8 Replies

  • Posted

    Hi BillyBigBananas

    Yes the patches for rls are available on prescription in the UK. Let us know how you get on with them.

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    • Posted

      HI DIANNE,

      SO WHY DID MY GP TELL ME THEY ARE NOT AVAILABLE IN UK.

      BY THE WAY I AM CHANGING GP, FOR OTHER REASONS.

      THANKS FOR THAT ANYWAY, I HAVE BEEN TAKING ROPINIROL

      WHICH HAVE BEEN HELPING JUST THOUGHT  PATCHES WOULD SAVE PUTTING MORE DRUGS IN MY SYSTEM.

      I WILL CHECK THIS OUT WITH MY GP IF THEY GIVE ME ONE!

      BBB,

      PS ANY SIDE AFFECTS WITH THE PATCHES?

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    • Posted

      Hi bbb...I live in Powys Wales so maybe different health authority? Btw I never used them as too much going on in my life at the time. I got them out of cupboard recently to give them a try and they were out of date. I haven't got round to seeing my go to get some more. As it was two years ago when they were first prescribed it's possible they have been withdrawn.
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  • Posted

    Patches have been available in the UK for a good number of years, hope they work for you

     

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    • Posted

      HI JOAN

      MY GP TOLD ME PATCHES WERE NOT AVAILABLE IN UK, HAVE BEEN USING ROPINIROLE WHICH SEEMS TO HELP, ALTHOUGH I HAVE BEEN ON MINIMUM DOSE 0.25 MG. THINKING OF TRYING TO  GET INCREASE IN DOSAGE SOME NIGHTS IT ONLY SEEMS TO JUST WORK.

      WONDER WHY I WAS TOLD YOU CAN'T GET IN UK,

      I AM CHANGING GP IF THEY LET ME AT SAME SURGREY FOR OTHER REASONS I AM NOT HAPPY ABOUT.

      THANKS

      BBB

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    • Posted

      I don't think your Doctor will try you on patches or other medication as you are on a low dose of ropinirole, you need to keep upping doseage until you reach maximum dose and if this ceases to work then your Doctor should try you on other medication. I have been on ropinirole, pramipexole, patches, all of them worked for a time. I am now on Gabapentin started on 100mg 3 times a day, am now on 800mg 3 times a day, maximum is 900mg 3 times a day. If this doesn't work I have to decide which medication I was most happy with, which in my case was the patches. Good luck Joan

       

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    • Posted

      I, too, was on ropinirole in the beginning.  It worked well for quite a while although one hour after I took it I was out like a light.  .25 is a very low doseage and moving it up might help.  I found that it gave me slight headaches and augmented even on the higher doseage.  Went to Gabapentin 100 mg 3 times a day or two in the evening.  Worked well - began to augment before long.  Dr. switched me to 300 mg capsules and all hell broke loose.  3- 100 mg I was ok.  I went literally bonkers on the 300 mg.  Depression, mental disorientation, talking and not making sense.  I went to see her (dr.) and was blithering on not making sense and I kept telling her "this isn't me   it's the 300 mg Gabapentin". She might have thought I was on drugs as I made no sense and couldn't think of what to say.  Kept telling my husband I was afraid dementia was setting in.  Was warned by a friend of the various side affects of Gabapentin.  Friend went absolutely paranoid, hiding in the cornor when they got her up to 700 mg.  Can't imagine what 8 or 900 mg 3 times a day would do to me.  Some people can tolerate - seems you can.  I was fine on the 100 mg.  Most I ever took in a day was 400 mg spread over several hours.  That being said - augmentation began rather quickly.  I took off 1 mg  patch this a.m .rather than leave it on til tonight as the headaches are brutal.  I'm going to try going back to Requip (ropinirole) .25 with muscle relaxant and Norco pain meds tonight and see if the Requip will work again.  Haven't taken it for a few weeks.  I'll stick with that if it works til augmentation, then back to Gabapentin as I've been off for several weeks as well.  I have found that if I stay off Gabapentin or Requip for a few weeks they do work for a short period of time.  Like you I will have to switch around to see what works and for how long.  Everything seems to augment quickly but no way can I make it through a day of inactivity or a night without something.  Would climb the walls.  Billybigbananas your dr. may want to increase your Requip before moving to patches.
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  • Posted

    I found out about the patches from on line postings and think it was from the UK.  This a few months ago.  Had to bring info to my dr.  Guess they were taken off USA availabillity in the past and recently put back on again.  I use 1 mg patch a day.  But have developed really severe headaches.  Also have had to add muscle relaxant and Norco (opiod) to get full affect at night.  Patches are supposed to be worn 24/7 - changing daily.  I'm going to try taking mine off in the morning to late afternoon to see if the headaches at least ease a bit.  Some people report relief for quite a while, others have augmentation problems, which is what is happening to me I think.  I'll see how just using them part time rather than 24/7 works.
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