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Rhumatoid arthritus

Posted , 4 users are following.

vsl77751
vsl77751

just been diagnosed still a bit in shock have problems walking snd always tired have arnt all my forms off what happens next 

1 like, 18 replies

18 Replies

  • mary_24931
    mary_24931 vsl77751

    Posted

    Are you talking about CFS/ME  or rheumatoid arthritis? 
    • vsl77751
      vsl77751 mary_24931

      Posted

      Hi Mary I was told to get a PIP claim form phoned up and they asked loads of questions and then sent more firms out that I filled in snd sent off last week have had to stop work
    • mary_24931
      mary_24931 vsl77751

      Posted

      Hi vs. yes I phoned up and was grilled for 15 minutes. Then I was sent the form but after reading through it I didn't have the energy to complete it and I I didn't think I would get it, but I would encourage you to go for it. 
    • GeorgiaS
      GeorgiaS vsl77751

      Posted

      This is for at vsl and Mary. I got help from a lady that ran the local ME group. Do you have an ME group in your areas?
    • GeorgiaS
      GeorgiaS mary_24931

      Posted

      This is for at vsl and Mary. I got help from a lady that ran the local ME group. Do you have an ME group in your areas?
    • mary_24931
      mary_24931 GeorgiaS

      Posted

      Yes there is one but I've not been as they meet too late in the day for me to manage it! 😁. Think there might be another one starting up soon though so I'll see if that might be more suitable. 
    • vsl77751
      vsl77751 mary_24931

      Posted

      Well filled the form in and sent it off dint expect to get any help butbas I dont have any wages now thought it was worth a try its not like we are lieing is it
    • mary_24931
      mary_24931 vsl77751

      Posted

      Well done for filling it in. Guess its a waiting game now and if they turn you down, make sure you appeal! I was turned down for ESA at first but I successfully appealed. Good luck x
    • GeorgiaS
      GeorgiaS mary_24931

      Posted

      I've only managed to get to one meeting in the years I've been a member  but they'll talk to you on the phone, Jacqui used to come to visit me and she went in my place to the DLA assessment, told me how to fill out the form and, well basically I couldn't have got it without her! She fought hard for me.

      They even send Christmas and Birthday cards; they're so supportive. razz

    • GeorgiaS
      GeorgiaS vsl77751

      Posted

      No we're not lying but the form is not designed for people with ME so I was advised to answer for my worst days.

      If they say no you can appeal; I had to and it's best to get as many people on your side as you can, doctor, local ME group etc. My local MP wrote a letter supporting me! I got as much support as I could and I got DLA.

      It's harder now I know but it's worth the fight! ME is so debilitating and horrendous and it needs to be more known about and understood by the medical profession (or madical profession as Bronwyn almost called them!) lol and the general population. We have to fight for our rights, not only for ourselves but for each other.

  • wknight
    wknight vsl77751

    Posted

    what forms have you sent off, do you live in the UK, have you applied for some benefits
    • vsl77751
      vsl77751 wknight

      Posted

      Dont no if there is anything I am entitled yo try for nut I do live in the uk
  • GeorgiaS
    GeorgiaS vsl77751

    Posted

    If you're in the UK the citizens advice beureau might be a good start. You could get some advice over the phone if you can't get to them physically perhaps.

    You've made a good step joining this forum because there's so much support here from people who really understand what illness and pain is like. razz

     

    • vsl77751
      vsl77751 GeorgiaS

      Posted

      Its not jyst the pain and that's bad enough get do tired and weeping all the time
    • mary_24931
      mary_24931 vsl77751

      Posted

      Well you're not alone now. Keep writing and sharing with us 😀
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