RLS info
Posted , 6 users are following.
I'm 80 years old and have had RLS for over 40 years. .not only having sleep interrupted, during the day spending alot of time walking about. I take ropinerole, ,have tried iron tablets, at the moment taking magnesium, so far not making any difference. I will also now try the FODMAP diet and hopefully that may work.
I have found that a hot bath relieves the symtoms for a short while.
0 likes, 12 replies
Chocolate23 lesley89206
Posted
lesley89206 Chocolate23
Posted
thanks for the info, no I haven't tried freeezegel, something new to me.
martin45332 lesley89206
Posted
lesley89206 martin45332
Posted
Thank you, I'm hoping the diet will help.
graham9772 lesley89206
Posted
If I can help dont hesitate to ask.
Just remember to be very strict with the diet.
Cheers
Graham
lesley89206 graham9772
Posted
Thank you. I,'m working my way through the lists of foods and I shall try to be strict . once I start.
Lesley
beagle lesley89206
Posted
Regards
John
lesley89206 beagle
Posted
I take 4 1mg tablets a day. I've been on it a few years, Its the only thing I take for RLS apart from a magnesium tablet.
Lesley
beagle lesley89206
Posted
If I remember correctly, 4mg/day is the max for Ropinorole. Any chance you have reached augmentation? If so, you would need medication to get off Ropinorole such as Tramadol. Also beware of any of the no-no drugs for RLS such as Amitriptelene, Omeprazole etc. I augmented on dopamine agonists and used Tramadol whilst weaning off them. Tramadol has been my saviour for a couple of years but a recent bad period has been quelled with Ferrous Bisglycinate taken on an empty stomach at night. I am sure there is something out there that will give you relief and it is worth trawling round the forums and asking questions. My specialist told me to learn to become my own expert as most GP's have no idea how to help us!
graham9772 lesley89206
Posted
Vitamin B12 (based on methyl cobalamin)100 microgram
Folate 500 microgram
One tablet of weach once a day
I was told it might take several weeks to have an effect.
As far as I know its harmless but I am not an expert.
It might work for some people so if nothing else is working well it might be worth giving it a try.
Cheers
Graham
lesley89206 beagle
Posted
Thank you for the info, Wasn't susre what augmentqation was! I did try coming off the ropinerole a few years ago but had nothing to help, so ended up having a very uncomfortable 3 days, Not to be repeated. At the moment the diet and also taking codeine seems to helping with the sleep,
lesley89206 graham9772
Posted
I've been sticking to the diet, and so far have improvement with sleeping .still waking but not so often. I've been able to adjust my smoothie recipe by ,leaving out the yoghourt and mango. Find it oddd that flour is not on the list but crackers are allowed. .