test many years ago, and thought it fairly inaffective in diagnosing allergy

      probs. l didnt go to great lengths to find exact allergens as my probs not as bad as above stated ones, and had learnt to manage them to an extent, plus later on started with other symptoms where l struggled for many years to get diagnoses, misdiagnosed over many years, undiagnosed, finally scope showed intersticial cystitus, inflammation also connected to allergens or auto immune, many women with it also get other unusual immune probs, re sjorgens, fibromyalgia, cfs, with skin probs psoraisis, eczma fairly common,lve had treatment that has helped symptoms of ic, but now struggling years later to get diagnosis of other different symptoms, probably immune again, because many are unusual its a battle to get gps to understand and do extensive tests, meaning many get standard blood test, scan, all neg, then go on ages for more extensive testing, often months years going by and quite often immune conditions.   On diagnosed with ic, l joined a support group, started by individual following her and sisters experiences, tragic ones really, there was years of mass campaigns to raise awareness, media stories, tv interviews, posters for gps,at that stage the uk has no research at all, relied on usa germany holland for findings.  Despite years of campaigns there are still gps fairly commonly not diagnosing it, or even referring people to urologists or for scopes when symptoms typical.  l dont know how much is ignorance of unusual conditions, cant know everything but if symptoms persist causing suffering debility they should at least refer you, amybe cost affectiveness, or medical training, seems to me they dont spend enough time listening and examining patients, depending on blood tests, scans, which often dont show conditions.  ive spoke to two people in last few months who didnt get pneumonia diagnosed at gps, ended up in a and e.  l think its hit and miss with how compatent your gp is, some are some not so much as with mine over ic symptoms, so like you had a `dreadful experience`.  Youve to keep going and battle with some  if need be to get right  tests or referrals.

      best wishes to all those battling with it.  

      Report

Join this discussion or start a new one?

New discussion

Report as inappropriate

Thanks for your help!

We want the forums to be a useful resource for our users but it is important to remember that the forums are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the forums is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.

newnav-down newnav-up