RLS or PLMD?

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Hi I'm 13 and ever since I can remember I have kicked, punched and rolled when I've been sleeping violently but lately It's changed. Instead I've been not even asleep before the symptoms start. I just episodes of twitching that I can't control. I also have suspected moderate CFS/ severe IBS-D if that has anything to do with it. I don't really want to see my doctor as he doesn't believe my symptoms because a blood test is inconclusive. I haven't mentioned this problem.

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  • Posted

    If it's RLS, the desire to move your limbs, from my own experience and from what I read of what other people write, will irritate you to the point of distress.

    I believe IBS can result in low iron absorption which can in turn result in RLS.

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  • Posted

    RLS is really odd. It's not just the legs the arms can also be

    affected. I have it really badly and take Ropinirol. This works

    well and I have no side effects. If also take Magnesium, I buy

    Tescos own and that also helps. I have found that I can't just

    live with mine. I have a husband who was in danger of being

    knocked out by my arms or kicked out my legs. Get help if you

    can.

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  • Posted

    I am 72 and I have had similar problems since I was your age. Mine was diagnosed as PLMD (Periodic Limb Movement Disorder) after a sleep study.

    In my part of the world (Australia) GP's know little about it and the sleep disroder specialist I went to - who also suffers from it - acknowledges that they haven't reallty got a clue about its cause. PLMD and RLS are similar as are others but they all have an as yet unknownn cause. I manage mine with minerals - partuclarly making sure I have plenty of magnesium - and I have many nights when I don't appear to have any symptoms. Last night - after a long afternoon Aussie party - with too much food and too much wine I had a hell of a bad night. My advice to you - and others have suggested this - is to have a sleep study to determine what you are dealing.

    But for me at least, minerals seem to be key, particularly magnesium.

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  • Posted

    I'm 71 and I already take magnesium for leg cramps.  I remember as a child my father would take me to the show or ballgame and he would keep yelling at me to sit still... well, I tried... I really did.  He couldn't understand why I couldn't sit still.   AT night I had to sleep with 2 sister and they'd complain about my "fidgeting"... I tried hard to lay still... but could not.  Everyone thought I was just a "bad" kid and that I was doing it on purpose to annoy.... but we know that's not true now.  
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    • Posted

      I have the same problem! All day leg shakes... Annoying. It's definately not on purpose and I thought it was a habit. But I couldn't break it. Magnesium sounds really good and I have some here to take at home.
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  • Posted

    Dear Beingella

    You are too young to have such a rotten problem.    People suffer from RLS in many different ways and some have mild forms that are just an inconvience while you get something that makes life really tough.   

    I have written some notes in a discussion in this topic calles Restless Legs Syndrome and diet.

    many people are allergic to some carbohydrates (sugars) called FODMAPS.   I think there are five of them and you can be allergic to one or all of them.

    if this is your problem then eating them might produce the symptoms you have.

    Read the  discussions I mentioned and then feel free to get back to me with any questions ans I might be able to help

    I only know of 6 people who have tried the diet and its helped 5 of them.    Its not a cure, its a new diet for life but I think you will find its worthwhile

    i will look out for your news

    cheers

    Graham

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    • Posted

      Thank you for the recommendation. That would also help my IBS as that is making life hard for me. I will look into it and hopefully start in two days (tomorrow is my birthday smile I should treat myself)
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  • Posted

    Graham points out that carbohydrates might be the problem and since I reduced my intake of carbs a year or so ago I have been much better, except for last night when I had a huge carbohydrate intake. Interesting!

    And Barbara mentioned magnesium and that has certainlty helped me and others. The only positive about having this issue at your tender age is that it is very likely better treatments will be developed soon and you may not have to deal with it for a lifetime.

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    • Posted

      Dear Trevor

      The FODMAP carbs are in the most unlikely places.   Just a few that make life miserable are onions, garlic, apples, pears,wheat, mushrooms, and most everything else that's delicious.

      Keep it in mind in case your RLS gets worse as you get older.   Remember its usual to be allergic to only a one or two of the FODMAP carbs so you might find you can reintroduce almost everything you really like.   As I said its not wonderful but better than walking in circles for 10 hours a night.

      I seem to be the only person who is negatively affected by magnesium!!  Very annoying.

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    • Posted

      They both sound like they would work in conjunction together. Maybe carbs reduce magnesium levels? (I'm terrible at science)

      Already it has started getting worse as I age so I know I really need to try something. Magnesium tonight and FODMAP in two days. 

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