Right ventricular ectopics

Thanks Marbel much appreciated. I think I need to shout and stamp my feet a little louder. I'm twickenham based so hopefully this isn't an area for socialised medicison. 

Is Kingston your local hospital?

Thanks Derek. What's an EP? Yes I'm in the uk. 

If they thought that you had ARVC and were about to croak you would have been seen to quickly. As one cardiologist said to me , Our job is to keep your heart beating. What did their letter to you and your GP actually say by way of diagnosis ? 

Does your family tree have any people who have had it and if so did you have any genetic testing? You can always pay to see your cardiologist privately and speed things up. It is usually about £160/£180.  

https://patient.info/doctor/arrhythmogenic-right-ventricular-cardiomyopathy

 

 

On the MRI report, there is a list on the left with things like "Patient", "Height", "weight" etc, further down this list has something that says, "Indication name", this is then filled in with "arrhythmogenic right ventricular cardiomyopathy", next on the list it says " Protocol Name", This then says ARVC.

When I saw the Cardiologist for the first time in June, I actually asked him if they thought I might have ARVC, he replied, "yes".

I have had relatives die from heart disease, but not ARVC, but the cardiologist wasnt aware of this for the six months between the MRI and the first appointment.

I have been seen much quicker by arrythmia doctors regarding one of the symptoms of ARVC, namely, Ventricular Tachycardia. Whilst an ablation seems to have curtailed my VT, I am rapidly going downhill regarding other symptoms such as breathlessness and exhaustion.

Further to the above, on reading your link it mentions "left atrial enlargement", my MRI report states :- ATRIA

Left Atrium: 26cm2 (normal value 24 cm2)

Right Atrium: 28cm2 (normal value 22 cm2)

Even further to the above, your ARVC link says the about the ECG :- "ECG - the most common findings are ventricular arrhythmias with left bundle branch block (LBBB) morphology".

Well, I have the ventricular arrhythmia, though now prevented from forming VT, as for Left Branch Bundle Block, though nobody has told me this, have a look at my ECG below and compare to an ecg of LBBB.

You had the ablation since the MRI scan?

Any meds that could cause breathlessness such as Bisoprolol or Amiodarone?

Yes, In April I was taken to hospital as my VT had lasted 12 hours!, they gave me an ablation then.

Beginning of January they put me on Bisoprolol, right away I reported feeling like a drunk zombie and that my lungs were not working. They took me to hospital when my heart rate dropped below 40 and put me on Solotolol instead, this right away gave me a coughing frenzy, my GP told me to stop takeing the Solotolol which I did, though the cough reduced, I still have it now four months since not being on Beta Blockers, I also have the breathlessness and the foggy mind still. The medical profession refuse to belive I can still be affected by beta blockers, my GP has therefore given me an asthma inhaler which has a very limited efffect. I now have an appointment for a lung function test.

If you ask Wikipedia 'Left Branch Bundle Block' it comes up with information on the ECG

Yes, thats where I saw the ECG image that looked nearest my post ablation one above.

 

My records are now marked Bisoprolol and amiodarone intolerant. At the time it was difficult to know if it was AF or medications causing my problems. During that time my left foot became heavy or numb and that has not gone away athgough the rest mainly has.. Of course that is put down to an unknown neuropathy or even CMT.

I have at various times been offered an RF ablation, an  AV node ablation (I have a pacemaker) and more recently a cryoablation,