Rise in bilirubin level.

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After my gallbladder was removed, my bilirubin was 16 umol/L two months later. Yesterday it was up to 33. All the other liver function master results were normal however. Does not having a gb affect bilirubin levels only? What is going on? Before the open surgery it was 55 and most other readings in the liver f master were very high but they all returned to normal. Now this! 

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15 Replies

  • Posted

    How do high levels make you feel. Better or worse. And low make you feel?. I've never run into this type of situation before. Sorry

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  • Posted

    Hi John 

    interesting this is !

    it does ant make sense to me.

    ive just had my go out 9 weeks post op today

    i was very ill and near dead, I had a 2.3cm stuck in the cystic duct ,gb neck for 3 years plus one 2.2 cm inside the gb.

    my gb was full of puss and gangrenous so I was pretty ill.

    however my surgeon mr Charles imber. Who I think is an amazing surgeon.

    still managed to remove mine key hole.

    now I don’t know what condition yours was in ,but my bilarubin was six 2 weeks after opp John and all liver functions normal and lipase normal.

    your heading towards jaundice with them levels if your not already !!

    sounds like you have a liver problem John ! 

    Why was yr gb removed ,what’s yr age ?

    ide be running to a and e and my go screaming blue murder tests tests and specialists I want an answer why my levels are so high !

    goid luck John stay in touch and let me know any developments please .

     

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    • Posted

      I'm coming up to 72 next month. My gallbladder was taken out as they said a stone or dust was blocking the bile duct. I'm waiting for one more blood result then I'll see my Dr on Monday. I'll let you know what happens. All the bloods for the bilirubin have been ok. Strange... I'm not yellow in the skin or eyes yet. 

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    • Posted

      I meant bilirubin  ok for quite a while  until now. Apart from 55 before the op.  Then it returned to normal. Then ...
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  • Posted

    Hi John, you may have a condition called Gilberts Syndrome, its to do with the breakdown of the redblood cells in the liver and when they don't breakdown very well it can cause your bilirubin levels to change. There is no treatment as it doesn't effect the way you are but these levels may change when you're unwell as an effect rather than a cause. I've had this condition for years and my levels did change when I had my gallbladder out, I don't know what they are now but its generally not something that doctors worry about.At the time of surgery my levels were a bit erratic so they did some additional tests to check my liver at the time but everything was fine.

    I wouldn't worry too much about it as I expect when you're fully healed it'll get back to normal, obviously if you're worried ask your doctor about it but they really don't pay much attention to it. 

    I hope this helps. 

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    • Posted

       Yes that did help, thank you. What confused me is that the bilirubin was the only abnormal reading. I'm waiting for the last test, something about B12 folate I think.     But I won't know until Monday. Everything returned to normal about two months after surgery but now this one thing has jumped up. I feel ok, there is no yellow tinge in the skin or eyes. Something else I didn't mention is that I had a large piece of my bowel removed from cancer 4 years ago. Maybe not relevant? Anyway, I'll have to wait and see. Thanks again. 

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  • Posted

    Thats ok. Even when I was really ill with my gallbladder last year and the early part of this year I didn't go yellow which can happen if you have Gilbert's syndrome.

    Just reading what you said about B12 and your age, my father who's in his late 80's they recently found that his B12 folate was low so he's had to have B12 injections which have been great for him they've given him a real boost and helped him enormously with his energy levels. His iron levels were also low so he's been taking iron tablets. They obviously did some tests and found a hiatus hernia and diverticulitis in the bowel which when I did some research as I was obviously worried about my father, that low levels are quite common in people my father's age and so is diverticulitis. So it is possible that if your levels are low that you could be anaemic but I'm sure your doctor will give you advice on that, if that's the case.

    Let me know how you get on with your test results. Take care. 

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    • Posted

      Thanks again. The iron studies master was normal and everything else was too, apart from MCV. Whatever that is. It was only 1 above the normal range.  I have diverticulitis pockets too. They did lots of tests as I was having my CEA test anyway. That's for the cancer check. It was normal too. So, watch this space...

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    • Posted

      Hello again. Saw Dr today. He is not bothered about the higher bilirubin level or the lower than normal B12 level. Folate level was ok. Gilbert's syndrome was mentioned. I have to have another blood test called MMA which gives more detail. But it takes 2 weeks to get the result. Oh well. 

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    • Posted

      Well thats what I thought they'd probably say. I had low iron levels a little while ago but unless they're really low or very high they aren't really worried. 

      What's an MMA? Have you had the blood taken for this?

      Keep me updated with your progress. Take care

       

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    • Posted

      MMA means methylmalonic acid. They also tested Intrinsic factor and Parietal cell ?antibodies. I've just had it done. You'll have to look it up as it was quite confusing for my elderly brain. Borderline B12 it said on the form. We shall see! 

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