Rhinitis so bad has caused growths on lungs and coughing up blood..

ps l also use air conditioner filter in my home, just to reduce to some extent allergens dust in the home, not sure how much it benafits, but as you know its a case of tyrying to reduce things that might aggrevate.

Hi Dave, thank you for reply. I've had 2 negative skin prick tests although I suspect dust mites. So far allergy covers etc have made no difference though so who knows. Lung doctors diagnosed cryptic organizing pneumonia which I thik basically means they don't know and seem reluctant to look any further. I asked allergist for a blood test but she refused saying it tests for same things as skin test grrr.. I will ask again but probably have to wait months for appointment. 

Ups that is gonna be over the moon for you but I suggest you a short trip abroad. Clontarf clinic in Dublin or the best I know quiron dexeus clinic in Barcelona. You may go private in the UK but the NHS allergist what is telling you is that they only have a limited panel that cover the most common ones. Hence seeking forward is gonna cost you so much that is cheaper a short trip to Barcelona. I was at the same situation with no private insurance and the NHS fooling me and in the end I regretted every penny expended in the UK. You might not be allergic but there are people who is allergic from shampoo to hair dye that are in a situation like you. I gotta say the NHS panel confirmed my allergy to mites but I was allergic to a third me not in the panel that happen to be the problem. However you may have other kind of disease (immune disorder) that the NHS is clueless about. I agree with your idea of an allergy but what you need is a proper diagnosis. I thing I was tested for around 57 allergies so you should try something similar before opening your mind to a different not diagnosed disease. To start you should all go your GP for a copy of the prick test. They must provide it with no delay. That will give another doctor some information to start with.

Hi Dave, l agree with much of what you say. l had the allergy prick test many years ago, and thought it fairly inaffective in diagnosing allergy

probs. l didnt go to great lengths to find exact allergens as my probs not as bad as above stated ones, and had learnt to manage them to an extent, plus later on started with other symptoms where l struggled for many years to get diagnoses, misdiagnosed over many years, undiagnosed, finally scope showed intersticial cystitus, inflammation also connected to allergens or auto immune, many women with it also get other unusual immune probs, re sjorgens, fibromyalgia, cfs, with skin probs psoraisis, eczma fairly common,lve had treatment that has helped symptoms of ic, but now struggling years later to get diagnosis of other different symptoms, probably immune again, because many are unusual its a battle to get gps to understand and do extensive tests, meaning many get standard blood test, scan, all neg, then go on ages for more extensive testing, often months years going by and quite often immune conditions.   On diagnosed with ic, l joined a support group, started by individual following her and sisters experiences, tragic ones really, there was years of mass campaigns to raise awareness, media stories, tv interviews, posters for gps,at that stage the uk has no research at all, relied on usa germany holland for findings.  Despite years of campaigns there are still gps fairly commonly not diagnosing it, or even referring people to urologists or for scopes when symptoms typical.  l dont know how much is ignorance of unusual conditions, cant know everything but if symptoms persist causing suffering debility they should at least refer you, amybe cost affectiveness, or medical training, seems to me they dont spend enough time listening and examining patients, depending on blood tests, scans, which often dont show conditions.  ive spoke to two people in last few months who didnt get pneumonia diagnosed at gps, ended up in a and e.  l think its hit and miss with how compatent your gp is, some are some not so much as with mine over ic symptoms, so like you had a `dreadful experience`.  Youve to keep going and battle with some  if need be to get right  tests or referrals.

best wishes to all those battling with it.